Long COVID
Moderate → no benefitIll for 2.5 years
Long COVID pain and food reactions, still too tired for full-time work after cromolyn
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill for
- 2.5 years
- Last post
- Apr 2025
In their words
- Condition: Long COVID
long covid written in my papers from 4 different doctors
In context ↗ - At worst: Moderate
I cant work I cant live abroad I cant enjoy food, sex, sports, nothing.
In context ↗ - Now: No benefit
I feel so tired I cant work full time anymore.
In context ↗ - Began after: COVID
I got inflamed thyroid and MCAS after Omicron
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
A Reddit user with long COVID since winter 2022, with joint, muscle and bone pain, histamine intolerance and suspected MCAS. More than ten antidepressants all made them sick and they react badly to most foods and medicines. Cromolyn, ketotifen and quercetin helped after eight months of burning throat; prednisone 40 mg was the only medicine that helped, but doctors stopped it. By April 2025 they were too tired to work full time.
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What they tried
Also tried
Their words about each treatment
- Cromolyn · Helped
Im on Cromolyn, Ketotifen, Quercetin - it helped me after 8 months of burning throat
In context ↗ - antidepressants · Worse
I tried more than 10 antidepressants by now and all of them makes me sick
In context ↗ - Prednisone corticosteroid · Helped a lot
the only medicine that ever helped me was Prednisone corticosteroid 40mg+
In context ↗ - painkillers · No change
Nothing else no painkillers no NSAIDs no tramadol no ketamine IV nothin nothin nothin
In context ↗ - ketamine IV · No change
no painkillers no NSAIDs no tramadol no ketamine IV nothin nothin nothin
In context ↗
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| winter 2022 | long COVID began after Omicron infectionSince winter 2022. Im 39 but I feel like 89.In context ↗ | |
| after Omicron, winter 2022 | inflamed thyroid and MCAS, near death, severe painMy heart was racing I wasnt able to breath and I was sweating so much. Never felt closer to deathIn context ↗ | Corticosteroid pulses |
| after 8 months of burning throat | eight months of burning throat clearedIm on Cromolyn, Ketotifen, Quercetin - it helped me after 8 months of burning throatIn context ↗ | |
| 2025-04-21 | still exhausted, cannot work full time, whole body hurtsI feel so tired I cant work full time anymore.In context ↗ |
Adverse events
- Antidepressants (unspecified)“I tried more than 10 antidepressants by now and all of them makes me sick.” In context ↗ Side effects
Symptoms mentioned
Anxiety & low moodBreathlessnessHeart symptoms & palpitationsMast cell (MCAS) & allergiesNeuropathy & tinglingPain & fibromyalgiaTemperature regulation
Their words about their symptoms
- Pain & fibromyalgia
i have pain in joints, little joints in fingers and hand. My knees hurt.
In context ↗ - Mast cell (MCAS) & allergies
I have bad histamine intolerance.
In context ↗ - Neuropathy & tingling
I had SFN pins and needles pain in hands and feet for months. It disappeared.
In context ↗ - Heart symptoms & palpitations
My heart was racing I wasnt able to breath
In context ↗ - Temperature regulation
I was sweating so much
In context ↗ - Anxiety & low mood
I just want to unalive myself because its been years now
In context ↗