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ME/CFS Moderate → somewhat betterIll 7 months before improving or writingNeeds ongoing treatment

Barely leaving the house and not sleeping with ME/CFS, somewhat better with pacing

Condition
ME/CFS
At worst
Moderate (mostly housebound)
Ill before improving or writing
7 months
Last post
Jul 2026
In their words
  • Condition: ME/CFSI'm not diagnosed with me/cfs at this time but my fatigue runs a lot like it with PEM. In context ↗
  • At worst: ModerateI barely work (wfh) anymore because the cognitive fatigue is almost instant. I barely leave the house because I can't safely drive In context ↗
  • Now: Somewhat betterRight now I'm "mild" (this scale is stupidly skewed) and I'm terrified of getting worse. I already can't work, am barely safe to drive, and have trouble feeding myself. In context ↗
  • Began after: another virusI have had fatigue limiting my life since Jan, following a bad viral infection over Christmas. In context ↗
Read from 14 of their posts and comments; links to the 9 this page draws on

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Summary

They fell ill in January 2026 after a bad viral infection over Christmas, and by March they were barely working from home, barely leaving the house and not sleeping. Pacing and staying inside their energy limits slowly helped; by June they rated themselves at about 60% of their old capacity, working a couple of hours a day. By late July they still called themselves mildly affected, unable to work and barely safe to drive.

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What they tried

Their words about each treatment
  • pacing · HelpedBy pacing myself and picking which things I'm going to do, I'm slowly recovering. In context ↗
  • rest in bed · HelpedI spent most of a week in bed and slowly I recovered. In context ↗
  • otc stuff · No changeI've tried the otc stuff that I have access to to try and help my body relax into it but it didn't make a difference. In context ↗
  • weed · Not saidwill now periodically indulge because I need a break from my body In context ↗
  • iron pills · No changeThere is no combination of meds/vitamins/iron pills that can get me above that. In context ↗
  • habit tracker grid · Helpedit's helping me notice patterns of what drains me the worst In context ↗
  • Fitbit Air · HelpedI've had the band on my wrist for about 12 hours so far and the data is great. In context ↗
  • Lamotrigine · Not saidLamotrigine, low dose celexa, and Buspirone In context ↗

Approaches: Pacing · Radical rest

Their path

Very severeSevereModerateMildNear normalRecovered3 mo6 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
January 2026fatigue began after a bad viral infection over ChristmasI have had fatigue limiting my life since Jan, following a bad viral infection over Christmas. In context ↗Not stated
late February 2026crashed after doing paperwork while already tired; a week in bedI spent most of a week in bed and slowly I recovered. In context ↗Severe
2026-03-26barely working, barely leaving the house, unable to sleepI barely work (wfh) anymore because the cognitive fatigue is almost instant. I barely leave the house because I can't safely drive, socialize, and then drive home. In context ↗Moderate
2026-04-16stuck in bed after a hypomanic weekAfter a week of being fairly productive, today I am stuck in bed. ... I'm so tired that I can't even sit up and watch tv. In context ↗Severe
2026-06-08improved to about 60% of their capacity with pacing and restI'd say that I'm now running at about 60% of my full capacity. I can work a couple hours each day and can occasionally go out with friends. In context ↗MildPacing and the energy envelope
2026-07-28self-rated mild, cannot work, barely safe to drive, trouble feeding themselvesRight now I'm "mild" (this scale is stupidly skewed) and I'm terrified of getting worse. In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaisemy fatigue runs a lot like it with PEM In context ↗
  • Brain fogI barely work (wfh) anymore because the cognitive fatigue is almost instant In context ↗
  • Sleep problemsTuesday night I slept from 12pm-3am. That's it. I was awake. In context ↗
  • Pain & fibromyalgiaI'm not getting random nerve pain and muscle cramps anymore In context ↗
  • Muscle weaknessMy arms don't weigh a ton In context ↗
  • Anxiety & low moodmy system is so fried that I can't stop crying. Just total meltdown. In context ↗
  • POTS & dysautonomiaIt caught my heart racing when I had a shower last night. In context ↗

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