ME/CFS
Severe → no benefitIll for 3 years
Bedridden with ME/CFS after SSRI trial, still bedridden, nothing worked
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 3 years
- Last post
- Jul 2026
In their words
- Condition: ME/CFS
severe chronic ME/CFS patient
In context ↗ - At worst: Severe
2 weeks later after the use and reaction I was bedridden with extreme new symptoms.
In context ↗ - Now: No benefit
Now 3 years later still the same with tons of symptoms and got even worse.
In context ↗
Summary
Tundra 35327 had ME/CFS that was mild enough to cycle 10 miles and shop until a two-week SSRI trial three years ago gave her serotonin syndrome symptoms and left her bedridden with exhaustion, neuro sensations and a chronic feeling of breathlessness. She says she tried all treatments and nothing worked. By mid-2026 she was still bedridden and worse, down to 85 lbs, with two months of unexplained daily diarrhea that tests found no cause for.
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What they tried
Also tried
Their words about each treatment
- antibiotic · Worse
When I tried 1 antibiotic pill long time ago I got excessive watery diarrhea so couldn't take those either in the past as treatment.
In context ↗ - SSRI · Much worse
I used it 2 weeks and gave me serotonin syndrome symptoms and I quitted after this 2 week use but then the damage was already done.
In context ↗
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| — | mild ME, still able to cycle and shopBefore the SSRI I was still functional, to put it in perspective: 1 day before starting the SSRI I cycled10 miles and went shoppingIn context ↗ | |
| 3 years ago | two-week SSRI trial gave serotonin syndrome symptoms and left them bedridden2 weeks later after the use and reaction I was bedridden with extreme new symptomsIn context ↗ | Antidepressants (unspecified) |
| 2026-07 | still bedridden and worse, 85 lbs, two months of severe daily diarrheaNow 3 years later still the same with tons of symptoms and got even worseIn context ↗ |
Adverse events
- Antibiotics (unspecified)“When I tried 1 antibiotic pill long time ago I got excessive watery diarrhea so couldn't take those either” In context ↗ Gut side effects
- Antidepressants (unspecified)“I used it 2 weeks and gave me serotonin syndrome symptoms and I quitted after this 2 week use” In context ↗ Side effects
- Antidepressants (unspecified)“My ME got from mild to extreme severe 3 years ago because of a short term SSRI try-out.” In context ↗ Made symptoms worse
- Antidepressants (unspecified)“the day after quitting I developed a chronic feeling of breathlesness” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Gut problems
severe daily morning loose stool and on top of that also random diarrhea attacks mainly in the evening and gut pains throughout the day
In context ↗ - Post-exertional malaise
bedbound with all these lyme and ME/CFS and PEM symptoms
In context ↗ - Pain & fibromyalgia
I was already severe ill with chronic pain
In context ↗ - Breathlessness
the day after quitting I developed a chronic feeling of breathlesness
In context ↗ - Neuropathy & tingling
I'm now 3 years bedridden, exhausted, neuro sensations
In context ↗