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Long COVID Severe → relapsedIll 4 years before improving or writingNeeds ongoing treatment

Long COVID brain fog and crashes; improved on antibiotics and probiotic, then relapsed

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
4 years
Last post
Aug 2025
In their words
  • Condition: Long COVIDAfter 3 years of long covid, I could braid it just fine In context ↗
  • At worst: SevereI was back to feeling feverish most days, could only get up for several hours. In context ↗
  • Now: RelapsedLC came back a few weeks later, out of the blue, with a crash. In context ↗
  • Began after: COVIDAfter 3 years of long covid, I could braid it just fine In context ↗
Read from 11 of their posts and comments; links to the 9 this page draws on

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Summary

Sequoia 29441 had long COVID for about four years, with brain fog, crashes after exertion and shortness of breath. High-dose antibiotics after surgery plus an expensive probiotic made most symptoms vanish for about eight weeks, and they could work eight-hour days; the symptoms returned after they phased the probiotic out. Loratadine kept their brain fog at bay. A wrong form of CoQ10 later left them feverish and able to get up only for hours.

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What they tried

Their words about each treatment
  • Loratadine · HelpedI have been taking Loratadine (the weaker "sibling" of desloratadine) for 5 years now, against brain fog. In context ↗
  • 2 antibiotics (high doses) · Not saidThere was an accident during surgery and I had to take high doses of 2 antibiotics for several weeks. In context ↗
  • expensive probiotic (70 euros for 30 days) · Helped a lotI started taking it when the antibiotics were done. 4 weeks later most of my LC symptoms (which I track with Visible) disappeared and I could work 8 hour days of mental work for the first time in over 3 years. In context ↗
  • ubichinol · HelpedCortisol and everything mitochondria-related is low (e.g. Q10). So I supplement with ubichinol 3x/day In context ↗
  • double espresso · Helpeddrink a double espresso at 10 am. That pushes me until ca 2 pm, but doesn‘t interfere with sleep. In context ↗
  • fishoil (higher dose than previously) · Not saidI take a lot of supplements for LC and perimenopause, so hard to pinpoint what changed. In context ↗
  • L-arginine with vitC · Not saidNew supps are fishoil (higher dose than previously), L-arginine with vitC, higher dose of VitD plus VSL3 probiotic every few months. In context ↗
  • hair repair treatment at home (boiled linseed gel and coconut oil) · Not saidIt‘s made from boiled linseed (gel) and a bit of coconut oil. I‘ve been using that monthly for the past 8 months. In context ↗
  • 5-htp · HelpedI had this too, got much better when I prioritized sleep. (5htp > serotonin, melatonin to fall asleep, 500mg magnesium with slow release to stay asleep, light therapy in the morning to shift sleep back to normal) In context ↗
  • melatonin · Helpedmelatonin to fall asleep, 500mg magnesium with slow release to stay asleep In context ↗
  • 500mg magnesium with slow release · Helped500mg magnesium with slow release to stay asleep In context ↗
  • light therapy in the morning · Helpedlight therapy in the morning to shift sleep back to normal In context ↗
  • low-carb diet · Not saidI try to eat low-carb so instead of sugar I eat too much dairy (natural sugar content) and fruit. In context ↗
  • pre-emptive pacing · HelpedI do pre-emptive pacing. So I lie down before activity and after activity, whether I feel fatigue or not. That improved my crash rate significantly. In context ↗
  • guided breath work and/or meditation · HelpedOnce a day, usually early afternoon, I try to throw in **10-18 minutes of guided breath work and/or meditation**. I don't manage every day, but I force myself to do it every day that is high-energy. I feel a noticeable difference. In context ↗

Approaches: Mind-body practices · Pacing · Supplements

Their path

What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedAfter
2020long COVID onset
2024most LC symptoms disappeared after antibiotics and a high-dose probiotic4 weeks later most of my LC symptoms (which I track with Visible) disappeared and I could work 8 hour days of mental work for the first time in over 3 years. In context ↗Probiotics and fermented foods
2024LC returned with a crash after phasing out the probioticLC came back a few weeks later, out of the blue, with a crash. In context ↗
2025functionality plummeted after taking the wrong CoQ10 for four weeksTook that for 4 weeks and my functionality plummeted. In context ↗
2025-08-14still pacing, feverish most days, up only several hoursI was back to feeling feverish most days, could only get up for several hours. In context ↗

Adverse events

  • CoQ10 / ubiquinol“Took that for 4 weeks and my functionality plummeted. ... I was back to feeling feverish most days, could only get up for several hours.” In context ↗ Made symptoms worse

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseUsually, I crash if I combine different things from the 2nd list In context ↗
  • Brain fogthe brainfog comes back with a vengeance In context ↗
  • Sleep problemsgot much better when I prioritized sleep In context ↗
  • BreathlessnessOne of my LC problems is shortness of breath. In context ↗
  • Flu-like symptomsI was back to feeling feverish most days In context ↗
  • Hair lossOne day, it stopped falling out. In context ↗

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