Long COVID
RecoveredIll 13 months before improving or writing
Bedridden with long COVID, now recovered after low-histamine diet and H1/H2 blockers
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- 13 months
- Last post
- Oct 2023
In their words
- Condition: Long COVID
I’m in my 5th month as a long hauler.
In context ↗ - Now: Recovered
Back to normal life, healthier than before.
In context ↗ - Began after: COVID
COVID + January 3, 2021.
In context ↗
Read from 102 of their posts and comments; links to the 40 this page draws on
- May 2021
- Oct 2023
- Sep 2021
- Jul 2021
- Jun 2021
- Jun 2021
- Jul 2021
- Jun 2021
- May 2021
- Jul 2021
- May 2021
- May 2021
- Jun 2021
- May 2021
- May 2021
- Nov 2021
- Jun 2021
- Jul 2021
- Aug 2021
- Aug 2021
- Mar 2022
- Oct 2021
- Feb 2022
- Oct 2023
- Feb 2022
- Jun 2022
- Jul 2022
- Jan 2023
- Jun 2021
- Aug 2021
- May 2021
- Sep 2021
- Jul 2021
- Sep 2021
- Feb 2022
- Dec 2021
- May 2021
- Jul 2021
- Feb 2021
- Jun 2022
Summary
An architect caught COVID in January 2021 and developed long COVID after a jog: crippling fatigue, brain fog, headaches, tachycardia, tinnitus and food intolerances, and by February he was bedridden at about 500 steps a day. A low-histamine diet, H1/H2 blockers, a functional-medicine programme and later the InCellDX protocol took him to about 80% by autumn 2021 and full recovery around 13-14 months in, after a 6-8 week relapse.
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What they tried
What they credit
Zyrtec· Helped a lot · mainPepcid· Helped a lot · mainlow histamine diet· Helped a lotfull keto / paleo diet (no sugar, grains or dairy)· Helped a lotfull keto / paleo diet (no sugar, grains or dairy)· Helped a lotfull keto / paleo diet (no sugar, grains or dairy)· Helped a lotLEAP MRT food test diet program· Helped a lotMaraviroc (Selzentry, Roc)· Helped a lot · mainTMS approach (Jake's video / longcovidcured.com)· Helped a lot · mainrest, naps and pacing· Helpedfluconazole· HelpedIvermectin (Ivy)· HelpedDAO supplement· Helpedtestosterone· Helped
Also tried
Stasis Performance breathwork program· Helped a lotDHEA· Helped a lotFluvoxamine· Helped a lotprescription grade supplements· HelpedAdaptocrine· Helpedtime release melatonin· HelpedSteriphos (Seriphos)· Helpedblue light glasses· HelpedSymbicort inhaler· Helpedcool showers· Helpedintermittent fasting and 30 hour fasts· HelpedMegaSpore probiotic· Helpedgradually ramping up activity· Helpedhigh dose prednisone· WorsePravastatin· Worsefood and symptom journal· Not saidgut repair powders· Not saidnattokinase· Not saidbaby aspirin· Not said
Their words about each treatment
- high dose prednisone · Worse
I was given a high dose during my active infection, that may have impaired my body’s ability to fight, and the virus took over.
In context ↗ - rest, naps and pacing · Helped
Rest and pacing is huge. ... I lay down for an hour each morning and afternoon.
In context ↗ - food and symptom journal · Not said
I’ve been maintaining a food + symptom journal to help me understand my symptom triggers.
In context ↗ - Zyrtec · Helped a lot
I feel these have been critical to my recovery, and were some of the first successful treatments that took me from bed ridden to walking zombie.
In context ↗ - Pepcid · Helped a lot
I credit the H1 and H2 blockers for my first gains in my early Long Haul days, long before these other solutions were around.
In context ↗ - low histamine diet · Helped a lot
Like others, a low histamine and low inflammation diet has helped tremendously.
In context ↗ - full keto / paleo diet (no sugar, grains or dairy) · Helped a lot
They went full Keto with my diet, and the changes in my energy level and symptoms have been life changing.
In context ↗ - Stasis Performance breathwork program · Helped a lot
I did the Stasis Breathwork program 2 months in, and it eliminated any pots and tachycardia symptoms I had.
In context ↗ - fluconazole · Helped
I’m on fluconazole and gut repair-powders to heal my gut, one of the primary defenses against infection.
In context ↗ - gut repair powders · Not said
have gut health prescriptions and repair supplements as well
In context ↗ - prescription grade supplements · Helped
Swapping those out for pharmaceutical grade supplements made a huge difference for me.
In context ↗ - Adaptocrine · Helped
Adaptocrine helped quite a bit with my brain fog. ... the week of pain while taking it cleared up 80% of my brain fog.
In context ↗ - DHEA · Helped a lot
DHEA has helped my migraines, brain fog and tinnitus tremendously.
In context ↗ - LEAP MRT food test diet program · Helped a lot
It’s been life changing for me, as I’ve been able to greatly expand my diet after implementing the program.
In context ↗ - time release melatonin · Helped
Time release melatonin paired with Sterifos supplement. The melatonin dose took a while to figure out, higher dose doesn’t equal more sleep, it’s trial and error. I cut 10 mg tablets in half.
In context ↗ - Steriphos (Seriphos) · Helped
My functional doc put me on Steriphos, which I took at bedtime, to drive down the evening cortisol. ... It’s super gradual, but has helped me over time.
- blue light glasses · Helped
Purchased a pair of Blue Light glasses as well, which has helped with headaches.
In context ↗ - Symbicort inhaler · Helped
During the long haul, it’s been helpful for SOB.
In context ↗ - Maraviroc (Selzentry, Roc) · Helped a lot
The InCell was a critical component of recovery for sure. ... Activities that once cause me PEM no longer do.
- Ivermectin (Ivy) · Helped
All that to say, I saw some immediate improvements with IVM and ROC early on.
In context ↗ - Pravastatin · Worse
I just felt worse on the Statin. In my consult with Dr Yo, he suggested that I drop it.
In context ↗ - nattokinase · Not said
I’ll be starting my nattokinase or baby aspirin back up in a few days, once I’m off Maravaroc.
In context ↗ - cool showers · Helped
Cold / cool showers eliminates them immediately, but it’s temporary.
In context ↗ - intermittent fasting and 30 hour fasts · Helped
I’ve mixed in intermittent fasting and 30 hours fasts with specific probiotics to rebuild my gut.
In context ↗ - MegaSpore probiotic · Helped
Ate full paleo, used DAO, and the MegaSpore probiotic. ... I’ve been doing separate work to rebuild my gut that has been super helpful as well.
- DAO supplement · Helped
Ate full paleo, used DAO, and the MegaSpore probiotic.
In context ↗ - testosterone · Helped
Testosterone and DHEA were both helpful. I’m still taking both, but at the minimum recommended doses.
In context ↗ - TMS approach (Jake's video / longcovidcured.com) · Helped a lot
A TMS approach. Give it 3 months of real effort. Big progress after the first 30 days.
In context ↗ - gradually ramping up activity · Helped
I just started with a little each day. Stairs in the house, putting away dishes, getting the mail, walking to the corner and back
In context ↗ - Fluvoxamine · Helped a lot
the doc put me on a two week dose of Fluvoxamine. It worked wonders for lingering brain fog and tinnitus.
In context ↗
Approaches: H1 antihistamines · H2 blockers · Antifungals · Antihistamines & MCAS · Antivirals · Brain retraining · Diet · Other drugs and medicines · Pacing · Sex hormones
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| January 2021 | COVID-19 infection; long COVID followed a jogCOVID + January 3, 2021.In context ↗ | Mild | |
| mid February 2021 | crashed after a jog; bedridden, could not stand 5 minutesIn mid February, my fatigue was so bad that I could barely manage 500 steps a day, and couldn’t stand more than 5 minutes.In context ↗ | Severe | |
| March 2021 | low-histamine diet with H1/H2 blockers; up to 1,500 stepsI went on a low histamine diet, paired with H1 and H2 blockers. This got me to 1,500 steps a day, and functioning.In context ↗ | Moderate | Cetirizine (Zyrtec) |
| late May 2021 | functional doctor: testing, diet, supplements; 5,000 steps, 30-hour work weeksI had built up activity to averaging 5,000 steps a day and 30 hour work weeks.In context ↗ | Mild | |
| June 2021 | deep relapse after being too active for a weekendit triggered terrible PEM and a deep relapse that lasted for 6-8 weeksIn context ↗ | Moderate | |
| July 2021 | InCellDX protocol; pravastatin added, best 5 days in 6 monthsAt that time Pravastatin was added in, and I’ve had my best 5 days in the last 6 months.In context ↗ | Mild | Pravastatin (Pravachol) |
| September 2021 | tapering off InCellDX meds; PEM no longer triggered, near full-time workActivities that once cause me PEM no longer do.In context ↗ | Mild | Maraviroc (Selzentry) |
| December 2021 | further relapses from pushing too muchI had relapses at month 4, 7 and 10.5, largely from pushing myself too much, although they were progressively less severe.In context ↗ | Mild | |
| February 2022 | 95-100% depending on the day; full-time work, lifting weights; off all COVID medsI’m 95-100% depending on the day. Working full time, lifting weightsIn context ↗ | Near normal | |
| October 2023 | fully recovered and back to normal lifeBack to normal life, healthier than before.In context ↗ | Recovered |
Adverse events
- Herbal remedies (unspecified)“It’s not low histamine, but the week of pain while taking it cleared up 80% of my brain fog.” In context ↗ Side effects
- “I’ve gone from several days of feeling 90% back to 40% very quickly due to the wrong supplement.” In context ↗ Made symptoms worse
- Melatonin“I did the same thing with Melatonin - kept upping my dose only to have worse and worse sleep.” In context ↗ Insomnia from treatment
- Pravastatin (Pravachol)“While I was on the statin, some of my symptoms increased in intensity, and some old ones flared up again.” In context ↗ Made symptoms worse
Symptoms mentioned
Anxiety & low moodBrain fogBreathlessnessFlu-like symptomsGut problemsHeadaches & migraineLight & noise sensitivityMast cell (MCAS) & allergiesPOTS & dysautonomiaPost-exertional malaiseSleep problemsTinnitus
Their words about their symptoms
- Post-exertional malaise
Activities that once cause me PEM no longer do.
In context ↗ - Brain fog
intense headaches and brain fog
In context ↗ - POTS & dysautonomia
I did the Stasis Breathwork program 2 months in, and it eliminated any pots and tachycardia symptoms I had.
In context ↗ - Headaches & migraine
Still have some headaches and food sensitivities, but they are so minor and don’t affect quality of life.
In context ↗ - Tinnitus
sometimes gone, sometimes a low white noise
In context ↗ - Sleep problems
preventing me from being able to fall, then stay asleep
In context ↗ - Mast cell (MCAS) & allergies
Testing revealed mold, yeast and bad bacteria in my gut, a histamine intolerance, and a variety of new allergies.
In context ↗ - Breathlessness
I had breathing issues for a large part of my Long Haul.
In context ↗ - Gut problems
Testing revealed a mess in my gut, new allergies, and some hormone imbalance
In context ↗ - Flu-like symptoms
I still have a sore throat that comes and goes
In context ↗ - Light & noise sensitivity
I had issues with glare and movement early on, but that has largely resolved.
In context ↗ - Anxiety & low mood
I kept myself in a never ending cycle of fear and anxiety
In context ↗
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