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Long COVID Mild → recoveredIll 15 months before improving or writingNeeds ongoing treatment

Head pressure and migraines with long COVID, now recovered with time and maintenance

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill before improving or writing
15 months
Last post
Jan 2024
In their words
  • Condition: Long COVIDmy LH daily symptoms pretty much completely abated by month 15. In context ↗
  • At worst: MildI was working thru a degree, and definitely couldn't produce quality work. In context ↗
  • Now: Recoveredright now, i'm like 100% recovered In context ↗
  • Began after: COVIDi first got sick in March 2020, and the allergies were very similar to my bout of covid
Read from 76 of their posts and comments; links to the 25 this page draws on

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Summary

Dew 74843 fell ill in March 2020 with presumed COVID-19, then spent months with constant head pressure and migraines, chest pain, tinnitus, gut trouble and tingling. Symptoms began to pare down around month seven, and by month 15 they considered themselves 100% recovered, putting progress down to time and good maintenance. Pfizer vaccinations set them back, with the third affecting them for over a month, and capsaicin still triggered symptoms.

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What they tried

Also tried

swallowing exercises· Helpedsleeping on the right side· Helpedtrigger-avoidance diet· Helpedfamotidine· No changeMt Sinai post-COVID clinic· No changeClaritin· WorsePfizer COVID vaccine· Worse
Their words about each treatment
  • peanuts · Helpedpeanuts being high in potassium, i bought a couple bottles of dry roasted, unsalted peanuts and i ate about a cup per day in fistfulls In context ↗
  • sun exposure · Helpedgot lots of sun In context ↗
  • hydration · Helpedtried to stay hydrated In context ↗
  • exercise · Helpedexercised when i could In context ↗
  • famotidine · No changei took famotidine for a couple months. i don't think it did anything, but why not? In context ↗
  • swallowing exercises · HelpedI used swallowing exercises to help put things back in order, and it worked. In context ↗
  • sleeping on the right side · Helpedlying on the right side was the best for me, and i did that for over 9 months. In context ↗
  • Claritin · Worsei tried the claritin to treat chest pain ... it released the pain from one place but it somehow moved to a different place, was worse, and caused an intense and frightening pressure headache In context ↗
  • Mt Sinai post-COVID clinic · No changeI went to Mt Sinai hospital post-covid clinic in NYC. I didn't get any medical help, really, but it was nice to be able to reach out for reassurance. In context ↗
  • Pfizer COVID vaccine · Worseeach successive vaccinaion messed me up for longer and harder than the previous one In context ↗
  • trigger-avoidance diet · Helpedfor the first year, sugar and caffeine were a no-no for me too. In context ↗

Approaches: POTS medication · Exercise and activity · Supplements

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
March 2020Acute COVID-19 illness, positive test at week 7i got sick in march 2020 In context ↗Mild
October 2020Symptoms began to pare downmy list started paring down after 7 months In context ↗Mild
February 2021Reported 99.9% betterI am on month 11. I am doing 99.9% better. In context ↗Near normal
August 2021Felt 100% normal most of the timei fibally felt 100% normal most of the time, after 15 months In context ↗Recovered
December 2021Crashed after Pfizer boosterbooster put me back on the haul mildly. In context ↗Mild
September 2023Reports being 100% recovered, with symptom triggers stillright now, i'm like 100% recovered, tho i'd say i was 98% for 1.5 years In context ↗Recovered

Adverse events

  • Loratadine (Claritin)“i tried the claritin to treat chest pain that was caused by something else, not seasonal allergies. it released the pain from one place but it somehow moved to a different place, was worse, and caused an intense and frightening pressure headache.” In context ↗ Side effects
  • Loratadine (Claritin)“yeeah, antihistamines made mine worse under certain cirvumstances. kinda made the swelling actively move, from constricting my stomach and chest to doing something that caused a headache.” In context ↗ Made symptoms worse
  • COVID vaccination as treatment“the 1st was fine, the 2nd i was sick for 48 hrs, and the 3rd sick again, but also chest pain that lasted for about 3 days.” In context ↗ Side effects
  • COVID vaccination as treatment“each successive vaccinaion messed me up for longer and harder than the previous one. the third, over a month.” In context ↗ Made symptoms worse
  • COVID vaccination as treatment“booster put me back on the haul mildly.” In context ↗ Made symptoms worse
  • COVID vaccination as treatment“crushed the day after the shot. felt better the day after that, till evenig when i noticed my chest hurt like someone punched me hard. still feels like that. also, shittinf constantly.” In context ↗ Side effects

Symptoms mentioned

Their words about their symptoms
  • Headaches & migrainevarious typea of migraine were my main symptom In context ↗
  • Tinnitusi have covid tinnitus in one ear In context ↗
  • Gut problemsi had weird gut and stool stuff too In context ↗
  • Heart symptoms & palpitationsChest pain was constant, and extended into arms. In context ↗
  • Neuropathy & tinglingTingly/buzzy fingers and feet. In context ↗
  • Temperature regulationwaking up and shivering violently and uncontrollably In context ↗
  • Anxiety & low moodAlso, that dread feeling. In context ↗
  • Brain fogthe tremors, inability to focus, weird cramps in yoyr legs, and that spacey feeling In context ↗
  • Mast cell (MCAS) & allergiesSeasonal allergies, tho this year that didn't happen. In context ↗
  • Pain & fibromyalgiayes, mine was too. it fluctuated to asymmetrical after months as it began to go away. In context ↗
  • Sleep problemsnot sleeping on my left side (or my back, due to insane apnea) In context ↗

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