Long COVID pain and irregular heartbeat, much better after Lyme treatment and B12 shots
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 3 years
- Last post
- Sep 2025
In their words
- At worst: Severe
I was in so much pain I could barely walk. My heart started beating incorrectly.
In context ↗ - Now: Much better
I did get much better from LLMD. Stomach never resolved yet.
In context ↗ - Began after: COVID
Was diagnosed with SIBO but 100 % healthy before Covid.
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
After an unconfirmed COVID infection, the user was ill for about three years with pain so severe they could barely walk and an irregular heartbeat; doctors told them it was anxiety. A Lyme-literate doctor who treated them for Lyme, tick-borne infections and EBV made them much better, though stomach problems persisted. In September 2025 they restarted B12 shots and began to feel better.
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What they tried
What they credit
Also tried
Their words about each treatment
- Pepcid · Helped
the only thing that has given me any relief is Pepcid and Claritin
In context ↗ - supplements · Not said
I stopped supplements to take a break.
In context ↗ - LLMD treatment for Lyme and tick-borne infections · Helped a lot
I did get much better from LLMD.
In context ↗ - elemental diet · No change
Tried elemental diet. ... Nothing.
In context ↗ - antibiotics · No change
Antibiotics, nothing.
In context ↗ - eating less · Helped
Eating less helps.
In context ↗ - B12 shots · Helped
I just started B12 shots again and I’m starting to feel better.
In context ↗
Approaches: Antibiotics · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The first step with a time is 3 years after onset: the story doesn’t say how ill they were before that. The dashed part: the story doesn’t say when. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2021 | became ill after an unconfirmed COVID infectionWas diagnosed with SIBO but 100 % healthy before Covid.In context ↗ | Not stated | |
| before August 2024 | pain so severe they could barely walk, heart beating incorrectly, doctors called it anxietyI was in so much pain I could barely walk.In context ↗ | Severe | |
| 2024-08-25 | much better after treatment from a Lyme-literate doctorI did get much better from LLMD.In context ↗ | Mild | Lyme / co-infection protocols |
| 2025-09-14 | restarted B12 shots and started to feel betterI just started B12 shots again and I’m starting to feel better.In context ↗ | Mild | Vitamin B12 |
Symptoms mentioned
Their words about their symptoms
- Gut problems
Stomach never resolved yet.
In context ↗ - Pain & fibromyalgia
I was in so much pain I could barely walk.
In context ↗ - Heart symptoms & palpitations
My heart started beating incorrectly.
In context ↗
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