ME/CFS
Severe → no benefit
ME/CFS severely ill and unable to work, still severely ill; supplements no help
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- years
- Last post
- May 2025
In their words
- Condition: ME/CFS
Been like this for years. ME/CFS.
In context ↗ - At worst: Severe
I’m sick. Severely.
In context ↗ - Now: No benefit
My body is falling apart. I suffer every day.
In context ↗
Read from 9 of their posts and comments; links to the 6 this page draws on
Summary
Tundra 44688 has had ME/CFS for years without an official diagnosis, and described being severely ill, unable to work, with a foggy brain, buzzing legs, pain and a heart on a minefield. A nutritionist and a pile of supplements did not help, and nicotine made them worse; melatonin only sometimes helped sleep. By their last post in May 2025 they were still severely ill and used ChatGPT as a daily coping tool.
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What they tried
Also tried
therapy· HelpedChatGPT as therapy· Helpednutritionist / dietician· No changelifestyle changes· No changea bunch of supplements· No changenicotine (vape, chewing tobacco)· Worsemelatonin· Not said
Their words about each treatment
- melatonin · Not said
I take melatonin periodically, although I can't say that I fall asleep quickly with it.
In context ↗ - nicotine (vape, chewing tobacco) · Worse
As for nicotine, of course it's bad, and it worsens my condition.
In context ↗ - nutritionist / dietician · No change
She analyzed my symptoms and blood tests, etc, and based on this made recommendations, but nothing helped.
In context ↗ - lifestyle changes · No change
I tried working with a nutritionist, making lifestyle changes, and taking a bunch of supplements. ... but nothing helped.
In context ↗ - therapy · Helped
I resort to therapy from time to time, because some help is better than nothing.
In context ↗ - ChatGPT as therapy · Helped
This is the only psychotherapy option that I want to return to.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | ME/CFS began years before 2025Been like this for years. ME/CFS. No official diagnosis on paperIn context ↗ | Not stated |
| 2025-02-17 | body falling apart, unable to workI am completely unable to work, my brain is constantly asleep, and my body suffers from chronic stress.In context ↗ | Severe |
| 2025-05-03 | still severely ill, using ChatGPT daily to copeI’m sick. Severely.In context ↗ | Severe |
Symptoms mentioned
Anxiety & low moodBrain fogHeart symptoms & palpitationsMuscle weaknessNeuropathy & tinglingPain & fibromyalgiaSleep problems
Their words about their symptoms
- Brain fog
the brain’s gone foggy
In context ↗ - Sleep problems
I also take a long time to fall asleep and I generally have trouble sleeping.
In context ↗ - Pain & fibromyalgia
And that gives my pain a form
In context ↗ - Neuropathy & tingling
legs feel like they’re buzzing
In context ↗ - Heart symptoms & palpitations
my heart’s on a minefield
In context ↗ - Anxiety & low mood
my thoughts were eating me up
In context ↗