Bedbound with long COVID for over a year, now somewhat better with B12 and walking
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 2 years
- Last post
- Jan 2025
In their words
- Condition: Long COVID
I've had long covid since March 2020
In context ↗ - At worst: Severe
I was bedbound for 13 months
In context ↗ - Now: Somewhat better
I'm able to watch movies, series and game. I still can't do much physically
In context ↗ - Began after: COVID
I got hit 8th of march 2020, uk. I was ill for 3 weeks, sore throat fever, short of breath ect
In context ↗
Read from 16 of their posts and comments; links to the 9 this page draws on
Summary
Shore 93678 caught COVID in March 2020 in the UK and long COVID left them bedbound for over a year with palpitations, gut problems, tingling, breathlessness and brain fog. They credited B12 injections with largely clearing the fatigue and light walking with improving deconditioning, reaching about 80% better by August 2022. Gut issues and temperature dysregulation persisted, and by 2025 they still could not do much physically.
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What they tried
Also tried
Their words about each treatment
- omezprazole · Much worse
I thought I had acid reflux, was given omezprazole, that then depleted all my minerals and almost killed me.
In context ↗ - b12 injections · Helped a lot
I'm on b12 injections every 8 weeks and recovering well.
In context ↗ - supplements · Not said
Blood tests, low in b12, folate, vit d. (Injections, supplements)
In context ↗ - excercise band and 30 min walks · Helped
I bought an excercise band and I'm doing 30 min walks around my block 4 times a week, I'm 40% better
In context ↗
Approaches: Exercise and activity · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 7 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| March 2020 | COVID-19, ill for three weeksI got hit 8th of march 2020, uk. I was ill for 3 weeks, sore throat fever, short of breath ectIn context ↗ | Not stated | |
| October 2020 | long COVID began; bedbound for many monthsI thought i was gonna die of long covid after being bed bound for 11 monthsIn context ↗ | Severe | |
| June 2022 | 40% better with exercise band and 30-minute walksI bought an excercise band and I'm doing 30 min walks around my block 4 times a week, I'm 40% betterIn context ↗ | Moderate | Everyday exercise and activity |
| August 2022 | about 80% better, one-hour walks easilyI'm now able to do 1 hour walks easily ... I'm like 80% betterIn context ↗ | Mild | Everyday exercise and activity |
| January 2025 | can watch films and game but still little physical activityI was bedridden from March 2021 to late 2022 ... I still can't do much physicallyIn context ↗ | Moderate |
Adverse events
- “I thought I had acid reflux, was given omezprazole, that then depleted all my minerals and almost killed me.” In context ↗ Refeeding or deficiency problems
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
still get heart palpitations now and then and slightly pem
In context ↗ - Brain fog
Around week 5, gi issues, heart pain, brain fog, fatique
In context ↗ - POTS & dysautonomia
rh is now between 65 and 85, used to be 105 and standing is now 98 rather than 125
In context ↗ - Gut problems
Gastrointestinal issues - still ongoing
In context ↗ - Heart symptoms & palpitations
Heart palpitations - mostly resolved
In context ↗ - Neuropathy & tingling
Parathesia - resolved
In context ↗ - Temperature regulation
Still have slight fatigue, temperature dysregulation, and gi issues
In context ↗ - Muscle weakness
my muscles wasted
In context ↗ - Flu-like symptoms
sore throat fever
In context ↗
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