Long COVID with tachycardia and breathing trouble, much better on ivabradine and Singulair
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- 3 years
- Last post
- Dec 2022
In their words
- Condition: Long COVID
I’m a first wave long hauler (March 2020)
In context ↗ - Now: Much better
Still sick though but definitely doing substantially better than a year ago.
In context ↗ - Began after: COVID
I’m a first wave long hauler (March 2020)
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
Ill with long COVID since March 2020, they said in December 2022 they were doing substantially better than a year earlier. Ivabradine stopped the tachycardia and Singulair the breathing difficulty, and supplements raised a low ferritin. They were relatively symptom free, working from home and doing light exercise, but still fatigued with weekly crash naps.
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What they tried
Also tried
Their words about each treatment
- ivabradine · Helped
No more tachycardia (thanks to ivabradine)
In context ↗ - singulair · Helped
no more difficulty breathing (thanks to singulair)
In context ↗ - supplements (iron) · Helped
I did have low ferretin (12) and have raised it to 45 with supplements which definitely helped.
In context ↗ - B-complex · Not said
B12 was normal but I’m taking a B-complex anyways.
In context ↗ - anti-histamines · No change
Unfortunately anti-histamines haven’t worked for me (I have tried basically all of them, at various doses)
In context ↗ - MCAS supplements · No change
nor have any of the MCAS supplements
In context ↗
Approaches: POTS medication · Antihistamines & MCAS · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2.8 years after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| March 2020 | Long COVID onset, first waveI’m a first wave long hauler (March 2020)In context ↗ | Not stated | |
| December 2021 | substantially worse a year before December 2022Still sick though but definitely doing substantially better than a year ago.In context ↗ | Not stated | |
| 2022-12-03 | relatively symptom free, back to home working and light exerciseI’m relatively symptom free these days. No more tachycardia (thanks to ivabradine), no more difficulty breathing (thanks to singulair).In context ↗ | Mild | Ivabradine |
| 2022-12-05 | still symptomatic but substantially better | Mild |
Symptoms mentioned
Their words about their symptoms
- Heart symptoms & palpitations
No more tachycardia (thanks to ivabradine)
In context ↗ - Breathlessness
no more difficulty breathing (thanks to singulair)
In context ↗ - Sleep problems
at least once a week I abruptly crash nap
In context ↗ - Flu-like symptoms
have resolved (fever, flu-feelings, GI issues)
In context ↗
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