Long COVID, once in a recliner all day, now somewhat better with B12 and thyroid meds
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 3 years
- Last post
- Apr 2025
In their words
- Condition: Long COVID
I’m in year 3 of LC.
In context ↗ - At worst: Mild
I worked from home today, literally in the recliner all day. ... I was so exhausted I was sweating and out of breath.
In context ↗ - Now: Somewhat better
Yes, I am much better since writing this post. It took some medication adjustments (thyroid) and dietary changes to get here.
In context ↗ - Began after: COVID
It took me a year to learn how to manage my PEM after covid in 2022.
In context ↗
Read from 6 of their posts and comments; links to the 4 this page draws on
Summary
Stone 94880 has had long COVID since a COVID infection in 2022. They were working full time and could work from home when needed, but COVID reinfections in June and July 2024 left them back at ground zero, in the recliner all day and in bed after making dinner. A B12 shot gave them the best day in years, and weekly B12 injections left them getting through weeks much better; thyroid medication changes and dietary changes left them much better by April 2025, on B12 every two weeks.
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What they tried
What they credit
Also tried
Their words about each treatment
- pacing · Helped
I’m functional and gotten pretty good at pacing.
In context ↗ - B12 · Helped
It worked immediately
In context ↗ - Singulair · Worse
It worked immediately ... Within 24 hours I had terrible mental side effects with dark thoughts, even su!cide.
In context ↗ - medication adjustments (thyroid) · Helped
It took some medication adjustments (thyroid) and dietary changes to get here.
In context ↗
Approaches: Thyroid hormones
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| 2022 | got COVID, then long COVID with PEMIt took me a year to learn how to manage my PEM after covid in 2022.In context ↗ | |
| 2024-08-31 | back to ground zero after COVID reinfectionsI worked from home today, literally in the recliner all day. ... I was so exhausted I was sweating and out of breath.In context ↗ | |
| September 2024 | first B12 shot, best day in yearsThe next day (a Saturday) I had the best day I’ve had in years.In context ↗ | Vitamin B12 |
| 2024-10-19 | functional, pacing well, working full timeI’m functional and gotten pretty good at pacing. I work full time and can work from home whenever I need to or want to.In context ↗ | Pacing and the energy envelope |
| 2025-04-27 | much better after thyroid medication and diet changesI am much better since writing this post. It took some medication adjustments (thyroid) and dietary changes to get here.In context ↗ | Thyroid hormones (unspecified) |
Adverse events
- Montelukast / Singulair“It worked immediately, calmed my body down and I felt it right away. Within 24 hours I had terrible mental side effects with dark thoughts, even su!cide.” In context ↗ Suicidal thoughts or attempt
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
It took me a year to learn how to manage my PEM after covid in 2022.
In context ↗ - Breathlessness
I was so exhausted I was sweating and out of breath.
In context ↗
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