Bedridden for months with long COVID, now much better with pacing and time
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 1 year
- Last post
- Jun 2025
In their words
- Condition: Long COVID
Then i got long covid MECFS
In context ↗ - At worst: Severe
I was severe for a long time and am now slowly nearing moderate.
In context ↗ - Now: Much better
I am partially recovered, probably 65%. Which makes a big difference from when I was severe.
In context ↗ - Began after: COVID
I’m 2022 I got Covid.
Read from 23 of their posts and comments; links to the 18 this page draws on
Summary
Dove 24700 fell ill with COVID-19 in 2022, aged 21, shortly after a mild TBI; her neurological symptoms returned multiplied. She was bedridden for months, with brain fog, gut problems, neuralgia, POTS and light sensitivity. From roughly a year in she improved slowly, crediting time, pacing, hydration, supplements and diet. By mid-2025 she rated herself 65% recovered, still limited by dysautonomia.
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What they tried
What they credit
Also tried
Their words about each treatment
- ice cold water in tiny sips · Helped
For some reason cold water in tiny sips is what helps me specifically.
In context ↗ - supplements to support digestion and liver function · Helped a lot
He gave me supplements to support digestion and liver function ... It saved me.
In context ↗ - herbal tonic · Helped a lot
his own herbal tonic to relieve bloating ... It saved me.
In context ↗ - probiotics · Helped a lot
Then probiotics and continued digestive support ... It saved me.
In context ↗ - vestibular PT exercises · Helped
I also practice some of my vestibular PT exercises from back when I had that TBI and I think that helps quite a bit.
In context ↗ - hydration and electrolytes · Not said
I’ve been really focusing on hydration ... Lots of electrolytes.
- magnesium · Not said
supplements like magnesium and Vitimin D
In context ↗ - anti inflammatory diet · Not said
as well as an anti inflammatory diet
In context ↗ - ginger tumeric tea · Not said
I also practice herbalism, with lots of ginger tumeric tea.
In context ↗ - pacing · Helped
very slowly pacing myself and seeing what tiny things I could do without crashing too badly
In context ↗ - pink tinted glasses · Helped
I got those pink tinted glasses that helped a bit
In context ↗ - posture and neck strengthening · Not said
I try to maintain good posture and did alot of next strengthening
In context ↗ - eating healthy, small amounts throughout the day · Not said
But I got into a routine of eating healthy, small amounts throughout the day.
In context ↗ - audiobooks on .5 speed · Helped
I started listening to audiobooks (on like .5 speed, but it helped just to let my brain work again).
In context ↗ - small walks outside · Not said
Small walks outside or just sitting outside when I could.
In context ↗ - medical massage · Not said
And medical massage.
In context ↗ - low FODMAP diet · No change
which at that point was already a pretty strict low FODMAP deal
In context ↗ - zypan · Helped
A strict routine of zypan, livaplex, marshmallow root, and other herbal supplements slowly got me back on track
In context ↗ - nerve blocks · Worse
most of the treatments, nerve blocks and steroids made it flare even more
In context ↗ - cbd · Not said
The wombo combo of cbd and a slightly boring audiobook
In context ↗ - time · Helped a lot
I got better with time. ... I think time helped me most
Approaches: Alternative therapies · Pacing · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2022 | COVID-19 infection; previous TBI symptoms returned multipliedIt was like my TBI came back multipliedIn context ↗ | Severe | |
| six months into illness | bedridden for months; worsening then plateauI got worse for about 6 months, stayed the same for 6 moreIn context ↗ | Severe | |
| about a year in | began improving very slowly, avoiding crashesfor the past 6 I’ve been slowly but surely getting betterIn context ↗ | Severe | Time and spontaneous remission |
| 2024-02 | mostly functional again but still symptomaticI went from bedridden for months, to still having symptoms, but being mostly functionalIn context ↗ | Moderate | Time and spontaneous remission |
| 2025-06 | partially recovered, about 65%, dysautonomia still strongI am partially recovered, probably 65%.In context ↗ | Moderate |
Adverse events
- Nerve blocks (occipital, head and neck), Corticosteroid pulses“most of the treatments, nerve blocks and steroids made it flare even more” In context ↗ Made symptoms worse
- Corticosteroid pulses“most of the treatments, nerve blocks and steroids made it flare even more” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
PEM and POTS still get me
In context ↗ - Brain fog
My brain fog was so bad I feel like I lost a chunk of my life
In context ↗ - POTS & dysautonomia
the dysautonomia remains standing strong
In context ↗ - Gut problems
There was a solid 6 months straight of diarrhea every day.
In context ↗ - Pain & fibromyalgia
the debilitating and constant neuralgia has simmered to an occasional thing
In context ↗ - Neuropathy & tingling
After 1.5 years, mine isn’t fully gone but it’s already bearable.
In context ↗ - Headaches & migraine
without so much dizziness and nausea and headaches
In context ↗ - Light & noise sensitivity
I could barely stay in a fluorescent lit room for a few minutes
In context ↗ - Sleep problems
If I’m not sleeping atleast I’m resting to some degree
In context ↗ - Anxiety & low mood
I gave up on the world when it left me behind when I got sick
In context ↗
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