Severe GI long COVID, somewhat better after rest and supplements
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 2 years
- Last post
- Jun 2026
In their words
- Condition: Long COVID
I've had long covid since June 2024
In context ↗ - At worst: Moderate
I had it for about seven months and lost 40lbs because I couldn't eat
In context ↗ - Now: Somewhat better
it has lessened a bit from the peak, but I'm still not back to my baseline
In context ↗ - Began after: COVID
I had the flirt variant in June of 2024
Read from 17 of their posts and comments; links to the 14 this page draws on
Summary
Long COVID from a June 2024 infection caused severe GI symptoms: adrenaline dumps after carbs, and about seven months when the stomach stopped digesting, with 40 lb weight loss. They also had worse vestibular migraine, light sensitivity, swaying and heavy legs, heat sensitivity and orthostatic symptoms, brain fog and panic. Rest, iron and magnesium plus other supplements helped; they regained 25 lb but were still not back to baseline.
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What they tried
What they credit
Also tried
Their words about each treatment
- famotidine · Helped
try using famotidine if you aren't already ... this has helped me a lot
In context ↗ - diabetic diet · Helped
Small meals low in carbs, only bland food ... I never ate carbs without protein and basically followed a diabetic diet
- magnesium · Helped
I use topical magnesium and I have noticed a difference. They have lotions and gels
In context ↗ - montelukast · Helped
with magnesium, montelukast, iron, B1, progesterone, vit D, cetirizine and electrolytes I've been feeling better
In context ↗ - iron water · Helped
Yes, iron and ferritin. I take iron water instead of the traditional supplements and I think it's much harder to get too high on those
In context ↗ - nortriptyline · Not said
nortriptyline, which I'm on for the vestibular migraine
In context ↗ - Xanax / benzos · Helped
Benzos also help with flares.
In context ↗ - audiobook or having my partner rub me to fall asleep · Helped
I listen to an audiobook or have my partner rub me to fall asleep now and that's helped a lot.
In context ↗ - Rest · Helped
Rest, and iron and magnesium supplements
In context ↗ - CBT · Not said
I'm in CBT for anxiety but nope.
In context ↗
Approaches: H1 antihistamines · POTS medication · Antihistamines & MCAS · Pacing · Sex hormones · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| June 2024 | COVID (flirt variant); GI symptoms from the startI had the flirt variant in June of 2024 and from the beginning some of my worst symptoms have been stomach/GI related.In context ↗ | Moderate |
| late 2024 | Stomach stopped digesting, could not eat, lost 40 lbsI had it for about seven months and lost 40lbs because I couldn't eatIn context ↗ | Moderate |
| April 2026 | Feeling better except swaying/rocking/heavy legs and heat sensitivity/orthostatic symptomsI've been feeling better except for the swaying/rocking/heavy legs and heat sensitivity/OHIn context ↗ | Mild |
| June 2026 | Eating near-normally again except spicy food and tomatoes; electrolytes still upset stomachI've regained about 25lbs and can eat quite nornally now except for spicy food, tomatoes, etc.In context ↗ | Mild |
Adverse events
- Famotidine (Pepcid)“When I was on 40mg it made my heart pound and gave me anxiety” In context ↗ Heart rhythm problems
- Famotidine (Pepcid)“When I was on 40mg it made my heart pound and gave me anxiety” In context ↗ Mood or psychiatric effects
- Salt, electrolytes and fluids“They hurt my stomach a lot of times and give me heartburn” In context ↗ Gut side effects
Symptoms mentioned
Their words about their symptoms
- Breathlessness
I just feel super out of breath/ like I can't take a full breath
In context ↗ - Headaches & migraine
I had vestibular migraine before covid and it got much worse after I got long covid.
In context ↗ - Light & noise sensitivity
Vestibular migraine I'm super sensitive to lights, anything moving, weather, lack of sleep, etc.
In context ↗ - POTS & dysautonomia
heat sensitivity/OH
In context ↗ - Temperature regulation
except for the swaying/rocking/heavy legs and heat sensitivity/OH
In context ↗ - Muscle weakness
the swaying/rocking/heavy legs
In context ↗ - Brain fog
I have a lot more brain fog without it.
In context ↗ - Anxiety & low mood
I'm also a very nervous flyer (panic disorder)
In context ↗
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