Long COVID
Severe → much betterNeeds ongoing treatment
Bedbound then housebound with long COVID, now much better after hyperbaric oxygen and rest
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Dec 2025
In their words
- Condition: Long COVID
I have been dealing with this for almost three years.
In context ↗ - At worst: Severe
I was pretty much bedbound for a year and then housebound for another year.
In context ↗ - Now: Much better
I have been trying this since I just got Covid again, after long hauling for three years and starting to feel at about 85 percent normal.
In context ↗ - Began after: COVID
I first got sick with Covid on March 28 of this year.
Read from 61 of their posts and comments; links to the 30 this page draws on
Summary
A US social media manager fell ill with COVID in March 2022 and was bedbound about a year, then housebound another. They credit roughly 90 hyperbaric oxygen sessions with clearing their POTS and nerve pain, while brain fog, PEM and fatigue remained; radical rest and time helped too. By 2025 they were much better but still had setbacks after overexertion and needed rest, and HBOT had not cured their long COVID. Their first ten sessions cost $2,500.
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What they tried
What they credit
hyperbaric oxygen therapy (HBOT)· Helped a lot · mainPaxlovid· Helped a lotantihistamines· Helpedelectrolyte drinks and salt· Helpedmagnesium (Neuro-Mag and other magnesium supplements)· HelpedSam-E· Helpedlow histamine diet· Helpedcolostrum· Helpedpacing· Helpedradical rest· Helpedsun exposure· Helpedtime· Helped
Also tried
Lion's Mane· Helpedgentle yoga· Helpednicotine patches· Helpedmindset work (deep breathing, positive self-talk)· Helpedmelatonin· Worselumbrokinase· Not saidquercetin· Not saidNAC· Not saidolive leaf extract· Not saidcalcium· Not saidNattoSerra (Doctor's Best)· Not saidNattoSerra (Doctor's Best)· Not saidred light therapy panel· Not saidinfrared sauna· Not saiddaily walking and gradual return to exercise· Not saidprogesterone· Not saidpregnenolone· Not said
Their words about each treatment
- antihistamines · Helped
The antihistamines immediately made me able to sit up and function a little better
In context ↗ - lumbrokinase · Not said
I started taking antihistamines, lumbrokinase, quercetin, NAC, lion's mane, and an olive leaf extract
In context ↗ - Lion's Mane · Helped
Lion's Mane helps my brain fog tremendously.
In context ↗ - hyperbaric oxygen therapy (HBOT) · Helped a lot
I did HBOT and attribute a lot of my healing to that, although it was NOT 100 percent.
In context ↗ - electrolyte drinks and salt · Helped
drinking electrolyte drinks and taking salt helped a little
In context ↗ - magnesium (Neuro-Mag and other magnesium supplements) · Helped
I started this and my brain fog seems to be much better
In context ↗ - calcium · Not said
I also take a couple of different magnesium supplements, and calcium.
In context ↗ - Sam-E · Helped
I started taking Sam-E which is a natural antidepressant and I think it has helped me.
In context ↗ - low histamine diet · Helped
Low histamine did help but I keep reading it is not healthy to do it for more than a few weeks
In context ↗ - NattoSerra (Doctor's Best) · Not said
I liked taking NattoSerra, a combo, by Doctor's Best.
In context ↗ - colostrum · Helped
I just started taking colostrum and suddenly have had many fewer crashes.
In context ↗ - gentle yoga · Helped
when I have severe body aches, gentle yoga really helps
In context ↗ - melatonin · Worse
I have had that effect taking 5 mg of melatonin. I cannot take more than 3 or I feel like a zombie.
In context ↗ - red light therapy panel · Not said
I use a red light therapy panel, which I have read can help with nerve pain.
In context ↗ - infrared sauna · Not said
I have done HBOT, allergy medication, red light therapy, infrared sauna, many supplements, etc.
In context ↗ - nicotine patches · Helped
I just went back on a 7 mg a day patch ... I immediately have more energy after a couple days
In context ↗ - pacing · Helped
I realize that I really need to pace myself, still.
In context ↗ - radical rest · Helped
I have been a proponent of radical rest
In context ↗ - mindset work (deep breathing, positive self-talk) · Helped
Taking deep breaths. Positive self-talk. ... I do think it helps.
In context ↗ - daily walking and gradual return to exercise · Not said
I do walk every weekday after the treatment for 40ish minutes
In context ↗ - Paxlovid · Helped a lot
I just had what I think is my second infection and it helped tremendously.
In context ↗ - sun exposure · Helped
I would not call it a cure all, but it seems to help me.
In context ↗ - progesterone · Not said
I take it when I take progesterone
In context ↗ - pregnenolone · Not said
I swear it makes me so sleepy, I cannot stay awake on it.
In context ↗ - time · Helped
I honestly think HBOT and time more than anything
In context ↗
Approaches: H1 antihistamines · Hyperbaric & oxygen · POTS medication · Antivirals · Diet · Pacing · Radical rest · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| March 2022 | COVID infection, then no energy to get out of bedI first got sick with Covid on March 28 of this year. ... I still had no energy to get out of bedIn context ↗ | Severe | |
| April 2022 | bedridden; could not stand two minutes, dizzy, nerve painI could not stand up for more than two minutes without dizzyness and a sweeping shiver overtaking meIn context ↗ | Severe | |
| April 2022 | antihistamines let them sit up and function a littleThe antihistamines immediately made me able to sit up and function a little betterIn context ↗ | Moderate | H1 antihistamines (unspecified) |
| May 2022 | felt almost healed by ninth HBOT sessionI actually felt almost healed by my ninth sessionIn context ↗ | Mild | Hyperbaric oxygen (HBOT) |
| May 2022 | crashed after 12-hour film shoot daysRight now, I am back in bed again. ... I think I was back to just 50% functioningIn context ↗ | Moderate | |
| August 2022 | 20 more HBOT sessions helped, then summer activitiesThe 20 sessions helped, but then I jumped back into all kinds of summer activitiesIn context ↗ | Mild | Hyperbaric oxygen (HBOT) |
| October 2022 | tired all the time again by the fallBy the fall, I was tired all the time againIn context ↗ | Moderate | |
| November 2022 | 60 back-to-back HBOT sessions; POTS and nerve pain gone, working at deskAfter the 60 treatments I feel 96% betterIn context ↗ | Mild | Hyperbaric oxygen (HBOT) |
| April 2023 | up and out of bed three or four days a weekToday, I pretty much feel okay. ... I was able to stay up and out of bed all day maybe three or four days of the weekIn context ↗ | Moderate | Time and spontaneous remission |
| Summer 2023 | bedbound 1-2 weeks after parties and a weddingI had two parties and traveled to a wedding. But then I was in bed and housebound for 1-2 weeks each timeIn context ↗ | Moderate | |
| October 2023 | can putz around the house without being laid outNow, I can putz around the house, lay down if I need to, etc., but I am not laid out with exhaustion and body aches just from existingIn context ↗ | Mild | Pacing and the energy envelope |
| September 2024 | can walk and go on vacation; still rests a lotI can do things like walk and even go on vacation, but I still have to rest a lotIn context ↗ | Mild | |
| August 2025 | about 85 percent of normalstarting to feel at about 85 percent normalIn context ↗ | Mild | |
| September 2025 | setbacks after July 2025 COVID reinfectionI just had Covid again in July, so am having some setbacksIn context ↗ | Mild | |
| December 2025 | daily morning sunlight; still recoveringI have started going out in the morning as early as possible ... staying outside for one or more hours a day as my energy and the weather allowsIn context ↗ | Mild | Vitamin D and sun exposure |
Adverse events
- Melatonin“I have had that effect taking 5 mg of melatonin. I cannot take more than 3 or I feel like a zombie.” In context ↗ Side effects
- Hyperbaric oxygen (HBOT)“I never had any side effects except vision changes, which went away. That can happen if you do more than 20” In context ↗ Side effects
- Hyperbaric oxygen (HBOT)“I definitely had tachycardia during the first few sessions.” In context ↗ Heart rhythm problems
- Pregnenolone“I swear it makes me so sleepy, I cannot stay awake on it.” In context ↗ Side effects
Symptoms mentioned
Anxiety & low moodBrain fogFlu-like symptomsHeadaches & migraineHeart symptoms & palpitationsNeuropathy & tinglingPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseSleep problemsVision problems
Their words about their symptoms
- Post-exertional malaise
I still get PEM and brain fog
In context ↗ - Brain fog
I still feel brain foggy, but it is something I am willing to accept
In context ↗ - POTS & dysautonomia
It is the only LC symptom that 100 percent went away and never came back
In context ↗ - Sleep problems
I was not sleeping through the night
In context ↗ - Pain & fibromyalgia
my body hurts much less, or not at all
In context ↗ - Headaches & migraine
I have always had migraines, but after getting Covid they seemed to be more frequent
In context ↗ - Neuropathy & tingling
I had on-and-off pins and needles ranging to actual pain in my extremities
In context ↗ - Heart symptoms & palpitations
My heart felt crazy when I tried to sit up
In context ↗ - Flu-like symptoms
Even doing minor chores at home triggers fatigue, flu-like symptoms, and a need to lie down
In context ↗ - Anxiety & low mood
I know what it is like to just be in pain and want to give up
In context ↗ - Vision problems
I never had any side effects except vision changes, which went away
In context ↗
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