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Long COVID Mild → no benefitIll for 8 months

Long COVID with exhaustion and memory loss, still ill despite iron infusions

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill for
8 months
Last post
Nov 2021
In their words
  • Condition: Long COVIDLong covid, I need advices. In context ↗
  • At worst: MildI still had memory loss problems, pain in my back and was so tired. In context ↗
  • Now: No benefitwhen I stop prednisone brain fog & the pain in my back starts again In context ↗
  • Began after: COVIDI had covid in march/april.
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Hawk 41669 developed long COVID after a mild COVID-19 infection in March 2021, with months of exhaustion, memory loss, back pain and hallucinations. Blood tests found very low haemoglobin and two iron infusions did not help. In August she was diagnosed with pericarditis after chest pain; prednisone eased brain fog and back pain, which returned each time she stopped it. She was still ill in November 2021.

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What they tried

Their words about each treatment
  • iron infusions · Helpedgot my 2 iron infusions and then thought that it would go away. NOPE. I didn't feel breathless like before but I still had memory loss problems In context ↗
  • prednisone · HelpedI've been on & off prednisone and right now I ended the cure. ... when I stop prednisone brain fog & the pain in my back starts again In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset3 mo6 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
March/April 2021COVID-19 infection, just a feverI had covid in march/april. Very mild symptoms, it was just a fever. In context ↗Mild
June 2021very low haemoglobin, two iron infusions, memory loss, back pain, hallucinationsI still had memory loss problems, pain in my back and was so tired. I also started having small hallucinations. In context ↗Mild
August 2021chest pain, pericarditis diagnosis, prednisone started and brain fog and back pain easedI've been on & off prednisone and right now I ended the cure. In context ↗MildCorticosteroid pulses
November 2021off prednisone, brain fog, memory loss and back pain returnI start to have memory loss again, can't find the word & more. In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Brain fogwhen I stop prednisone brain fog & the pain in my back starts again In context ↗
  • Pain & fibromyalgiathe pain in my back starts again In context ↗
  • Heart symptoms & palpitationsAfter having chest pain In context ↗
  • BreathlessnessI didn't feel breathless like before In context ↗
  • Temperature regulationVery mild symptoms, it was just a fever In context ↗

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