Long COVID with brain fog, POTS and days in bed, now a severe flare despite antihistamines
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill for
- 4 months
- Last post
- May 2022
In their words
- Condition: Long COVID
I have been LHing for about 4.5 months now, my initial infection was at the end of December 2021.
In context ↗ - At worst: Severe
a few weeks where I'll feel 80% back to myself, followed by two weeks where I can barely get out of bed
In context ↗ - Now: No benefit
I am currently cycling in a pretty severe flareup
In context ↗ - Began after: COVID
my initial infection was at the end of December 2021
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
After a COVID infection in December 2021, a Reddit user described 4.5 months of long COVID with anxiety, depression, brain fog, headaches, chest pressure, insomnia, nausea and POTS. Symptoms came in waves, with weeks at 80% of normal alternating with two weeks barely able to get out of bed. At the latest post they were in a severe flare with whole-body itchiness, crawling skin and pins and needles, and H1/H2 antihistamines brought little success.
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What they tried
Also tried
Their words about each treatment
- H1 histamine blockers · No change
I have tried both H1 and H2 histamine blockers, with little success.
In context ↗ - Vitamin D · Not said
Also taking Vitamin D, Magnesium, Vitamin B Complex, Ashwagandha, Curcumin, Omega 3, CoQ10.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| end of December 2021 | initial infection; long haul beganmy initial infection was at the end of December 2021In context ↗ | Not stated |
| during the 4.5 months | weeks feeling 80% back to self between crashesa few weeks where I’ll feel 80% back to myselfIn context ↗ | Mild |
| during the 4.5 months | two-week crash, barely out of bedfollowed by two weeks where I can barely get out of bedIn context ↗ | Severe |
| 2022-05-16 | severe flare-up with whole-body itchiness, crawling skin and pins and needlesI am currently cycling in a pretty severe flareupIn context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Anxiety & low mood
severe increases in anxiety, depression, dissociation
In context ↗ - Sleep problems
They are making sleeping very difficult.
In context ↗ - Neuropathy & tingling
‘crawling’ like sensations on my skin, and pins and needles
In context ↗