Long COVID with severe fatigue and POTS, barely able to work or walk, now somewhat better
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 13 months
- Last post
- Jan 2023
In their words
- Condition: Long COVID
I had contracted COVID December of 2021 and I've never been the same. Test after test, no answers beyond long COVID/POTS, etc.
In context ↗ - At worst: Moderate
I could barely work. I could barely sleep, would wake up sweating, jolt awake, disorientation, could barely walk around.
In context ↗ - Now: Somewhat better
I've felt more functional, but in the past week or two I've felt sick again.
In context ↗ - Began after: COVID
I had COVID late December which was very mild
Read from 14 of their posts and comments; links to the 9 this page draws on
Summary
Bramble 61499 developed long COVID after a mild infection in December 2021, with symptoms starting about three to four weeks later. For nine months they had severe fatigue, POTS, muscle weakness, pain, brain fog and sensory overload, and could barely work or walk. From about month eight they had more good days, though chest pressure and fatigue lingered. By January 2023 they felt more functional but had felt sick again recently.
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What they tried
What they credit
Also tried
Their words about each treatment
- Acyclovir · Not said
my doctor though it may be Shingles and started Acyclovir. I’ve not been the same ever since.
In context ↗ - working out again / exercising · Worse
I was able to start working out again for about a month then just suffered a “crash” presumably from over extertion.
In context ↗ - hydration · Helped
muscle spasms and shakiness/these move and do seem to improve with hydration
In context ↗ - Propanolol / beta-blocker · Helped
I also started a beta-blocker as needed for the symptoms of POTS. Can take the edge off.
In context ↗ - pacing · Not said
Pacing I’m not great at.
In context ↗ - time · Helped
It did get better with time, I’m 8 months out.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 1 month after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| December 2021 | Mild COVID infection; back at work within a weekI had contracted COVID December of 2021 and I've never been the same.In context ↗ | Not stated |
| January 2022 | Symptoms hit suddenly about 3-4 weeks after COVID and lasted 9 monthsThen about 3-4 weeks later all hell broke loose. It hit me quickly and I felt like I was getting ill again.In context ↗ | Moderate |
| June 2022 | Crashed after going back to exercisingLast week I definitely over exerted in getting back to exercising and have been struggling with horrible bouts of fatigueIn context ↗ | Moderate |
| August 2022 | Adrenaline surges and blood pressure settled; more good days than badIt did get better with time, I’m 8 months out.In context ↗ | Mild |
| January 2023 | More functional overall, but felt sick again for the past week or twoI've felt more functional, but in the past week or two I've felt sick again.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
massive fatigue after exertion
In context ↗ - Brain fog
brain fog and concentration issues
In context ↗ - POTS & dysautonomia
I've had GI stuff as well around digestion, etc.
In context ↗ - Sleep problems
I could barely sleep, would wake up sweating, jolt awake, disorientation
In context ↗ - Pain & fibromyalgia
Muscle pains/fatigue/appetite/nausea, etc.
In context ↗ - Gut problems
Past few days I’ve had horrible GI issues
In context ↗ - Light & noise sensitivity
sensory overload and dizziness
In context ↗ - Heart symptoms & palpitations
My heart rate jumps up 30-50 BPM when standing
In context ↗ - Muscle weakness
Weakness in legs like I had overused them extensively.
In context ↗ - Neuropathy & tingling
odd nerve sensations that come and go in my arms/legs
In context ↗ - Anxiety & low mood
anxiety that’s completely random
In context ↗ - Flu-like symptoms
feeling like I’m “getting sick”. Flu or viral symptoms that literally come and go.
In context ↗ - Tinnitus
tinnitus that alternates ears
In context ↗ - Temperature regulation
Feel hot/feverish then chilly. I’ll sweat at night often too.
In context ↗ - Vision problems
vision disturbances
In context ↗
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