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Long COVID Severe → much betterIll 3 years before improving or writing

Long COVID with brain fog and breathlessness, now much better at about 80% function

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
3 years
Last post
Jan 2024
In their words
  • Condition: Long COVIDLong Covid for 38 months. In context ↗
  • At worst: SevereI basically lived in my room for three to four months. I got everything I needed either through family members or amazon. In context ↗
  • Now: Much betterAlthough I've improved since, I will opt out of covid boosters. In context ↗
  • Began after: COVIDI got sick in October of 2020. In context ↗
Read from 5 of their posts and comments; links to the 3 this page draws on

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Summary

A man of 32 got long COVID in October 2020, with hypoxia, breathlessness, body pain, brain fog and 16 hours of sleep a day. For three to four months he lived in his room and took a health-related leave of absence from law school. He improved to about 80% of his old function, able to barely manage 40 hours a week with cognitive problems remaining. Two Pfizer boosters worsened him, the second causing aphasia; he opted out of further boosters.

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What they tried

Their words about each treatment
  • exercising twice a day for 15 minutes · Not saidI exercised twice a day for 15 minutes, but that was all the physical exertion that I was capable of. In context ↗
  • Pfizer vaccine · WorseMy first booster (1/14/22) made all my symptoms worse for about 2 months, there was general improvement afterward. In context ↗
  • occupational therapy · HelpedI think the app in addition to my occupational and speech therapy helped to curb my brain fog and other cognitive issues from LC. In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
October 2020COVID-19 infection, flu-like symptoms and hypoxiaI got sick in October of 2020. In context ↗Mild
early 2021lived in his room, sleeping 16 hours a dayI spent nearly 16 hours a day for three to four months sleeping. In context ↗Severe
2021-07-14improved significantly, re-enrolled in school with accommodationsI have improved significantly since then, but I am still a pretty decent way off from full recovery. In context ↗Mild
1/14/22first Pfizer booster worsened all symptomsMy first booster (1/14/22) made all my symptoms worse for about 2 months In context ↗Mild
9/17/22second booster caused acute aphasiaAfter the second booster (9/17/22) I had an acute onset of aphasia. In context ↗Mild
2024-01-06improved since the aphasia but opted out of further boostersAlthough I've improved since, I will opt out of covid boosters. In context ↗Mild

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Brain fogI slowly experienced the onset of brain fog and fatigue In context ↗
  • BreathlessnessI continued to experience shortness of breath In context ↗
  • Pain & fibromyalgiaI am still experiencing the same body pains In context ↗
  • Sleep problemsI got at least 16 hours of sleep a day In context ↗
  • Flu-like symptomsAfter my flu-like symptoms and hypoxia dissipated In context ↗

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