Disabled by long COVID, improved some on magnesium and probiotics, then bed-bound again
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 4 years
- Last post
- Nov 2024
In their words
- Condition: Long COVID
I never was disabled from Hashimotos but I was disabled from long covid.
In context ↗ - At worst: Severe
I am bed-bound again with the worst mental and physical fatigue.
In context ↗ - Now: Relapsed
I believe I was on my way to getting as good as I have been, then got slammed with the worst COVID ever in December of 2023 ... I am bed-bound again with the worst mental and physical fatigue.
- Began after: COVID
those things have been on and off since 2020
In context ↗
Read from 9 of their posts and comments; links to the 9 this page draws on
Summary
They described an early full-body hive episode, and tingling and chills on and off since 2020, and said they were disabled by long COVID though never by their Hashimoto's. Magnesium, probiotics, vitamin D3 and an autoimmune protocol gave some relief. COVID in December 2023 and again in August 2024 set them back, and by November 2024 they were bed-bound again with the worst mental and physical fatigue.
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What they tried
What they credit
Their words about each treatment
- prednisone · Worse
I had to take and be miserable for a month on prednisone ... my liver enzymes - were not so good after
In context ↗ - AIP eating (autoimmune protocol) · Helped
A lot of the advice from my diagnosis with Hashimots is what has given me any relief from Long Covid: magnesium and probiotics, D3, and auto-immune protocol.
In context ↗ - intermittent fasting · Not said
I also put myself back on AIP eating (autoimmune protocol) with intermittent fasting.
In context ↗ - Deplin / L-Methofolate · Helped
Helped in I was on Deplin and then switched to L-Methofolate.
In context ↗ - Synthroid · Worse
I just started to react to it ... I need to see why the Synthroid is making me feel bad now
In context ↗ - glutathione · Helped
I am getting D3 shots and glutathione weekly, which helped whatever variant was going around in December of 2023
In context ↗
Approaches: Diet · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 4 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2020 | long COVID symptoms beganthose things have been on and off since 2020In context ↗ | Not stated |
| — | disabled by long COVIDI went from flourishing to dissolute and in medical debtIn context ↗ | Severe |
| 2023 | on the way to getting as good as they had beenI believe I was on my way to getting as good as I have beenIn context ↗ | Not stated |
| December 2023 | slammed by the worst COVID infectiongot slammed with the worst COVID ever in December of 2023In context ↗ | Not stated |
| late August 2024 | mild COVID reinfectiona mild infection in late August of this yearIn context ↗ | Not stated |
| November 2024 | bed-bound again with the worst mental and physical fatigueI am bed-bound again with the worst mental and physical fatigueIn context ↗ | Severe |
Adverse events
- Corticosteroid pulses“OMG my alt was scary high after the pred I had to go back and get retested two times.” In context ↗ Liver or kidney problems
- Levothyroxine (Synthroid)“I need to see why the Synthroid is making me feel bad now” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Neuropathy & tingling
I had the tingling sensation all over, and I still have its
In context ↗ - Temperature regulation
the waterfall of chills, as that is what it feels like for me - those things have been on and off since 2020
In context ↗ - Mast cell (MCAS) & allergies
it turned into a full body hive episode where I had to take and be miserable for a month on prednisone
In context ↗ - Brain fog
I remember my memory coming back, but it is gone now.
In context ↗ - Headaches & migraine
With pressure and my brain on fire - I get that, it was when I was diagnosed.
In context ↗ - Anxiety & low mood
I was diagnosed depressed, and not one, not a single doctor, after two years of said depression
In context ↗
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