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Long COVID Mild → near normalIll 3 years before improving or writingNeeds ongoing treatment

Long COVID with brain fog and heart arrhythmia, nearly back to normal after time and rest

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill before improving or writing
3 years
Last post
Jan 2023
In their words
  • Condition: Long COVIDI was infected in December of 2019 in Colorado. In context ↗
  • At worst: MildIt was really rough, as in impacting functionality for at least 18 months. In context ↗
  • Now: Near normalSome days I feel completely normal, but my lung capacity and stamina are fully unpredictable. In context ↗
  • Began after: COVIDI was infected in January of 2020, on a domestic flight. In context ↗
Read from 13 of their posts and comments; links to the 12 this page draws on

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Summary

Infected with COVID in late 2019/early 2020, this user was sick for over 9 weeks and spent at least 18 months with brain fog, heart arrhythmia, dizziness and kidney trouble, retiring from public education. They credit time, rest and part-time work, were nearly back to previous wellness by January 2022 and almost fully recovered by October 2022. Exposure, altitude change and overexertion still bring relapses; lung capacity and stamina stay unpredictable.

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What they tried

Also tried

healthy diet, lowered alcohol and sugars, weight management· Helpedmindful organizational skills such as lists, calendars etc· Helpedadding more fresh water green tea, fresh air every day· Helpedminimal blood pressure meds· Not saidIbuprofen· Not saideasing into the exercise· Not said
Their words about each treatment
  • going part time at work · Helped a lotDoing much better - truly attribute my healing to going part time at work. In context ↗
  • pace, patience and peace · HelpedPace, patience and peace carried more wellness for me than anything else I did other than stay away from reinfection. In context ↗
  • Vax and Boosters · HelpedI believe the Vax and booster kept me from more reruns. In context ↗
  • Time · Helped a lotTime. Time. Time. Rest and Regulation. In context ↗
  • stretching and yoga for balance · Helpedstretching and yoga for balance In context ↗
  • healthy diet, lowered alcohol and sugars, weight management · Helpedhealthy diet, lowered alcohol and sugars, weight management In context ↗
  • mindful organizational skills such as lists, calendars etc · Helpedmindful organizational skills such as lists, calendars etc In context ↗
  • adding more fresh water green tea, fresh air every day · Helpedadding more fresh water green tea, fresh air every day In context ↗
  • minimal blood pressure meds · Not saidI take minimal blood pressure meds depending on my patterns. In context ↗
  • lower altitude · HelpedI also seem to do better with my inflammation at a lower altitude. In context ↗
  • Ibuprofen · Not saidTrying to stay away from constant Ibuprofen - kidneys and liver are still healing. In context ↗
  • easing into the exercise · Not saidLungs still not at capacity since I am still easing into the exercise In context ↗

Approaches: Mind-body practices · Pacing · Radical rest · Vaccination

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
January 2020COVID infection on a domestic flight; sick for over 9 weeksI was infected in January of 2020, on a domestic flight. In context ↗Mild
Summer 2020heavy brain fog, heart arrhythmia, inflammation; failed simple maths assessmentsSummer 2020, incredible brain fog, heart arrhythmia, continued inflammation and I couldn't pass simple math assessments In context ↗Mild
December 2021started to feel much better after retiring and going part timeI have in last 2 months started to feel much better In context ↗MildPacing and the energy envelope
January 2022just about back to previous wellness two years outExactly 2 years out, I am just about back to previous wellness. In context ↗Near normalTime and spontaneous remission
October 2022set back for weeks by flights and altitude changesflights and altitude changes can set me back rapidly, and for a few weeks In context ↗Mild
October 2022almost fully recovered, lingering symptoms only after exposure, altitude or exertionI feel like I am almost fully recovered In context ↗Near normalTime and spontaneous remission
January 2023some days completely normal, but lung capacity and stamina unpredictableSome days I feel completely normal, but my lung capacity and stamina are fully unpredictable. In context ↗Near normal

Symptoms mentioned

Their words about their symptoms
  • Brain fogIn addition to the brain fog and cardio challenges In context ↗
  • Heart symptoms & palpitationsheart arrhythmia In context ↗
  • POTS & dysautonomiaFor a long time, I couldn’t fight the vertigo In context ↗
  • Post-exertional malaiselingering symptoms are usually from what I think are either reexposure, major altitude changes or waaaay too much exertion In context ↗
  • BreathlessnessLungs still not at capacity since I am still easing into the exercise In context ↗
  • Pain & fibromyalgiahave had the thigh pain for awhile In context ↗

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