Long COVID
Moderate → no benefitIll for 2.5 years
Long COVID with fatigue and brain fog, mostly housebound, no relief from treatments
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill for
- 2.5 years
- Last post
- Sep 2026
In their words
- Condition: Long COVID
I've had long covid for two years
In context ↗ - At worst: Moderate
I'm pretty much housebound with extreme fatigue, dizziness and brain fog.
In context ↗ - Now: No benefit
I've had long covid since spring 2023, and the fatigue and brain fog have worsened a lot since then.
In context ↗ - Began after: COVID
I believe I contracted Covid in spring 2024.
In context ↗ - Says they never had: Mast cell (MCAS) & allergies
I don't have any classic allergy triggers, don't react to seasonal pollens, and don't feel that my long covid has created new sensitivities or allergies.
Read from 23 of their posts and comments; links to the 16 this page draws on
Summary
Bluebell 10316 has had long COVID since spring 2024 with fatigue, dizziness, brain fog and breathlessness, now mostly housebound. Glutamine powder briefly removed the fatigue and let them hike for a week before it failed. LDN eased muscle and joint pain but did nothing for fatigue; antihistamines, nicotine and methylene blue gave no relief from fatigue; a microdose of tirzepatide caused severe fatigue, dizziness and diarrhoea. Red light and mild hyperbaric oxygen seemed to help a little, at $80 a session.
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What they tried
Also tried
glutamine powder· Helped a lot · wore offnicotine gum and patches· Helpedlow dose naltrexone· Helpedred wine· Helpedcold showers and ice packs· Helpedmoderate hyperbaric oxygen· Helpedred light therapy· Helpedbee stings· Helped · wore offNAC, glutathione· No changeNAC, glutathione· No changecurcumin· No changeginger root extract· No changeresveratrol· No changenattokinase· No changeciticoline· No changeH1 antihistamines· No changeH2 antihistamines· No changemethylene blue capsules· No changetirzepatide· Much worsemedicinal mushrooms· Not saidDAO enzyme· Not saidtributyrin· Not saidprebiotics and probiotics· Not saidcareful diet· Not said
Their words about each treatment
- NAC, glutathione · No change
Supplements that some people rave about as helping their long covid, such as NAC, nicotine gum and/or patches and antihistamines, don't help me at all.
In context ↗ - curcumin · No change
Same with curcumin, ginger root extract, and a bunch of botanicals
In context ↗ - medicinal mushrooms · Not said
I've tried about 50 supplements--electrolytes, NAC, glutathione, other amino acids, curcumin, medicinal mushrooms, ginger root, etc
In context ↗ - resveratrol · No change
I've taken strong doses of resveratrol and not had any relief from LC.
In context ↗ - nattokinase · No change
and enzymes such as nattokinase
In context ↗ - citicoline · No change
amino acids such as citicoline and glutamine, and enzymes such as nattokinase
In context ↗ - glutamine powder · Helped a lot
I tried glutamine powder on an empty stomach, and had success getting rid of fatigue so I could go hiking, etc., live my life. Now the glutamine doesn't work.
In context ↗ - nicotine gum and patches · Helped
I've tried nicotine gum and patches, which helped a bit with muscle soreness, but not fatigue.
In context ↗ - H1 antihistamines · No change
I did try ntihistamines for a while on the advice of the first PCP, but did not feel any improvement.
In context ↗ - H2 antihistamines · No change
I have tried various antihistamines for H1 and H2, and also nicotine patches and gum. Nothing.
In context ↗ - DAO enzyme · Not said
Also tried LDN, methylene blue, nicotine patches and gum, H1 and H2 antihistamines, DAO enzyme, NAC, and barrels of supplements.
In context ↗ - low dose naltrexone · Helped
I've been on low dose naltrexone for almost two weeks, and my pain is going away, but I'm still terribly fatigued
In context ↗ - red wine · Helped
the only thing that gives me energy to get up and clean the house, cook, or do other projects, is having a glass of red wine
In context ↗ - methylene blue capsules · No change
low dose naltroxene, and methylene blue capsules, with no success
In context ↗ - cold showers and ice packs · Helped
Now I finish showers with cold water, and also use ice packs on my head and neck, which really helps with symptoms
In context ↗ - moderate hyperbaric oxygen · Helped
The hyperbaric seemed to help some with fatigue, but not much.
In context ↗ - red light therapy · Helped
What seems to help is red light therapy and mild hyperbaric oxygen, which I get from a chiropractor in the Phoenix area.
In context ↗ - tirzepatide · Much worse
Tirzepatide made my fatigue and other symptoms so much worse. I took about a third of a 2.5mg vial of Zepbound and wish I'd never heard of the stuff.
In context ↗ - bee stings · Helped
Right afterward, I started to feel more energetic.
In context ↗ - tributyrin · Not said
For the past month, I've been treating myself, taking tributyrin, prebiotics and probiotics
In context ↗ - careful diet · Not said
I'm very careful with diet, hydration and supplements, but I'm still wiped out.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 10 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| spring 2024 | long COVID after Covid infection; stopped hiking, backpacking and runningI believe I contracted Covid in spring 2024.In context ↗ | Not stated |
| January 2025 | terribly fatigued and mostly houseboundI'm still terribly fatigued and mostly housebound.In context ↗ | Moderate |
| spring 2025 | glutamine powder cleared the fatigue; could go hiking againI tried glutamine powder on an empty stomach, and had success getting rid of fatigue so I could go hiking, etc., live my life.In context ↗ | Mild |
| spring 2025, a week later | energy crashed after a week of glutamine benefitafter a week, my energy crashed and I was back to square oneIn context ↗ | Moderate |
| April 2026 | crashed after a microdose of tirzepatideSince then, my fatigue and dizziness have skyrocketed, along with diarrhea and I am mostly housebound.In context ↗ | Moderate |
| September 2026 | pretty much housebound with extreme fatigue, dizziness and brain fogI'm pretty much housebound with extreme fatigue, dizziness and brain fog.In context ↗ | Moderate |
Adverse events
- Glutamine“I felt a lot better when I took glutamine powder on an empty stomach, but after a week, my energy crashed and I was back to square one.” In context ↗ Made symptoms worse
- Tirzepatide (Mounjaro, Zepbound)“Last week, I started low-dose terzepatide, which has made me feel awful.” In context ↗ Made symptoms worse
- Tirzepatide (Mounjaro, Zepbound)“A small dose of that GLP-1 gave me diarrhea and extreme fatigue” In context ↗ Gut side effects
- Tirzepatide (Mounjaro, Zepbound)“My fatigue and dizziness got a lot worse the next morning, along with diarrhea.” In context ↗ Made symptoms worse
- Tirzepatide (Mounjaro, Zepbound)“Tirzepetide made my fatigue and dizziness much worse and gave me bad diarrhea.” In context ↗ Made symptoms worse
- Tirzepatide (Mounjaro, Zepbound)“Since then, my fatigue and dizziness have skyrocketed, along with diarrhea and I am mostly housebound.” In context ↗ Made symptoms worse
- Tirzepatide (Mounjaro, Zepbound)“The fatigue and diarrhea were overwhelming.” In context ↗ Gut side effects
- Tirzepatide (Mounjaro, Zepbound)“had a big crash. Not that day, but the next week . . . insomnia, much worse fatigue, dizziness and bad diarrhea.” In context ↗ Insomnia from treatment
- Tirzepatide (Mounjaro, Zepbound)“It's three weeks later and the fatigue is still over the top.” In context ↗ Made symptoms worse
Symptoms mentioned
Brain fogBreathlessnessGut problemsMuscle weaknessPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaise
Their words about their symptoms
- Post-exertional malaise
An hour after housework, though, I was exhausted, could barely move and felt like I was headed for a crash.
In context ↗ - Brain fog
my worst symptoms are extreme fatigue, dizziness, brain fog and shortness of breath
In context ↗ - POTS & dysautonomia
I think I developed some type of dysautonomia in my early 60s, way before covid.
In context ↗ - Pain & fibromyalgia
My main symptoms are extreme fatigue, brain fog, dizziness, and some muscle and joint pain.
In context ↗ - Gut problems
Also some gastro issues that are not terrible.
In context ↗ - Muscle weakness
Now, I can barely lift a few dumbbells.
In context ↗