Long COVID
Severe → relapsedIll 3 years before improving or writing
Bedbound with long COVID, improved then relapsed with palpitations and panic
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 3 years
- Last post
- Feb 2024
In their words
- Condition: Long COVID
Not a teen but got Covid December 2020…. Longhauled till October 2021..
In context ↗ - At worst: Severe
I went 6 months without leaving my house. And 3 months bedbound.
In context ↗ - Now: Relapsed
I believe I would be almost 90 or 100% by now.. But got the vax.. And I'm worse than ever...
In context ↗ - Began after: COVID
was infected 1st week of Dec 2020 in Phx, Az
Read from 31 of their posts and comments; links to the 14 this page draws on
Summary
Maple 65114 got COVID in December 2020 in Phoenix, Arizona, and was still ill over three years later. Flares brought severe anxiety, chest tightness, racing heart and dizziness, and she was diagnosed with POTS. A second Pfizer shot in December 2021 made her much worse and brought head pressure; she was bedbound by August 2022. She later got out of bed without medication, but palpitations and panic attacks continued.
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What they tried
Also tried
Their words about each treatment
- Lorazapam · Helped
I take a tiny piece (a crumb) and that kinda helps..
In context ↗ - Clindamycin · Worse
I was on a round of antibiotics (good ol Clindamycin) for a bad tooth.. and shortly after that, he'll broke loose
In context ↗ - clonazepam · Helped
So yesterday I took one and I do feel better..
In context ↗ - 2nd Phizer shot · Much worse
I received my 2nd Phizer shot on 12/5/21.. Now I'm worse than ever
In context ↗ - advil · Worse
I took advil yesterday and thought I was gonna die..
In context ↗ - baby aspirin · Helped
Well the baby asprin is making me feel better for now... don't know how long that will last..
In context ↗ - Liquid IV · Worse
when I drink liquid Iv. My palps get worse
In context ↗ - Nadolol · Worse
I tried Nadolol 1 year ago. Felt weird.
In context ↗ - Propranolol · Not said
I decided to try Propranolol 10mg. My heartrate is outta control.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| December 4th, 2020 | COVID-19 infectionTested positive on December 4th, 2020In context ↗ | Moderate |
| Mid January 2021 | racing heart and dizziness beganThen in Mid January I started having a racing heart, dizziness ect...In context ↗ | Mild |
| March 2021 | worst flare: severe anxiety, chest tightness, ER visitBut starting the beginning of March my symptoms were debilitating.In context ↗ | Moderate |
| May to September 2021 | felt good for several monthsI actually did good from May to SeptemberIn context ↗ | Mild |
| October 2021 | getting worse again; POTS diagnosisThen comes October to Now, I have just been getting worseIn context ↗ | Moderate |
| December 5th, 2021 | second Pfizer shot; heart rate 204, paramedics calledI received my 2nd Phizer shot on 12/5/21.. Now I'm worse than everIn context ↗ | Severe |
| January 14th, 2022 | worst she had been; no energy for the bare minimumI don't have the energy to do the bare minimum.In context ↗ | Severe |
| August 2022 | bedboundNow I’m Bedbound .. going on 9 months…In context ↗ | Severe |
| 2023 | climbed out of being housebound and bedboundI fought my way outta that without meds.In context ↗ | Moderate |
| February 17th, 2024 | still suffering; heart rate out of control, panic attacksMy heartrate is outta control. And I’m 3 years in this messIn context ↗ | Moderate |
Adverse events
- COVID vaccination as treatment“The vaccine made me worse!!!!” In context ↗ Made symptoms worse
- COVID vaccination as treatment“3 weeks later on Christmas Eve, the paramedics were at my house because my heart rate was 204” In context ↗ Heart rhythm problems
- Clindamycin“I was on a round of antibiotics (good ol Clindamycin) for a bad tooth.. and shortly after that, he'll broke loose” In context ↗ Made symptoms worse
- Ibuprofen (Advil, Nurofen, Motrin)“I took advil yesterday and thought I was gonna die.. I've been taking advil forever...” In context ↗ Side effects
- Salt, electrolytes and fluids“So I noticed that when I drink liquid Iv. My palps get worse...” In context ↗ Heart rhythm problems
- Nadolol (Corgard)“I tried Nadolol 1 year ago. Felt weird.” In context ↗ Side effects
Symptoms mentioned
Anxiety & low moodBrain fogBreathlessnessHeadaches & migraineHeart symptoms & palpitationsNeuropathy & tinglingPOTS & dysautonomiaPost-exertional malaise
Their words about their symptoms
- Anxiety & low mood
My Anxiety is soooooo bad.
In context ↗ - Heart symptoms & palpitations
my heart rate was 204
In context ↗ - POTS & dysautonomia
I finally got a POTS diagnosis
In context ↗ - Headaches & migraine
Head pressure was non stop for 3 months
In context ↗ - Brain fog
I still get brain fog every other week
In context ↗ - Post-exertional malaise
I think working my body triggered a relapse
In context ↗ - Neuropathy & tingling
now I'm getting pins and needles in my legs when I'm laying down
In context ↗ - Breathlessness
shortness of breath
In context ↗