Long COVID with relapsing symptoms and nerve tingling, now fully recovered
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 6 months
- Last post
- Jun 2023
In their words
- Condition: Long COVID
Just over 9 months now. But remaining symptoms are intermittent and relatively mild now.
In context ↗ - At worst: Moderate
I wasn't going out anyway when I was at my worst ... up to 15 hours a time in my case
- Now: Recovered
So on the "30-day clear" test, I'm fully recovered.
In context ↗ - Began after: COVID
I got Covid at the end of March.
- Says they never had: Headaches & migraine
No, I didn't get headaches. I think I was lucky.
Read from 35 of their posts and comments; links to the 19 this page draws on
Summary
Hare 92394 fell ill with suspected COVID in late March 2020; months 1-5 were worst, with relapsing symptoms, up to 15 hours of sleep a day and tingling, jangling nerves from month 4. They rested from early July, doing only short walks, and by month 6 were back to full exercise; at month 10 they rated themselves in the 90s per cent, though returning to work in January 2021 may have stirred their nerves again. By June 2023 they were fully recovered, though occasional vibrations had returned.
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What they tried
What they credit
Also tried
Their words about each treatment
- vitamins D · Not said
I've been taking vitamins D and C for some years, and didn't change my regime.
In context ↗ - Ventolin inhaler · Helped
I did find an inhaler helped at times with that. I used Ventolin.
In context ↗ - rest and light exercise only · Helped
I realised in early July that rest was what I needed, and did no more than light exercise (1000 step easy walks)
In context ↗ - 4 month break from work · Helped
I ended up taking a 4 month break from work. ... It have me a chance to rest properly and recover.
In context ↗ - Niacin (vitamin B3), flushing type · Worse
Both times I've had it bad (on 500mg, thought I'd got used to it but obviously up doesn't work like that) I felt I'd got a raging fever, and was shaking all over.
In context ↗ - healthy diet · Not said
The solution: rest, gentle exercise only. Vitamins D3 and C, and a healthy diet.
In context ↗ - Viili · Helped
I've been using Viili, and for me it's done no end of good.
In context ↗ - time · Helped
It went away on its own, fading and becoming intermittent after about a month
In context ↗
Approaches: Pacing · Radical rest · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| end of March 2020 | fell ill with suspected COVIDIt was end March that I got ill.In context ↗ | Mild | |
| April-June 2020 | relapses of original symptoms every two weeksFirst relapse end April, then at 2 week intervals until the start of June.In context ↗ | Mild | |
| months 4-5 (July-August 2020) | neurological symptoms peaked with constant tingling and nerve jangling; not going outNeurological, though there from the start, came in big time in month 4 (tingling, nerve jangling)In context ↗ | Moderate | |
| early July 2020 | began resting properly and doing only short easy walksI realised in early July that rest was what I needed, and did no more than light exercise (1000 step easy walks) for I guess 6 weeks, maybe 2 months.In context ↗ | Moderate | Pacing and the energy envelope |
| September-November 2020 | body signalled it was ready and they returned to full exercisein early September something changed, and my body told me that it was OK to exercise as much as I wanted.In context ↗ | Mild | Pacing and the energy envelope |
| January 2021 (month 10) | well into the 90s per cent, with some 100 per cent daysnow in month 10 I'm well into the 90s %, and I get days when I am 100%.In context ↗ | Near normal | Time and spontaneous remission |
| 18 January 2021 | nerves flared after starting back at workRight now, I'm having a bad time with my nerves, but it might have something to do with starting back at work 2 weeks agoIn context ↗ | Mild | |
| 1 February 2021 (month 11) | essentially 100 per cent for the past week, reduced work stillI'm just past 10 months now, and essentially 100% (for the past week or so anyway)In context ↗ | Near normal | Time and spontaneous remission |
| 9 June 2023 | no vibrations for over a month; called themselves fully recoveredSo on the "30-day clear" test, I'm fully recovered.In context ↗ | Recovered | Time and spontaneous remission |
Adverse events
- “Both times I've had it bad ... I felt I'd got a raging fever, and was shaking all over. It took a few hours to get back close to normality.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
I just could not concentrate on work after my first relapse (1 month out)
In context ↗ - POTS & dysautonomia
I haven't had any dizziness since around month 5 or 6
In context ↗ - Sleep problems
the need for sleep - up to 15 hours a time in my case
In context ↗ - Breathlessness
My brain was failing to tell my body to breathe at times.
In context ↗ - Heart symptoms & palpitations
occasional chest pain that's pretty much all that's left
In context ↗ - Neuropathy & tingling
it became a constant and annoying companion for over a month, around month 4-5, before fading to nerve jangling
In context ↗ - Anxiety & low mood
it makes you more anxious than you would otherwise be
In context ↗ - Loss of smell or taste
But I did have phantosmia (smelling things that aren't there) and intensified sense of smell for some things
In context ↗
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