Unable to walk with long COVID, now almost back to normal with time
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 6 months
- Last post
- Sep 2022
In their words
- Condition: Long COVID
My long covid was caused by the vaccine and I'm at 8 months now
In context ↗ - At worst: Severe
I had everything you speak of tremors, weakness, count walk, stiffness, heart all over the place, fear and horrible anxiety.
In context ↗ - Now: Near normal
it took me 6-8 months to feel almost normal. Still issues but not like month 1-4.
In context ↗ - Began after: a vaccination
My long covid was caused by the vaccine
Read from 11 of their posts and comments; links to the 8 this page draws on
Summary
They developed long COVID in November 2021, weeks after a second Pfizer jab, with twitching, numb legs, insomnia, pain, palpitations and panic, and could not walk. An omicron infection at Christmas caused a relapse. They began improving around month six and by eight to nine months felt 90-95% better, with leg twitching left. They credit time, though doxycycline, antihistamines, prednisone and ivermectin were tried.
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What they tried
What they credit
Also tried
Their words about each treatment
- vitamins and minerals · No change
I was trying all minerals, vitamins and amino acids. Nothing really helped.
In context ↗ - NAC · No change
I tried all vitamins and amino acids like NAC , and many others.
In context ↗ - prednisone · No change
I then asked my doctor to try prednisone, thinking my immune system was going crazy on my nervous system, but that didn't work.
In context ↗ - antihistamines like Benadryl · Helped
Then I tried antihistamines like Benadryl, which helped a bit in easing the symptoms. ... I was also trying antihistamines which also helped.
- Doxycycline · Helped
5 days in on a 10 day course and I have to say I almost feel normal again. ... It's definitely made me feel a bit better.
- aleve · Helped
I was experimenting and found anti inflammatory type drugs helped like aleve, but that killed my stomach
In context ↗ - ivermectin · Helped
Then last i tried ivermectin for a few days which also helped.
In context ↗ - time · Helped a lot
Bit mostly I think it was just time. ... it was around month 5.5 that I turned a major corner and started feeling exponentially better.
Approaches: H1 antihistamines · Antibiotics · Other drugs and medicines
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 1 month after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| mid November 2021 | long haul symptoms began after second Pfizer jabI am now almost 4 months past the first sign of symptoms in mid NovemberIn context ↗ | Not stated | |
| late 2021 | constant twitching, numb dead legs, days without sleep, panicI had everything you speak of tremors, weakness, count walk, stiffness, heart all over the place, fear and horrible anxiety.In context ↗ | Severe | |
| Christmas 2021 | relapsed after omicron infectionThen I got the omicron on Christmas and I relapsed. Symtoms came back hard.In context ↗ | Severe | |
| April-May 2022 | turned a major cornerit was around month 5.5 that I turned a major corner and started feeling exponentially better.In context ↗ | Mild | Time and spontaneous remission |
| August 2022 | almost normal, only leg twitching leftit took me 6-8 months to feel almost normal. Still issues but not like month 1-4.In context ↗ | Near normal | Time and spontaneous remission |
Adverse events
- Naproxen (Aleve)“aleve, but that killed my stomach” In context ↗ Gut side effects
Symptoms mentioned
Their words about their symptoms
- Neuropathy & tingling
my legs went numb and felt dead in my thighs
In context ↗ - Muscle weakness
I had everything you speak of tremors, weakness, count walk, stiffness
In context ↗ - Anxiety & low mood
Mine was horrible and pure panic.
In context ↗ - Sleep problems
Didn't sleep for 5 days straight, anxiety and shaking.
In context ↗ - Heart symptoms & palpitations
heart all over the place
In context ↗ - Pain & fibromyalgia
just pain throughout my body which was had to explain
In context ↗
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