Long COVID with brain fog, tremors and tinnitus, somewhat better with time and vitamin D
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 15 months
- Last post
- Mar 2022
In their words
- Condition: Long COVID
10 month long hauler.
In context ↗ - At worst: Mild
My hands are so numb I’m dropping things. My feet are so numb I’m tripping over stuff. ... tomorrow I start a desk job thanks to ADA
- Now: Somewhat better
I have periods of relapse and remission. I think it will go away with time because some of my other symptoms disappeared.
In context ↗ - Began after: COVID
Got COVID back in November
- Says they never had: Sleep problems
No sleep issues.
Read from 51 of their posts and comments; links to the 21 this page draws on
Summary
A 23-year-old man fell ill with long COVID in November 2020 and had neuropathy, tinnitus, brain fog and tremors for over a year. Ivermectin eased his pain for a while and IVIG made everything worse; maraviroc did nothing. By month 14 he credited time and high-dose vitamin D, with symptoms milder and less frequent, and he was back at a desk job and exercising.
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What they tried
What they credit
Also tried
Their words about each treatment
- Niacin · Helped
I did niacin 1000 mg a day for a month back in January. This pretty much cure fatigue in my case of long-COVID
In context ↗ - Pfizer COVID vaccine · Worse
Vaccine did no help in my case. It just added new symptoms; heart palpitations and shortness of breath.
In context ↗ - IVIG (IvIg) · Worse
this literally made all my post-COVID symptoms WORSE
In context ↗ - Ivermectin · Helped
Overall pain went from 7/10 to 4/10. I’m not 100% yet, but I notice a HUGE difference.
In context ↗ - BPC-157 · Not said
I’m also taking peptides “BPC-157” and “Thymosin Beta 4”. I’m not sure which of these 3 is helping
In context ↗ - Vitamin D · Helped
The two most obvious things that have helped me are time and Vitamin D.
In context ↗ - turmeric · Not said
Turmeric 1,500 a day
In context ↗ - vitamin C with quercetin · Not said
vitamin C with quercetin (life extension brand)
In context ↗ - alpha lipoic acid · Helped
I take 900 mg everyday. Only helps with pain, not numbness
In context ↗ - Xanax · Helped
the best medication they gave is Xanax which helps a lot with neuropathy
In context ↗ - raw garlic · Helped
For neuropathy, my doctor told me to eat raw garlic every day. My stomach burns for about 20 minutes but it is so worth it.
In context ↗ - 72 hour fast · Helped
I’m on day 2 and I feel all my neuropathy is cooling down.
In context ↗ - maraviroc · No change
On week 2 of maraviroc. I don’t notice anything yet
In context ↗ - zinc · Not said
zinc 50 mg every other day
In context ↗ - liquid fish oil · Not said
Fish oil, i use liquid fish oil two tbsp.
In context ↗ - Glutathione · Not said
Glutathione (life extension, i take 2)
In context ↗ - apple cider vinegar · Not said
Raw garlic and apple cider vinegar, essiac tea as welll!
In context ↗ - Essiac tea · Helped
Essiac tea is a game changer.
In context ↗ - low carb diet · Not said
I intermittent fast and am on a low carb diet to help with inflammation.
In context ↗ - workouts (strength training and cardio) · No change
I started working out a few weeks ago and I noticed that it doesn’t make symptoms worse or better.
In context ↗ - ozone therapy · No change
Neither stem cells nor ozone cured anything but stem cells helped him to an extent.
In context ↗ - NyQuil · Not said
For sleep, I rarely use NyQuil
In context ↗ - stem cells (placebo trial) · Not said
He helped me get in a 50/50 placebo trial for stem cells so we’ll see what how I react.
In context ↗ - intermittent fasting 16-18 hours · Helped
I think time and Vitamin D and intermittent fasting had helped the most.
In context ↗ - time · Helped
I really think sun light and time are the best healers
In context ↗ - hot water or cold water · Helped
Hot water or cold water does the trick, provides like 30 minutes of complete relief.
In context ↗
Approaches: Diet · Other drugs and medicines · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 5 months after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| November 2020 | COVID-19 with five days of fever and nerve painI’m a 22 year old male. Got COVID back in NovemberIn context ↗ | Not stated | |
| January 2021 | a month of niacin cleared the fatigueI did niacin 1000 mg a day for a month back in January. This pretty much cure fatigueIn context ↗ | Not stated | |
| April 2021 | Pfizer vaccine added palpitations and breathlessnessIt just added new symptoms; heart palpitations and shortness of breath.In context ↗ | Mild | |
| June 2021 | ivermectin eased overall painDay 3 I feel way better. Overall pain went from 7/10 to 4/10.In context ↗ | Mild | Ivermectin |
| July 2021 | neuropathy and cognitive symptoms at their worstNeuropathy is so bad that my hands are dropping things and my depth perception is terrible.In context ↗ | Mild | |
| September 2021 | symptoms milder and less frequent on supplements, diet and timeI am on month 10 and my symptoms r more mild and less frequent.In context ↗ | Mild | Time and spontaneous remission |
| January 2022 | back at work and working out, slight improvementsThe two most obvious things that have helped me are time and Vitamin D.In context ↗ | Mild | Vitamin D and sun exposure |
| February 2022 | pins and needles persist, with periods of relapse and remissionMy most annoying symptom is pins and needles. It hasn’t gone away, YET. I have periods of relapse and remission.In context ↗ | Mild |
Adverse events
- IVIG / subcutaneous Ig“this literally made all my post-COVID symptoms WORSE.” In context ↗ Made symptoms worse
- COVID vaccination as treatment“I already received Pfizer vaccine in April. That only seemed to make things worse.” In context ↗ Made symptoms worse
- COVID vaccination as treatment“It just added new symptoms; heart palpitations and shortness of breath.” In context ↗ Heart rhythm problems
- Niacin (vitamin B3)“I flushed bad after my first dose of 500 mg but that was it.” In context ↗ Side effects
- Garlic and garlic extract“My stomach burns for about 20 minutes but it is so worth it.” In context ↗ Gut side effects
Symptoms mentioned
Their words about their symptoms
- Tinnitus
The most annoying symptoms I deal with everyday is the pins and needles and the tinnitus.
In context ↗ - Brain fog
My brain fog is turning into serious cognitive dysfunction.
In context ↗ - Vision problems
my depth perception is terrible
In context ↗ - Breathlessness
I recovered from fatigue and shortness of breath.
In context ↗ - Heart symptoms & palpitations
It just added new symptoms; heart palpitations and shortness of breath.
In context ↗ - Loss of smell or taste
I got my taste and smell back within a month.
In context ↗ - Temperature regulation
First 5 days I had a fever and nerve pain (numbness and tingling).
In context ↗ - POTS & dysautonomia
I have this symptom too! Niacin helps. It’s called “vertigo”
In context ↗
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