Long COVID with reflux and nerve pain, improving then relapsing after a Pfizer dose
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 6 months
- Last post
- Jul 2021
In their words
- Condition: Long COVID
6 month long hauler here (27F)
In context ↗ - At worst: Mild
Early on I tried to push myself by using my peloton 20 mins for about two weeks and it was clear that my body couldn’t even handle that without feeling awfulllll.
In context ↗ - Now: Relapsed
was finally starting to feel improvement in mid March ... and it feels like I’m back to square one
In context ↗ - Began after: COVID
high levels of ANA (autoimmune) from covid :/
In context ↗
Read from 15 of their posts and comments; links to the 11 this page draws on
Summary
A 27-year-old woman with long COVID from around October 2020 could not tolerate 20 minutes on an exercise bike early on and had worsening reflux plus nerve pain. By month five she was building slowly with stretching, yoga and short Peloton rides, and acupuncture gave some relief. Her first Pfizer dose in April 2021 flared every symptom. By July 2021 cryotherapy was helping her symptoms.
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What they tried
What they credit
Also tried
Their words about each treatment
- acupuncture · Helped
I’m seeing slow improvement with acupuncture, which helped before with my GERD/stomach issues.
In context ↗ - medication · Helped
Medication and diet has helped a bit.
In context ↗ - gebapetin · Not said
gebapetin wasn’t the right fit for me personally
In context ↗ - peloton, stretching and yoga · Helped
I started off supperrrrrr slow with stretching/restorative yoga and 5 minutes on my peloton and eventually made my way up to 30 min power yoga and 15 min on the peloton after 2 months.
In context ↗ - hyperbaric oxygen therapy · Not said
I did it once and I didn’t love it because of the air pressure.
In context ↗ - cryotherapy · Helped
The same place I go to does cryotherapy and I’ve found that helpful for my symptoms.
In context ↗ - Pfizer vaccine · Much worse
ever since I got the Pfizer vaccine on April 9th it has been hell
In context ↗
Approaches: Exercise and activity
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 1 month after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. The line stops at their last step that can be placed; how they are now is in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| October 2020 | long COVID beganhigh levels of ANA (autoimmune) from covid :/In context ↗ | Not stated | |
| early on | pushed herself with 20 minutes on the peloton and her body could not handle itEarly on I tried to push myself by using my peloton 20 mins for about two weeks and it was clear that my body couldn’t even handle that without feeling awfulllll.In context ↗ | Mild | |
| March 2021 | month five with nerve pain, new symptoms and high anxiety; EMG normalI’m almost on month 5 and the anxiety of new symptoms arising or when they do arise is terrible.In context ↗ | Mild | |
| mid-March 2021 | began to feel improvement while building up stretching, yoga and peloton slowlywas finally starting to feel improvement in mid MarchIn context ↗ | Mild | Everyday exercise and activity |
| April 2021 | crashed after first Pfizer dose, flare of every symptom, back to square oneever since I got the Pfizer vaccine on April 9th it has been hell - a flare up of every single symptom I’ve hadIn context ↗ | Mild | |
| July 2021 | tried hyperbaric oxygen once, disliked the pressure; cryotherapy helpful for symptomsI did it once and I didn’t love it because of the air pressure. The same place I go to does cryotherapy and I’ve found that helpful for my symptoms.In context ↗ | Not stated | Cryotherapy and cold exposure |
Adverse events
- Everyday exercise and activity“Early on I tried to push myself by using my peloton 20 mins for about two weeks and it was clear that my body couldn’t even handle that without feeling awfulllll.” In context ↗ Made symptoms worse
- Acupuncture“I’ve noticed since I’ve become a long hauler I can’t handle as many points as before and it’s a bit more painful (still tolerable)” In context ↗ Side effects
- COVID vaccination as treatment“Definitely a lot more shitty than I was feeling earlier today before I got it (pounding headache, fever/hot feeling, more fatigue, arm is sore).” In context ↗ Side effects
- COVID vaccination as treatment“I’m experiencing headache, dizziness, nausea, and an overall uneasiness feeling.” In context ↗ Side effects
- COVID vaccination as treatment“it has been hell - a flare up of every single symptom I’ve had (fatigue, fibromyalgia, blurred vision, headaches, chills, insomnia, vertigo, gi issues, brain fog)” In context ↗ Made symptoms worse
- Hyperbaric oxygen (HBOT)“I did it once and I didn’t love it because of the air pressure.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I find myself having “milestones” on physical activities I can do without feeling terrible the next day
In context ↗ - Brain fog
Yeah I had my first dose five days ago and my brain fog has now come back.
In context ↗ - POTS & dysautonomia
I’m experiencing headache, dizziness, nausea, and an overall uneasiness feeling.
In context ↗ - Sleep problems
fatigue, fibromyalgia, blurred vision, headaches, chills, insomnia, vertigo, gi issues, brain fog
In context ↗ - Gut problems
I had GERD before, but covid made it a lot worse with with throat issues like you’re describing.
In context ↗ - Anxiety & low mood
the anxiety of new symptoms arising or when they do arise is terrible
In context ↗ - Neuropathy & tingling
I’m experiencing the same symptoms as you.
In context ↗
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