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Long COVID Severe → recoveredIll 3 years before improving

Sally (video)

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving
3 years
Published
May 2024
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In their words
  • Condition: Long COVIDafter a three year battle with long covid
  • At worst: SevereIf I took a shower, that would likely be my only activity for the day period.
  • Now: RecoveredI am overjoyed to say I have my life back ... I'm living, I am literally part of my life once again.
  • Began after: COVIDWhen I went down with the debilitating long covid case

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Summary

Sally Whaling had long COVID, diagnosed as dysautonomia, for three years after an earlier brain injury. At worst she could walk three to five minutes, a shower was her only activity for the day, and she could not drive. She credited a three-day Lightning Process workshop by Zoom; on day one she walked 15 minutes. Afterwards she hiked, drove four hours and attended bootcamp classes, saying she had her life back.

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What they tried

Also tried

yoga classes· Not saidPilates and bootcamp classes· Not said
Their words about each treatment
  • The Lightning Process · Helped a lotI got my life back by attending a three day workshop called The Lightning Process. I attended it by Zoom.
  • yoga classes · Not saidI am attending yoga classes, Pilate classes, bootcamp classes.

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The dashed part: the story doesn’t say when. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
onsetLong COVID onset, could walk only three minutescrippling fatigue at the start along Covid, the longest I could walk consecutively was three minutes.Severe
mid-NovemberWalked 15 minutes, drove to the supermarket and to visit family during the workshopI did more in that day than I'd done for the three years that I fought my long covid journey. I walked for 15 minutes.ModerateLightning Process
—Hiking, exercise classes, long drives, travelI'm living, I am literally part of my life once again.RecoveredLightning Process

Symptoms mentioned

Their words about their symptoms
  • Brain fogI had major brain processing issues.
  • POTS & dysautonomiamy diagnosis was dysautonomia
  • Heart symptoms & palpitationsMy heart rate had wild swings.
  • BreathlessnessI had breath hunger
  • Gut problemsMy digestion literally stopped. I became so bloated
  • Neuropathy & tinglingI had body tingles
  • Temperature regulationextreme temperature swings

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