A year of long COVID with panic attacks, improved with time and therapy, then relapsed
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 1 year
- Last post
- Sep 2023
In their words
- Condition: Long COVID
I tested positive in December 2020. I’ve been long hauling ever since.
In context ↗ - At worst: Mild
I had a slew of long haul symptoms for months.
In context ↗ - Now: Relapsed
I recovered. But then I got Covid again this year, and all the symptoms returned.
In context ↗ - Began after: COVID
I tested positive in December 2020. I’ve been long hauling ever since.
In context ↗
Read from 12 of their posts and comments; links to the 6 this page draws on
Summary
Dune 31239, 24, fell ill with COVID-19 on 24 December 2020 and long-hauled for about a year with extreme anxiety and panic attacks, heart palpitations, a high heart rate and lost, distorted smell and taste. Her Moderna doses flared her symptoms; the first took about a week to settle, the second was a worse reaction. She reached a new normal by December 2021, crediting time and trauma therapy. A 2023 reinfection brought every symptom back.
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What they tried
What they credit
Also tried
Their words about each treatment
- SSRIs · Worse
Before, I onboarded SSRIs pretty well....but after covid SSRIs seem to be agitating my post symptoms and making the anxiety unbearable.
In context ↗ - moderna · Worse
It flared up my anxiety, heart palpitations, and SOB. My smell and taste grew worse. Especially taste.
In context ↗ - Advil · Not said
About to take some Advil for it.
In context ↗ - trauma therapy · Helped
I had to go to trauma therapy and that took care of the mental issues
In context ↗ - time · Helped a lot
the only thing that helped was time and therapy
In context ↗
Approaches: Trauma & somatic work
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 24 December 2020 | COVID-19 infection, start of long haulGot infected December 24, 2020. I’ve had a slew of health issues since.In context ↗ | Mild | |
| April 2021 | extreme anxiety, panic attacks and worsening OCD in month 3 of long COVIDI started having panic attacks that worsened in intensity since February.In context ↗ | Mild | |
| May 2021 | first Moderna dose flared anxiety, palpitations and breathlessness; smell and taste worseIt flared up my anxiety, heart palpitations, and SOB. My smell and taste grew worse.In context ↗ | Mild | |
| 2 June 2021 | second Moderna dose; fever, swollen lymph nodes, joint pain, in bed a dayI haven’t left the bed all day really. Still tired af.In context ↗ | Mild | |
| December 2021 | back to a new normal after months of long-haul symptomsI had a slew of long haul symptoms for months. I’m just now feeling back to a new normal.In context ↗ | Near normal | Time and spontaneous remission |
| 2023 | COVID reinfection; all long-haul symptoms returned, infection went into her lungsI recovered. But then I got Covid again this year, and all the symptoms returned.In context ↗ | Mild | |
| 21 September 2023 | pursuing POTS diagnosis and GI workup after reinfectionI’m pursuing a POTS diagnosis and I’m going to do a through work up with GI doctor.In context ↗ | Mild |
Adverse events
- Antidepressants (unspecified)“after covid SSRIs seem to be agitating my post symptoms and making the anxiety unbearable” In context ↗ Mood or psychiatric effects
- COVID vaccination as treatment“Last night was rough. I hardly slept. My chest is still tight and my heart rate is flared. I feel like I have a mild flu.” In context ↗ Side effects
- COVID vaccination as treatment“It flared up my anxiety, heart palpitations, and SOB. My smell and taste grew worse.” In context ↗ Made symptoms worse
- COVID vaccination as treatment“I haven’t left the bed all day really. Still tired af. The only thing that concerns me is the joint pain from my neck right down to my toes.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Anxiety & low mood
after covid, it’s been extreme. I started having panic attacks
In context ↗ - Heart symptoms & palpitations
Still have heart palpitations, high heart rate
In context ↗ - Loss of smell or taste
The only remaining long haul symptom is smell and taste are off.
In context ↗ - Breathlessness
It flared up my anxiety, heart palpitations, and SOB.
In context ↗ - Pain & fibromyalgia
My joints hurt in my legs, hips, and arms.
In context ↗
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