ME/CFS
Moderate → no benefitNeeds ongoing treatment
Bedridden by the slightest activity with ME/CFS, still no improvement
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Jul 2026
In their words
- Condition: ME/CFS
I have MCAS, MCS, and ME/CFS
In context ↗ - At worst: Moderate
even the slightest of physical activity has me weak and bedridden
In context ↗ - Now: No benefit
My sensitivities have only become worse in 2026
In context ↗ - Began after: mould or toxic exposure
POTs ME/CFS like symptoms only triggered in 2026 after more mold exposure.
In context ↗
Read from 9 of their posts and comments; links to the 7 this page draws on
Summary
Otter 18357 dates their ME/CFS-like symptoms to 2026 and more mould exposure, after a childhood virus and a later fever brought on MCAS, with MCS linked to genetics. The slightest activity leaves them weak and bedridden, with sore throat, breathlessness, palpitations, low blood pressure, and chemical and light sensitivity. Antihistamines and montelukast ease the mast-cell symptoms, and removing dusty decorations from their room eased a severe flare.
Ask Miruvor AI
What they tried
Also tried
antihistamine (Loratadine)· Helpedmontelukast· Helpedremoving dusty decorations· Helpedb12· Not said
Their words about each treatment
- antihistamine (Loratadine) · Helped
Antihistamines help me and if i stop taking I have horrible reactions
In context ↗ - montelukast · Helped
It was prescribed and it helps reduce my symptoms ans so do antihistamines.
In context ↗ - b12 · Not said
I'm taking b12 as well at the moment.
In context ↗ - removing dusty decorations · Helped
as soon as I removed two or three decorations I got better, including a foam fridge magnet
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| 2026 | ME/CFS-like symptoms began after more mould exposurePOTs ME/CFS like symptoms only triggered in 2026 after more mold exposure.In context ↗ | Not stated |
| 2026-05-22 | flare with dry cough, sore throat and palpitations after cleaning dusty roomshours later when i entered my bedroom I developed a dry cough and a sore throatIn context ↗ | Not stated |
| 2026-06-15 | sensitivities worsening, bedridden after the slightest activityeven the slightest of physical activity has me weak and bedriddenIn context ↗ | Severe |
| 2026-07-16 | agonising sore throat, breathlessness and fast heart rate after a lot of cleaningI did a lot of cleaning a few days ago, and now I have a sore throat that’s getting progressively worse.In context ↗ | Not stated |
| 2026-07-17 | felt better after washing or removing dusty decorationsas soon as I removed two or three decorations I got betterIn context ↗ | Not stated |
| 2026-07-17 | only washed fake flowers remain in the roomnow I only have fake flowers in the room that were washedIn context ↗ | Not stated |
Adverse events
- Loratadine (Claritin)“antihistamines already make my dry eye feel worse ... they are also eye drying and make you sleepy and dizzy” Side effects
Symptoms mentioned
Anxiety & low moodBrain fogBreathlessnessFlu-like symptomsHeart symptoms & palpitationsLight & noise sensitivityMast cell (MCAS) & allergiesMuscle weaknessPOTS & dysautonomiaPost-exertional malaise
Their words about their symptoms
- Post-exertional malaise
even the slightest of physical activity has me weak and bedridden
In context ↗ - Brain fog
I also feel one sided vertigo, brain fog and throat tightness
In context ↗ - POTS & dysautonomia
low bp shortness of breath and confusion when near an "allergen" and rabid heartrate
In context ↗ - Mast cell (MCAS) & allergies
I have MCAS, MCS, and ME/CFS
In context ↗ - Light & noise sensitivity
I even get light sensitivity from all of this, not just from screens
In context ↗ - Breathlessness
I'm experiencing shortness of breath, low blood pressure, wheezing, a fast heart rate, and weakness.
In context ↗ - Heart symptoms & palpitations
have palpitations that never go away
In context ↗ - Muscle weakness
the slightest of physical activity has me weak and bedridden
In context ↗ - Anxiety & low mood
This disease has ruined my mental health.
In context ↗ - Flu-like symptoms
I have chronic post nasel drip and only get respiratory reactions, sore throat
In context ↗