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Long COVID Moderate → much betterIll 3 years before improving or writingNeeds ongoing treatment

Long COVID with heart rate 180-205, now much better; metoprolol eased palpitations

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
3 years
Last post
Apr 2024
In their words
  • Condition: Long COVIDI’m about 2.5 years into Long Covid and was around 85-90% good. In context ↗
  • At worst: Moderatewasn’t able to walk correctly and would lean to the side when I would try to walk. In context ↗
  • Now: Much betterGoing on 3.25 years and I’m not fully recovered. I want to say I fluctuate between 70-85% recovery. In context ↗
  • Began after: COVIDI caught Covid in December 2020
Read from 38 of their posts and comments; links to the 19 this page draws on

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Summary

They caught COVID-19 in December 2020 with mild symptoms, then two weeks later their heart rate hit 180-205 bpm and they made repeated ER trips. Metoprolol 25 mg daily eased the palpitations, but an August 2021 relapse brought insomnia, brain fog and walking trouble; they could manage only 1/8-1/4 mile at a time, and tingling came later. After 3.25 years they rated themselves 70-85% recovered but had reported being unable to lift weights or run.

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Asking aboutValley 40721’s story

What they tried

What they credit

Their words about each treatment
  • Iv solution · HelpedI would have to be given an Iv solution to slow my heart rate In context ↗
  • metoprolol · HelpedI was prescribed metroprolo 25mg once a day, and it did make a difference In context ↗
  • two months rest · HelpedI had a relapse in my 8th month of post Covid and took 2 months to rest. I felt I recovered enough In context ↗
  • walking · HelpedI would walk 1/8 - 1/4 a mile by myself and slowly increased each distance ... I can walk a mile by myself In context ↗
  • weightlifting · Worserested to try weightlifting, it was a mistake that set me back for a week In context ↗
  • breath work · Helpeddoing breath work has helped me when I begin to experience an episode In context ↗
  • melatonin · No changeI tried melatonin and it did not work at all In context ↗
  • Benadryl · Helpedthe only thing that would help me sleep sometimes was Benadryl In context ↗

Approaches: Pacing

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
December 2020mild COVID-19 infectionI caught Covid in December 2020, and recovered after a few weeks with only mild symptoms. In context ↗Mild
late December 2020 - January 2021heart rate up to 180-205 bpm at rest, repeated ER visitsI would be sitting down and my heart rate would reach 180bpm. In context ↗Moderate
February to July 2021doing fine and slowly tapering off the beta blockerI did fine from February to July that I slowly began to get off metroprolo. In context ↗MildMetoprolol (Lopressor, Toprol)
August 2021relapse with high heart rate, insomnia, brain fog and muscle spasms; could barely walk straightI wasn’t able to walk correctly and would lean to the side when I would try to walk. In context ↗Moderate
October 2021after two months of rest, walking felt somewhat normal againI say around two months from my relapse/reinfection, I was able to feel somewhat normal when walking. In context ↗MildPacing and the energy envelope
November 2021tried weightlifting and was set back a weekI felt I recovered enough and rested to try weightlifting, it was a mistake that set me back for a week. In context ↗Mild
January 2023could walk a mile alone but still not lift weights or runNow, I can walk a mile by myself, but I still can’t lift weights or run. In context ↗Mild
August 2023COVID reinfection after being around 85-90% goodYesterday I received a positive result of having Covid In context ↗Mild
March 2024fluctuating 70-85% recovery, still cannot lift weights or runGoing on 3.25 years and I’m not fully recovered. I want to say I fluctuate between 70-85% recovery. In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Heart symptoms & palpitationsI still have heart palpitations 2+ years post Covid, but it’s not as severe. In context ↗
  • POTS & dysautonomiaI saw a neurologist recently and he told me it’s dysautonomia. In context ↗
  • Sleep problemsI have bouts of insomnia that come and go randomly. In context ↗
  • Brain fogI would try to read but couldn’t finish or I would reread sentences over to understand the content. In context ↗
  • Post-exertional malaiseOnce I try to enter the weight room and do a set of an exercise I begin to feel dizzy or my resting heart rate stays elevated for a week or so. In context ↗
  • Neuropathy & tinglingI still experience the tingling but not as often. In context ↗
  • Vision problemsI have had eye floaters for about two years, and it’s mainly in my left eye. In context ↗
  • Headaches & migraineat times I get up and feel restless or a headache In context ↗
  • BreathlessnessI would feel as if I was going to get a panic attack and get short of breath In context ↗
  • Loss of smell or tasteI would smell like burnt wood/smoke especially in the mornings when waking up. In context ↗
  • Muscle weaknessMy hand would cramp or feel weak In context ↗

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