Long COVID with pain, breathlessness and brain fog, somewhat better on low-dose naltrexone
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- Not stated
- Last post
- Oct 2025
In their words
- Condition: Long COVID
Speaking from my own experience with long covid coupled with a few other chronic illnesses
In context ↗ - At worst: Mild
I think between vyvanse and caffeine it has completely masked my true levels of exhaustion with CFS and so I kept pushing myself into hyper productive mode for way too long now
In context ↗ - Now: Somewhat better
Though not completely cured yet, I have made big improvements over the past few years
In context ↗ - Began after: COVID
Speaking from my own experience with long covid coupled with a few other chronic illnesses
In context ↗
Read from 8 of their posts and comments; links to the 6 this page draws on
Summary
Pond 40678 has CFS and long COVID with constant pain, exhaustion, breathlessness on exertion, brain fog, anxiety and POTS symptoms. In October 2023 a crash they linked to Vyvanse and caffeine felt worse than any before. Low-dose naltrexone 2.0 mg made a world of difference, easing breathlessness and need for salt; iron supplementation helped further, and low B vitamins were also noted. By late 2025 they reported big improvements but were not completely cured.
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What they tried
What they credit
Their words about each treatment
- vyvanse · Worse
I have long suspected it’s masking my underlying CFS symptoms ... in turn making me worse and worse
In context ↗ - caffeine · Worse
between vyvanse and caffeine it has completely masked my true levels of exhaustion with CFS
In context ↗ - nattokinase · Not said
I remember getting headaches from bolouke so I switched back to nattokinase.
In context ↗ - Hema-Plex · Helped
Iron has helped improve my anxiety, pots symptoms, shortness of breath, brain fog, etc.
In context ↗ - LDN · Helped a lot
LDN was the fix for me and I feel if I stop it will all come right back.
In context ↗
Approaches: Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | ME/CFS and long COVIDSpeaking from my own experience with long covid coupled with a few other chronic illnessesIn context ↗ | Not stated | |
| 2023-10-01 | crash worse than any before, on Vyvanse and caffeineI am having a crash today that feels worse than anything I've experienced beforeIn context ↗ | Moderate | |
| 2025-04-30 | less breathlessness and salt craving on LDNIt’s made the world of a difference bc I would get short of breath every time I exerted myselfIn context ↗ | Mild | Low-dose naltrexone |
| 2025-10-17 | big improvements from iron and B vitamins, not completely curedThough not completely cured yet, I have made big improvements over the past few yearsIn context ↗ | Mild |
Adverse events
- Nattokinase, Lumbrokinase“I remember getting headaches from bolouke so I switched back to nattokinase.” In context ↗ Side effects
- “It’s the only one that hasn’t bothered my tummy!” In context ↗ Gut side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I am having a crash today that feels worse than anything I’ve experienced before
In context ↗ - Breathlessness
I would get short of breath every time I exerted myself
In context ↗ - Anxiety & low mood
Iron has helped improve my anxiety, pots symptoms, shortness of breath, brain fog
In context ↗ - Pain & fibromyalgia
Constant pain and exhaustion
In context ↗
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