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ME/CFS Mild → recoveredIll 15 years before improving or writingNeeds ongoing treatment

ME/CFS fatigue, brain fog and pain, now recovered after gluten cut and energy drink

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill before improving or writing
15 years
Last post
Apr 2017
In their words
  • Condition: ME/CFSSince my early 20s, I've been suffering from fatigue, chills, brain fog, muscle pains, tingling, etc. In context ↗
  • At worst: MildSince my early 20s, I've been suffering from fatigue, chills, brain fog, muscle pains, tingling, etc. ... Because I wanted to be productive at work In context ↗
  • Now: RecoveredI never thought I would be cured!!! Its almost a month now, so Im pretty sure this is real. In context ↗
  • Began after: nothing they could nameSince my early 20s, I've been suffering from fatigue, chills, brain fog, muscle pains, tingling, etc. In context ↗
Read from 4 of their posts and comments; links to the 2 this page draws on

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Summary

Fjord 12444 had episodic fatigue, chills, brain fog, muscle pain and tingling from their early 20s into their late 30s, while still working. Reducing gluten stopped the chills, brain fog and fever but left body pain, tingling and fatigue. After starting a sugar-free Bacchus energy drink, they reported the remaining pain and fatigue disappeared and felt recovered almost a month later, taking one can daily.

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What they tried

Also tried

Bacchus (sugar free) energy drink· Helped a lotdecreased gluten· Helpedavoiding instant coffee· Not said
Their words about each treatment
  • decreased gluten · HelpedI decreased gluten as much as possible and the chills/brain fog/fever stopped, but my body pain/tingling/fatigue stayed though not as bad as before In context ↗
  • avoiding instant coffee · Not saidFor me the trigger was the instant coffee i was drinking. The flare up when i had the coffee doesnt compare to bread In context ↗
  • Bacchus (sugar free) energy drink · Helped a lotI bought Bacchus (the sugar free one), but little did I know that my body pains and fatigue would magically disappear!!! In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset3 y6 y9 y12 y15 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
early 20sfatigue, chills, brain fog, muscle pains and tingling beganSince my early 20s, I've been suffering from fatigue, chills, brain fog, muscle pains, tingling, etc. In context ↗Mild
—gluten reduction; chills, brain fog and fever stopped, but body pain, tingling and fatigue remained less severeI decreased gluten as much as possible and the chills/brain fog/fever stopped, but my body pain/tingling/fatigue stayed though not as bad as before... In context ↗Mild
2017-04-21started sugar-free Bacchus energy drink; body pains and fatigue disappeared, reports recoveryI bought Bacchus (the sugar free one), but little did I know that my body pains and fatigue would magically disappear!!! In context ↗Recovered

Symptoms mentioned

Their words about their symptoms
  • Brain fogthe chills/brain fog/fever stopped In context ↗
  • Pain & fibromyalgiamy body pains and fatigue would magically disappear!!! In context ↗
  • Neuropathy & tinglingfatigue, chills, brain fog, muscle pains, tingling, etc. In context ↗

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