Long COVID
Mild → relapsedIll 5 months before improving or writing
Bedbound for two weeks with long COVID, improved then relapsed after reinfection
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 5 months
- Last post
- Jul 2022
In their words
- Condition: Long COVID
Long hauling since September
In context ↗ - At worst: Mild
I was about 70-80% recovered, just was trying to manage reoccurring headaches and fatigue.
In context ↗ - Now: Relapsed
Thinking I’m starting the lh again
In context ↗ - Began after: COVID
Long hauling since September.
In context ↗
Read from 27 of their posts and comments; links to the 17 this page draws on
Summary
A graduate student who caught COVID in September 2020 developed migraines, chest pain, tinnitus and inappropriate sinus tachycardia, and was bedbound for two weeks after her first Pfizer dose. She reached about 70-80% of normal by spring 2021, though tachycardia spikes returned that June. After a June 2022 reinfection her resting heart rate sat at 95-100 and she feared long COVID was starting again.
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What they tried
What they credit
Also tried
lots of water/liquid IV daily· Helpednon drowsy Dramamine· Helpedanti nausea accu pressure bands· HelpedBrandt Daroff exercise· HelpedAdvil· Helpedzquil or melatonin· Helpedneck heating pad· Helpedmigraine glasses (Axon Optics)· Helpedthe mini pill· No changeZyrtec· No changemetoprolol· Worsebreathwrk app· Not saidgentle yoga· Not saidcurable health app· Not saidfish oil· Not saidaspirin / baby aspirin· Not saidpaxlovid· Not said
Their words about each treatment
- lots of water/liquid IV daily · Helped
1. being extra hydrated-lots of water/liquid iv daily
In context ↗ - non drowsy Dramamine · Helped
I use the non drowsy Dramamine which is essentially concentrated ginger and was surprised to see it works
In context ↗ - anti nausea accu pressure bands · Helped
I sometimes use the anti nausea accu pressure bands ... also helps a little
In context ↗ - Brandt Daroff exercise · Helped
it began to help after a couple weeks of doing it
In context ↗ - the mini pill · No change
Currently on the mini pill to see if I can get some regularity and maybe suppress ovulation and help prevent relapse. It’s only been a month but no difference so far!
In context ↗ - Pfizer vaccine · Helped
The vaccine took me out for almost 2 weeks but after the effects from that worse off I’ve been even better than before
In context ↗ - breathwrk app · Not said
I do the app breathwrk- free version.
In context ↗ - gentle yoga · Not said
Gentle yoga if my vertigo can handle it
In context ↗ - curable health app · Not said
I also recently bought the app curable health.
In context ↗ - magnesium glycinate · Helped
I have had some luck with magnesium glycinate (400 mg). It definitely helped to reduce the frequency for me.
In context ↗ - fish oil · Not said
Took fish oil everyday and aspirin every other day for my heart.
In context ↗ - aspirin / baby aspirin · Not said
I take baby aspirin and Zyrtec but my guess is just time is helping
In context ↗ - Advil · Helped
I’ve had light headaches that go away with Advil(previously not a chance would work)
In context ↗ - vagus nerve stimulation · Helped
I’ve been doing as much as I can to stimulate the parasympathetic nervous system and it seems to help if I throw everything at it.
In context ↗ - zquil or melatonin · Helped
I basically had to knock myself out with zquil or lots of melatonin
In context ↗ - Zyrtec · No change
I take zyrtec everyday but haven't noticed a difference.
In context ↗ - metoprolol · Worse
I have metoprolol on deck in case but it does make me feel awful
In context ↗ - neck heating pad · Helped
I also bought one of those neck heating pads from Amazon after reading about it on a headache blog and that also reduces intensity.
In context ↗ - migraine glasses (Axon Optics) · Helped
I also saved up and sprung for migraine glasses (axon optics) and can say it also helps with triggers from photophobia.
In context ↗ - paxlovid · Not said
I took paxlovid on my most recent bout and am getting cardiac symptoms again 1 week out.
In context ↗
Approaches: Supplements · Vaccination · Vagus nerve stimulation
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| September 2020 | COVID-19, long haul beginsLong hauling since September.In context ↗ | |
| early 2021 | attacks becoming less frequent over timeEverything is slowly getting better for me and the attacks are less and less frequent.In context ↗ | |
| March 2021 | about 70-80% recovered, back on her feet for researchI was about 70-80% recovered, just was trying to manage reoccurring headaches and fatigue.In context ↗ | |
| March 2021 | bedbound after first Pfizer dose, one night in hospitalhave been bed bound since mid day Friday (6 days ago)In context ↗ | |
| March 23, 2021 | back to baseline after vaccine reaction, better than beforeI'm much better now, almost back to full baseline except for random spells of dizziness.In context ↗ | COVID vaccination as treatment |
| June 30, 2021 | tachycardia spikes returned after three months clearTachycardia spikes are back with a vengeance.In context ↗ | |
| July 19, 2021 | headaches and migraines better controlledI’m definitely not cured but I have quality of life back after controlling these better.In context ↗ | |
| June 2022 | COVID reinfection, resting heart rate 95-100Resting is 95-100 when I'm used to low 70's.In context ↗ | |
| July 14, 2022 | cardiac symptoms again a week after paxlovidI took paxlovid on my most recent bout and am getting cardiac symptoms again 1 week out.In context ↗ |
Adverse events
- COVID vaccination as treatment“I got the Pfizer vaccine last Thursday and have been bed bound since mid day Friday (6 days ago)” In context ↗ Made symptoms worse
- COVID vaccination as treatment“I got it March 11th and was really hit hard, bed bound for 2 weeks and in the hospital for a night” In context ↗ Hospitalisation
- COVID vaccination as treatment“About 10 episode of syncope/presyncope total.” In context ↗ Low blood pressure or fainting
- COVID vaccination as treatment“I had very high heart rate for about 5 days after my first dose” In context ↗ Heart rhythm problems
- Metoprolol (Lopressor, Toprol)“I have metoprolol on deck in case but it does make me feel awful” In context ↗ Side effects
- Paxlovid / nirmatrelvir“I took paxlovid on my most recent bout and am getting cardiac symptoms again 1 week out.” In context ↗ Made symptoms worse
Symptoms mentioned
Anxiety & low moodBrain fogBreathlessnessGut problemsHair lossHeadaches & migraineHeart symptoms & palpitationsMast cell (MCAS) & allergiesNeuropathy & tinglingPOTS & dysautonomiaSleep problemsTinnitus
Their words about their symptoms
- Headaches & migraine
I developed migraines so bad I was vomiting from pain and lost a loooot of weight early on.
In context ↗ - Heart symptoms & palpitations
my heart rate would shoot up to 130-160 at rest
In context ↗ - POTS & dysautonomia
I also have dizziness on and off.
In context ↗ - Brain fog
headache, nausea, vertigo, brain fog, short of breath, neuropathy, pins and needles
In context ↗ - Gut problems
headache, nausea, vertigo
In context ↗ - Neuropathy & tingling
neuropathy, pins and needles, muscle twitches
In context ↗ - Breathlessness
brain fog, short of breath
In context ↗ - Tinnitus
The high pitched EEEE comes and goes for me still
In context ↗ - Hair loss
my hair is falling out by the handful
In context ↗ - Sleep problems
which made sleep so hard
In context ↗ - Mast cell (MCAS) & allergies
reoccurring blotchy red rash on my knees and feet
In context ↗ - Anxiety & low mood
It was also painful each time and lots of anxiety came with it.
In context ↗
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