ME/CFS with brain fog and FODMAP intolerance, somewhat better on fexofenadine
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- Not stated
- Last post
- Dec 2024
In their words
- Condition: ME/CFS
my symptoms almost disappeared in the 10 days I was on antibiotics
In context ↗ - Now: Somewhat better
It removed almost all the brain fog for me. Unfortunately, histamine intolerance (and FODMAP intolerance) remains.
In context ↗
Read from 5 of their posts and comments; links to the 4 this page draws on
Summary
Oak 98309 has CFS and posts mainly about symptom control. During a 10-day course of antibiotics their symptoms almost disappeared, but two weeks later they were much worse than ever. In March 2024 fexofenadine 180 mg daily removed almost all their brain fog after about 23 days, though histamine and FODMAP intolerance remained, and 30 mg zinc gluconate helped them fall asleep.
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What they tried
What they credit
Also tried
Their words about each treatment
- antibiotics · Helped a lot
my symptoms almost disappeared in the 10 days I was on antibiotics. Two weeks later it was much worse than ever.
In context ↗ - light e-scooter · Helped
i found a light e-scooter to be really great. The weight is the most important factor for me
In context ↗ - Fexofenadine · Helped a lot
It removed almost all the brain fog for me. Unfortunately, histamine intolerance (and FODMAP intolerance) remains.
In context ↗ - zinc gluconate · Helped
30mg (sometimes a bit more) of zinc gluconate helps me a lot. It reduces the (feeling of or real?) inflammation and then I can often fall asleep.
In context ↗
Approaches: Antibiotics
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were | After |
|---|---|---|---|
| — | CFS symptoms present (onset not dated)I ask because my symptoms almost disappeared in the 10 days I was on antibiotics.In context ↗ | Not stated | |
| during a 10-day course of antibiotics, before 2022-11-27 | symptoms almost disappeared on antibioticsmy symptoms almost disappeared in the 10 days I was on antibioticsIn context ↗ | Not stated | Antibiotics (unspecified) |
| two weeks after the antibiotics | crashed to worse than ever after antibioticsTwo weeks later it was much worse than ever.In context ↗ | Not stated | |
| 2024-03-24 | brain fog almost gone on fexofenadineIt removed almost all the brain fog for me.In context ↗ | Not stated | Fexofenadine (Allegra) |
| 2024-12-31 | brain fog largely gone, histamine and FODMAP intolerance remain; zinc helps sleep30mg (sometimes a bit more) of zinc gluconate helps me a lot.In context ↗ | Mild | Fexofenadine (Allegra) |
Adverse events
- Antibiotics (unspecified)“my symptoms almost disappeared in the 10 days I was on antibiotics. Two weeks later it was much worse than ever.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Brain fog
It removed almost all the brain fog for me.
In context ↗ - Mast cell (MCAS) & allergies
Unfortunately, histamine intolerance (and FODMAP intolerance) remains.
In context ↗ - Sleep problems
It reduces the (feeling of or real?) inflammation and then I can often fall asleep.
In context ↗
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