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Long COVID Moderate → somewhat betterIll 6.5 years before improving or writing

Long COVID with brain fog, fatigue and fainting, somewhat better with LDN

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
6.5 years
Last post
Oct 2026
In their words
  • Condition: Long COVIDAround April, 2020, long before the 1st vaccine, I came down with intense symptoms of Long Covid such as Fatigue, Brain Fog, Arthritis, etc. In context ↗
  • At worst: Moderatehow difficult it can be for me to get out of bed In context ↗
  • Now: Somewhat betterit has helped though i might still have some sude effects. In context ↗
  • Began after: COVIDAround April, 2020, long before the 1st vaccine, I came down with intense symptoms of Long Covid such as Fatigue, Brain Fog, Arthritis, etc. In context ↗
Read from 33 of their posts and comments; links to the 23 this page draws on

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Summary

A person who developed long COVID in April 2020 with brain fog, fatigue and arthritis had a mild-to-moderate course for years, later adding gluten intolerance and IBS. A suspected reinfection in December 2025 brought dysautonomia, fainting after singing and severe anxiety, and they took leave from their weekend driving job. Low-dose naltrexone, Pepcid and compression socks helped partially; they cut LDN from 4.0 to 3.0 mg over dizziness.

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Asking aboutCedar 85068’s story

What they tried

Their words about each treatment
  • hypnosis recordings for IBS · HelpedI ordered a set of hypnosis recordings for my IBS. They're pretty good and they serve as my "meditation". In context ↗
  • Exercise (light weights) · HelpedI'm feeling anxious and a moderate amount of exercises (especialky light weights) calm me down quite a bit In context ↗
  • dozens of supplements · Not saidBesides dozens of supplements i radically changed my diet. In context ↗
  • gluten-free diet · Helped a lotI removed gluten, presto! The pain completely subsided In context ↗
  • CBT · No changeI did CBT before Covid with good success. Now its not doing much. In context ↗
  • red meat / hamburger · Helpedi would occasionally eat a hamburger - about once a month - and feel a boost? In context ↗
  • Prozac (fluoxetine) · Worsei was taking prozac and i started getting a reaction. It felt like serotonin syndrome though AI said it was unlikely. I felt my muscles stiffen and I felt really UPTIGHT In context ↗
  • antibiotics · HelpedI asked for antibiotics and they gave me an Rx. ... I felt much better while taking them and for a few days afterwards In context ↗
  • stretch lounge · HelpedI joined a stretch lounge years ago ... afterwards I feel relieved. In context ↗
  • Allegra and other H1 antihistamines · WorseAllegra gave me fatigue and brain fog ... the various H1s give me drowziness
  • Autosuggestions (Mindbody movement, Alan Gordon) · Helpedit might not cure you but I find it helps me to feel safer when I struggle with a flare. In context ↗
  • Carnivore / Ketovore diet · HelpedI went into a near Carnivore / Ketovore diet for 3 months ... I mostly felt better In context ↗
  • Low Dose Naltrexone · HelpedI started with 0.5. The 1.0, 2.0, 3.0 and 4.0. it has helped though i might still have some sude effects. In context ↗
  • Pepcid AC · HelpedEG LDN, Pepcid AC ... I think they're helping In context ↗
  • Quercitin · No changeI tried Quercitin for 1 month. I didnt notice a big shift either way. In context ↗
  • compression sox · HelpedHe did prescribe compression sox which have helped me. In context ↗
  • COVID vaccination as treatment · Not saidI felt a bit dizzy for about 15 minutes, otherwise no known adverse effects. In context ↗

Approaches: H2 blockers · Antibiotics · Diet

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y4 y5 y6 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
April, 2020Long COVID onset: brain fog, confusion, arthritic pain, chronic fatigueAround April, 2020, long before the 1st vaccine, I came down with intense symptoms of Long Covid such as Fatigue, Brain Fog, Arthritis, etc. In context ↗Mild
December, 2021Removed gluten and arthritis pain subsidedI removed gluten, presto! pain completely subsided In context ↗Mild
June, 2023IBS-C and new food intolerancesIn retrospect, I attributed my 2023 onset of IBS to Long Covid. In context ↗Mild
April, 2025Lung infection with low oxygen and syncopeMild
December, 2025Suspected COVID reinfection, more acute symptoms and struggling sinceI was about 80% ok until December then I must have been re-infected since then I've been realkg struggling. In context ↗Moderate
February, 2026Syncope after 20 minutes of singing; took leave from weekend driving jobSyncope after 20 minutes of singing with my chorus. In context ↗Moderate
August, 2026Low-dose naltrexone helpedit has helped though i might still have some sude effects. In context ↗ModerateLow-dose naltrexone
October, 2026LDN lowered from 4.0 to 3.0 mg; dizziness lessI recently reduced my dosage from 4.0 to 3.0 and I think it's reducing my dizziness In context ↗Moderate

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Brain fogSevere Brainfog, Confusion In context ↗
  • Anxiety & low moodI have had anxiety for about a year In context ↗
  • POTS & dysautonomiaI got many more acute symptoms, including forms of dysautonomia. In context ↗
  • Flu-like symptomsI get episodes where it FEELS like I have a lowgrade fever but I do not. In context ↗

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