ME/CFS
Outcome unclear
Mild to moderate ME/CFS with crashes, nausea and brain fog, after pacing and moving
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Aug 2018
In their words
- Condition: ME/CFS
I am fortunate to only have ME and not fibromyalgia
In context ↗ - At worst: Mild
even my ME is at the mild to moderate end
In context ↗
Summary
A Reddit user with ME at the mild to moderate end described crashing when they did too much, chronic nausea, brain fog, and constant cough and congestion causing oxygen limitation. They took classes, finding campus quieter in summer easier and spreading classes over fewer days to save energy. Moving back to New Zealand from the UK brought a large improvement in cough, congestion and energy.
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What they tried
Also tried
Their words about each treatment
- moved back to New Zealand from the UK · Helped a lot
I noticed a huge improvement in my cough and congestion (and thus in my energy levels, as constant congestion means constant oxygen limitation) when I moved back to New Zealand from the UK.
In context ↗ - classes only a couple of days a week · Helped
I found I spent a lot of energy just getting dressed and travelling in and back, so for me it was better to have classes only a couple of days a week, even if it meant those days were fuller.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were | After |
|---|---|---|---|
| — | moved back to New Zealand from the UK; cough and congestion improved and energy roseI noticed a huge improvement in my cough and congestion (and thus in my energy levels, as constant congestion means constant oxygen limitation) when I moved back to New Zealand from the UK.In context ↗ | Not stated | Relocation and environmental change |
| 2018-08-22 | studying, managing energy around classes and crasheseven my ME is at the mild to moderate end. But one of my constant struggles is finding the right balance of engagement - too much and I just can't manage it or I crashIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
too much and I just can't manage it or I crash
In context ↗ - Brain fog
days that my brain fog makes reading a challenge
In context ↗ - Gut problems
Netflix is honestly the best distraction for chronic nausea!
In context ↗ - Breathlessness
I noticed a huge improvement in my cough and congestion
In context ↗ - Vision problems
if I am feeling up to it, and my eyes are willing to focus
In context ↗