Long COVID with brain fog, migraines and fatigue, somewhat better now
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- 5 months
- Last post
- Sep 2022
In their words
- Condition: Long COVID
I was super scared my bivalent vaccine worsened my symptoms (I was sick in May)
In context ↗ - Now: Somewhat better
I went from being doom and gloom to cautiously optimistic ... Still had brain soup yesterday for a good bit of the day but the day prior I actually felt fantastic for the first time in months.
- Began after: COVID
I was positive mid May.
In context ↗
Summary
Infected with COVID in mid May 2022, they had months of brain fog, migraines, neck pain and fatigue. A bivalent booster in September seemed to make the brain fog and body aches worse, and a respiratory infection followed that needed antibiotics and steroids. After that cleared they felt fantastic for a day and reported improvement in brain fog, migraines, neck pain and fatigue, though brain fog still returned.
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What they tried
What they credit
Also tried
Their words about each treatment
- bivalent booster · Worse
Last week got the booster and dear God the brain fog and body aches are so bad.
In context ↗ - immunosuppressant meds · Not said
because I am on immunosuppressant meds. Stopped when I was supposed to and all.
In context ↗ - antibiotics · Helped
needing some antibiotics and steroids to clear it out ... after a course of meds started feeling so much better
- weed gummies · Helped
I get a lot of symptom relief and feel something but most of the time it is not nearly as strong as it used to be
In context ↗
Approaches: Antibiotics · Other drugs and medicines
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| May 2022 | COVID-19 infection; long COVID symptoms beganI was positive mid May.In context ↗ | Moderate |
| September 2022 | bivalent booster; brain fog and body aches much worseLast week got the booster and dear God the brain fog and body aches are so bad.In context ↗ | Moderate |
| late September 2022 | improvement after a respiratory infection cleared with antibiotics and steroidsthe day prior I actually felt fantastic for the first time in monthsIn context ↗ | Mild |
Adverse events
- COVID vaccination as treatment“Last week got the booster and dear God the brain fog and body aches are so bad.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Brain fog
Still had brain soup yesterday for a good bit of the day
In context ↗ - Pain & fibromyalgia
the brain fog and body aches are so bad
In context ↗ - Headaches & migraine
feeling improvement of my brain fog, migraines, neck pain
In context ↗
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