Long COVID
No benefitNeeds ongoing treatment
Bedbound with long COVID, ketotifen and panic treatment, no overall benefit
- Condition
- Long COVID
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Oct 2026
In their words
- Now: No benefit
Unfortunately those early gains were eroded by a continued decline.
In context ↗ - Began after: a vaccination
The vaccine ruined me and gave me problems very similar to long Covid.
Read from 34 of their posts and comments; links to the 19 this page draws on
Summary
Bluebell 53919 dates their illness to a COVID vaccination and describes declining from working, walking and showering to a severe, bedbound vaccine injury with long-COVID-like problems, MCAS and daily panic attacks. Ketotifen cleared about 70% of brain fog and improved sleep in four days; lorazepam, pregabalin and taurine eased panic. MRI contrast made them more severe, and the early gains were later eroded by continued decline.
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What they tried
Also tried
Ketotifen· Helped a lotQuercetin· Helpedcurcumin· HelpedLoratadine· Helpedlorazapam· Helped · wore offb12 injections· Helpedmeditation· Helped · wore offmorning sun· Helped · wore offprolo· No changeprp· No changeSSRIs· No changebeta blockers (propranolol)· No changeTaurine· No changepregabalin· No changeguanfacine· No changeNAC· No changemidodrine· Worsemeat-based (carnivore) diet· Not saidMCAS diet· Not said
Their words about each treatment
- Quercetin · Helped
Quercetin is one where I felt noticeably better.
In context ↗ - curcumin · Helped
The other thing I know works is curcumin. I used to take it before even getting ill and could feel it working on my hands
In context ↗ - prolo · No change
I tried to fix the instability via prolo and prp in the cervical facets. However that mostly works if it’s a ligament issue
In context ↗ - Ketotifen · Helped a lot
Ketotifen cleared 70% of my brain fog in 4 days.
In context ↗ - Loratadine · Helped
Ketotifen and loratadine together cleared it for me
In context ↗ - midodrine · Worse
I got the chills from one 2.5mg tablet which I think is a low dose.
In context ↗ - lorazapam · Helped
at 1mg was able to reduce the severity of the nighttime panic to a bearable level. Though this is already waning.
In context ↗ - SSRIs · No change
SSRIs, beta blockers don’t have any effect
In context ↗ - Taurine · No change
I’ve tried many other things. Only benzodiazepines ever did anything.
In context ↗ - guanfacine · No change
I tried but no effect on me.
In context ↗ - meat-based (carnivore) diet · Not said
So I never really got to test the benefits (or not). Possibly my joints were less sore.
In context ↗ - NAC · No change
I take NAC which can boost glutathione. Have never felt a difference
In context ↗ - b12 injections · Helped
Then a year later I have tried a week of daily injections and got benefits.
In context ↗ - meditation · Helped
I had some improvements from sitting in the morning sun and doing meditation.
In context ↗ - MCAS diet · Not said
On mcas meds and diet etc, maybe it prevents some of them but it's not enough.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 3.2 years after onset: the story doesn’t say how ill they were before that. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2024-12-17 | brain fog cleared by about 70% within four daysKetotifen cleared 70% of my brain fog in 4 days.In context ↗ | Very severe | Ketotifen (Zaditen) |
| 2025-02-17 | panic attacks eased in frequency and severitythere has been an improvement in the panic attacks. In frequency, baseline and attack severity I think I’ve gone from 9/10 to 6 or 7/10.In context ↗ | Very severe | |
| 2026-10-28 | early gains from morning sun and meditation eroded by continued decline; still bedboundUnfortunately those early gains were eroded by a continued decline.In context ↗ | Very severe |
Adverse events
- Midodrine“it gave me chills that basically only stopped when the drug wore off. Happened the 2-3 times I tried it.” In context ↗ Side effects
- “Yes avoid the contrast. It made me more severe and I never recovered.” In context ↗ Made symptoms worse
Symptoms mentioned
Brain fogGut problemsHeadaches & migraineHeart symptoms & palpitationsMast cell (MCAS) & allergiesPOTS & dysautonomiaPain & fibromyalgiaSleep problems
Their words about their symptoms
- Brain fog
Ketotifen cleared 70% of my brain fog in 4 days.
In context ↗ - Sleep problems
ketotifen got rid of head pressure, brain fog, poor sleep within 4 days, probs by 70%
In context ↗ - Headaches & migraine
ketotifen got rid of head pressure
In context ↗ - Mast cell (MCAS) & allergies
For me a lot of the brain fog was MCAS.
In context ↗ - POTS & dysautonomia
tachycardia, MCAS, panic, POTS, central apnea, gastroparesis, insomnia, joint inflammation
In context ↗ - Pain & fibromyalgia
The cartilage loss has made all my joints (and ears) burn and loosen.
In context ↗