Long COVID crashes and fuzzy memory, now somewhat better after moving and estrogen switch
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- multiple years
- Last post
- Aug 2025
In their words
- Condition: Long COVID
started hrt not long after what turned out to be a life-changing covid infection
In context ↗ - At worst: Severe
after multiple years of being incredibly isolated and incapacitated
In context ↗ - Now: Somewhat better
it was a fluke that my health shifted upon moving house ... having to move was dreadful but also turned out to be fucking miraculous
In context ↗ - Began after: COVID
what turned out to be a life-changing covid infection
In context ↗
Read from 5 of their posts and comments; links to the 5 this page draws on
Summary
A non-binary person on estrogen developed long COVID after a covid infection and spent multiple years isolated and incapacitated, with ME-like crashes, fuzzy memory and histamine issues. They said moving house shifted their health, blaming mould and dust in the old flat, and did much better after switching from estrogen tablets to patches plus spiro. Memory was still fuzzy and crashes continued.
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What they tried
What they credit
Also tried
Their words about each treatment
- choline/inositol · Not said
primarily by supplementing choline/inositol
In context ↗ - reading every day · Not said
doing my best to read every day
In context ↗ - yoga nidra · Not said
practice a little bit of yoga nidra here and there
In context ↗ - concerta · Helped
concerta has certainly helped with getting certain things done at my own pace and also with fatigue and brain fog
In context ↗ - reactine · Helped
i was on reactine daily for a year and recently noticed it wasnt working as well
In context ↗ - allegra · Helped
took an allegra today and am feeling significantly less stuffed up
In context ↗ - moving house · Helped a lot
having to move was dreadful but also turned out to be fucking miraculous
In context ↗ - HEPA filters · Not said
even with multiple HEPAs running 24/7
In context ↗ - becoming more attuned to all things histamine-related · Helped
becoming more attuned to all things histamine-related has been pretty useful
In context ↗ - cyproterone · Worse
put me on cyproterone (t blocker that can feel harsh and basically nukes t)
In context ↗ - estrodial tablets · Worse
naively taking it only the morning meant i was having hormonal crashes in the evening which i misconstrued as ME-like crashes
In context ↗ - estrogen patches · Helped a lot
the consistency of patches has been a lifesaver
In context ↗ - spiro · Not said
she put me on estrogen patches and spiro
In context ↗
Approaches: Diet · Mould avoidance · Sex hormones
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 3 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | long COVID after a covid infectionwhat turned out to be a life-changing covid infectionIn context ↗ | Not stated | |
| — | multiple years isolated and incapacitatedi still do in a lot of ways after multiple years of being incredibly isolated and incapacitatedIn context ↗ | Severe | |
| — | felt worse on estrogen tablets and cyproteronefor a while i was convinced estrogen was making me feel worse. turns out it was trueIn context ↗ | Not stated | |
| — | health shifted after moving houseit was a fluke that my health shifted upon moving houseIn context ↗ | Not stated | Relocation and environmental change |
| 2025-08-10 | doing much better on estrogen patches and spiroshe put me on estrogen patches and spiro and im doing much betterIn context ↗ | Mild | Estrogen (estradiol) |
Adverse events
- “the well-intentioned but ignorant cis dude doctor overseeing my hrt put me on cyproterone (t blocker that can feel harsh and basically nukes t)” In context ↗ Side effects
- Estrogen (estradiol)“naively taking it only the morning meant i was having hormonal crashes in the evening which i misconstrued as ME-like crashes” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Brain fog
my long term memory is still fuzzy though
In context ↗ - Post-exertional malaise
i misconstrued as ME-like crashes (which i also do have)
In context ↗ - Anxiety & low mood
i felt utterly hopeless most of last year.
In context ↗ - Mast cell (MCAS) & allergies
me too… it may be useful to switch up the H1s you take
In context ↗
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