Long COVID
Severe → much betterIll 4 years before improving or writing
Bedbound with long COVID for months, now much better with time and fixed sleep schedule
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 4 years
- Last post
- Jul 2025
In their words
- Condition: Long COVID
Vaccine gave me LC in the first place I would stay away as far as possible.
In context ↗ - At worst: Severe
after months and months in bed and gaining 30 pounds (20% of body mass)
In context ↗ - Now: Much better
I would say most symptoms are gone except for three major ones - pelvic pain and ED, headache and heart ache.
In context ↗ - Began after: a vaccination
It was clear as it started right after second vaccine.
Read from 40 of their posts and comments; links to the 21 this page draws on
Summary
They dated their long COVID to a second Pfizer shot, then were bedbound for months and 18 months unable to climb stairs without near-fainting. Over four years, fatigue eased with time, a fixed sleep schedule and holistic healing, and fainting spells improved; after years of 24/7 pelvic and stomach pain, by July 2025 most symptoms were gone except pelvic pain, erectile dysfunction, headache, heart ache and some tinnitus. Crashes still cut them to 150 steps some days, though they reached 20,000 steps on good days by spring 2025.
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What they tried
What they credit
Also tried
fasting· HelpedColace· Helpedchurch visits· Helpedminor procedure· Helped · wore offturkey tail and agarikon· Helpedtrauma coach Philippe· Helpedbody work· Helpeddifferent diets· No changecoaches and therapists· No changesupplements· No changesquats without any weights· Worseescitalopram and nortriptyline· Much worseescitalopram and nortriptyline· Much worseChinese medicine· Not said
Their words about each treatment
- time · Helped
Been like that for 3 years, mostly time and fixing sleep schedule got me better in terms of fatigue, other symptoms don’t go away though.
In context ↗ - different diets · No change
Tried different diets over the last 3+ years ... this didn’t change anything and I don’t think any dietary changes will help.
In context ↗ - fasting · Helped
trying to skip one day in 1-2 weeks I do feel better ... Pain sensation during this time tends to go away and brain clears up as well.
In context ↗ - taking a six months off from work · Helped
Most progress for me was taking a six months off from work, don’t think there was a better option.
In context ↗ - Colace · Helped
Basic over the counter Colace helped me quite well with constipation
In context ↗ - church visits · Helped
regular church visits seem to have a relaxing effect as well
In context ↗ - minor procedure · Helped
I had minor procedure where I stayed at the hospital for a day and I did feel better, but that worn off in a few days.
In context ↗ - escitalopram and nortriptyline · Much worse
I tried out escitalopram and nortriptyline. Both made me feel much worse, second one drove me insane without too many benefits.
In context ↗ - squats without any weights · Worse
Recently started to do squats without any weights and that send shockwaves immediately and it is still very rough.
In context ↗ - meditation, breath work and child's yoga pose · Helped
Sitting in a child’s yoga pose has helped me to cry most of it out ... Symptoms that this approach has helped me with so far: chronic fatigue, constant crashes, headaches, tinnitus
- turkey tail and agarikon · Helped
Some improvements but nothing to brag about unfortunately.
In context ↗ - psilocybin microdosing · Helped
I can confirm that microdosing definitely helps, preparing myself for a larger dose.
In context ↗ - trauma coach Philippe · Helped
While it didn’t resolve LC symptoms, I did find a lot of mental relief while working with Philippe.
In context ↗ - coaches and therapists · No change
I have been seeing multiple coaches and therapists and so far I didn’t get much help except for one I randomly stumbled upon on social media.
In context ↗ - supplements · No change
Absolutely no difference how shitty I feel, supplements or not.
In context ↗ - body work · Helped
Body work is quite intense to say the least and can be described as a very deep massage and usually quite painful but it helps in both - releasing physical pain as well as mental trauma.
In context ↗ - fixing sleep schedule · Helped
mostly time and fixing sleep schedule got me better in terms of fatigue
In context ↗ - programs on resetting the nervous system and holistic healing · Helped
I have completed a few programs on resetting the nervous system and holistic healing. It didn’t cure my LC but I found a way to get a bit of energy back.
In context ↗ - Chinese medicine · Not said
traditional medicine, supplements, Chinese medicine, holistic healers, meditation, anything and everything that I could get my hands on.
In context ↗
Approaches: Brain retraining · Mind-body practices · Other drugs and medicines · Radical rest
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 12 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2021 | symptoms began days after the second Pfizer shotGot it from second shot of Pfizer.In context ↗ | Not stated | |
| 2022 | months in bed, could not climb a set of stairs without almost faintingFor 18 months I couldn't climb a set of stairs without almost faintingIn context ↗ | Severe | |
| 2024-12-20 | able to do a light workout and walk almost normallyI’m able to do a light workout now and walking seems almost normal.In context ↗ | Mild | Time and spontaneous remission |
| 2025-02-18 | no longer bedridden, more or less functional after holistic healing and body workI’m more or less functional instead of being bed ridden.In context ↗ | Mild | |
| 2025-03-28 | walking up to 20,000 steps a day, still crashing at timesIn the last two months I was able to walk 20k steps a dayIn context ↗ | Mild | Brain retraining programs (DNRS, Gupta, ANS Rewire, Primal Trust) |
| 2025-03-29 | crash limiting him to 150 steps a day, mostly to the restroom and backI still crash like crazy to the point where I can make 150 steps in a dayIn context ↗ | Severe | |
| 2025-07-14 | most symptoms gone except pelvic pain and erectile dysfunction, headache, heart ache and some tinnitusmost symptoms are gone except for three major ones - pelvic pain and ED, headache and heart acheIn context ↗ | Mild | Time and spontaneous remission |
Adverse events
- Nortriptyline (Pamelor)“Nortriptyline, which was casually prescribed by my PCP, was driving me crazy and I wanted to step out of my apartment on the 20th floor, without using doors that is.” In context ↗ Suicidal thoughts or attempt
- Escitalopram (Lexapro), Nortriptyline (Pamelor)“I have tried a few SSRIs and won’t touch them again, all of them had intense side effects for me.” In context ↗ Side effects
- Escitalopram (Lexapro), Nortriptyline (Pamelor)“I tried out escitalopram and nortriptyline. Both made me feel much worse, second one drove me insane without too many benefits.” In context ↗ Made symptoms worse
- Nortriptyline (Pamelor)“second one drove me insane without too many benefits.” In context ↗ Mood or psychiatric effects
- “Body work is quite intense to say the least and can be described as a very deep massage and usually quite painful” In context ↗ Side effects
Symptoms mentioned
Anxiety & low moodBrain fogBreathlessnessGut problemsHeadaches & migraineHeart symptoms & palpitationsPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseSleep problemsTemperature regulationTinnitusVision problems
Their words about their symptoms
- Post-exertional malaise
there crashes when I just can't move at all and need to stay in bed for several days
In context ↗ - Brain fog
brain fog, confusion
In context ↗ - POTS & dysautonomia
Fainting spells were really bad, but that is one of few things that have improved.
In context ↗ - Sleep problems
I’m able to fall asleep and as a result have higher energy levels
In context ↗ - Pain & fibromyalgia
specifically pelvic and stomach pain that persist 24/7
In context ↗ - Headaches & migraine
most symptoms are gone except for three major ones - pelvic pain and ED, headache and heart ache
In context ↗ - Gut problems
Main is the stomach and pelvic pain which are 24/7 for the last 3+ years
In context ↗ - Breathlessness
anxiety, shortness of breath, fainting spells
In context ↗ - Heart symptoms & palpitations
chest pain, pelvic pain, erectile dysfunction
In context ↗ - Anxiety & low mood
depressive states are coming back from time to time
In context ↗ - Tinnitus
Some tinnitus is still present as well.
In context ↗ - Temperature regulation
I had night sweats for a while, now they are gone.
In context ↗ - Vision problems
My vision is often blurry
In context ↗
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