Long COVID
Moderate → somewhat betterIll 2 months before improving or writingNeeds ongoing treatment
60 days of long COVID hives and histamine flares, somewhat better after weekly fasting
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 2 months
- Last post
- Feb 2026
In their words
- Condition: Long COVID
I have long covid and decided to try using Lyme formulas
In context ↗ - At worst: Moderate
extreme tired, autonomic dysfunction, low iron, severe inflammation, leaky gut (autoimmune reactions to certain foods), leg weakness for several weeks after a flare, low blood pressure
In context ↗ - Now: Somewhat better
These supps keep me somewhat functional. I have not solved the underlying issue in the gut yet, but at least I can exist.
In context ↗ - Began after: COVID
I caught the SARS-covid-19 for the first time on August 1, 2023.
- Says they never had: Brain fog
My brain is completely unaffected.
Read from 23 of their posts and comments; links to the 16 this page draws on
Summary
Trail 62506 caught COVID-19 in August 2023 on top of 30-plus years of CFS and autonomic dysfunction, and was ill about 60 days with hives, high histamine and stress-triggered flares. They credited a bedtime probiotic and herbal combination, high-dose vitamin D, reishi, iron, niacin and finally weekly 38-hour fasting for stopping the immune flares. They felt good at month five, then RSV brought worse flares; gut issues remained unsolved and leg weakness followed flares.
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What they tried
What they credit
Reuteri pearls, Culturelle and saccharomyces boulardii· Helped a lot · main · wore offBB536· Helped a lot38-hour fast once a week· Helped a lot · mainZyflamend· Helped · wore offtopical progesterone· Helpedvitamin D3· Helpedmagnesium (citrate)· HelpedReishi· Helpedplantarum· Helpedfermentum me3· HelpedHRT· Helpedpeptides· Helpediron· Helpedlysine· HelpedPepZinGI zinc· HelpedPepZinGI zinc· Helpedserrapeptase· Helpedvegan lactoferrin· Helpedcreatine· Helpedcholine, methyl folate and methyl B-12· Helpedcholine, methyl folate and methyl B-12· Helpedraw vegan diet, no gluten or dairy, no cucumber· Helpedraw vegan diet, no gluten or dairy, no cucumber· Helpedraw vegan diet, no gluten or dairy, no cucumber· Helpedraw vegan diet, no gluten or dairy, no cucumber· Helped
Also tried
DIM· Helped a lotLyme formulas (Buhner)· Helped a lotketotifen· HelpedPhage complete· Helpedflushing niacin· HelpedL-theanine· Helped30 other supplements (vitamins A/C/E, B complex, chlorella, spirulina, multivitamin, quercetin, milk thistle, luteolin, turmeric, carnitine, resveratrol, ashwagandha, proteolytic enzymes, DHEA)· No changeNAC· No changecaprylic acid· Worseb. subtilis· Worseglutathione· WorseLDN· Worse
Their words about each treatment
- Zyflamend · Helped
2 Zyflamend 2 days in a row (something in this herbal formula was important)
In context ↗ - Reuteri pearls, Culturelle and saccharomyces boulardii · Helped a lot
It can not be a coincidence, this combo is how I killed it.
In context ↗ - 30 other supplements (vitamins A/C/E, B complex, chlorella, spirulina, multivitamin, quercetin, milk thistle, luteolin, turmeric, carnitine, resveratrol, ashwagandha, proteolytic enzymes, DHEA) · No change
I had been taking 30 other supplements for those 60 days ... but nothing worked until I did this specific combo.
In context ↗ - ketotifen · Helped
Histamine was through the roof so I took ketotifen and then used DIM to lower estrogen (histamine)no longer needed it.
In context ↗ - NAC · No change
Niacin, B Complex, NAC, Quercetin, milk thistle, Ketotiphen
In context ↗ - topical progesterone · Helped
Also I get better on all issues when I use topical progesterone.
In context ↗ - vitamin D3 · Helped
I took 20,000 IU Vitamin D3 and a methylated vitamin and the long covid autoimmune attacks stopped in one day.
In context ↗ - magnesium (citrate) · Helped
serrapeptase, magnesium, and vegan lactoferrin
In context ↗ - Reishi · Helped
I think the Reishi is more powerful than the D. It's doing something on a deeper level.
In context ↗ - caprylic acid · Worse
When I take caprylic acid I become so tired I can't move
In context ↗ - b. subtilis · Worse
I so far have a immune reaction to bacillus subtlis - i get tired
In context ↗ - plantarum · Helped
plantarum stops carpal tunnel
In context ↗ - fermentum me3 · Helped
fermentum me3 gives energy
In context ↗ - BB536 · Helped a lot
BB536 saved my life during an autoimmune attack.
In context ↗ - Phage complete · Helped
The phage stopped it fast after many years of sufferring.
In context ↗ - HRT · Helped
I am taking peptides and HRT with good result.
In context ↗ - DIM · Helped a lot
Mine stopped completely after taking DIM. I had high histamine for over 20 years and abruptly ended after taking DIM for 30 days.
In context ↗ - iron · Helped
The supplements that gave me immediate results were iron every other day
In context ↗ - lysine · Helped
lysine as an antiviral
In context ↗ - PepZinGI zinc · Helped
PepZinGI zinc (for leaky gut)
In context ↗ - vegan lactoferrin · Helped
vegan lactoferrin
In context ↗ - creatine · Helped
methylation stuff such as creatine and choline from sunflower lecithin
In context ↗ - choline, methyl folate and methyl B-12 · Helped
I needed to help methylation, so I take choline and methyl folate, methyl b-12, and some iron.
In context ↗ - glutathione · Worse
I also am working on glutathione, which gave me a slight fever for 3 days
In context ↗ - LDN · Worse
I tried LDN but it made me black out.
In context ↗ - flushing niacin · Helped
When I get an autoimmune flare, I take niacin and I can stop it in 30 minutes.
In context ↗ - Lyme formulas (Buhner) · Helped a lot
literally the next day after drinking it the autoimmune attack on my left leg stopped
In context ↗ - L-theanine · Helped
I did have insomnia, but I used progesterone, L-theanine, magnesium, vitamin D to bypass it.
In context ↗ - 38-hour fast once a week · Helped a lot
I did 1 38 hour fast 1 x a week. Well it worked.
In context ↗ - raw vegan diet, no gluten or dairy, no cucumber · Helped
I had to stop eating cucumbers. Each time I ate them I got a major autoimmune attack on my legs.
In context ↗
Approaches: Alternative therapies · Amino acids and carnitine · Anticoagulants · Diet · Peptides · Sex hormones · Supplements
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| 2023-08-01 | Caught COVID-19; 8 days of severe pain, no sleep, diarrhoea, unable to eatI caught the SARS-covid-19 for the first time on August 1, 2023. It lasted 8 daysIn context ↗ | |
| late September 2023 (about 60 days in) | Virus never cleared; hives, high histamine and inflammation for 60 days, 2-3 day flares after any stressIt turns out I never cleared the virus and was sick for about 60 days.In context ↗ | |
| 2023-10-04 | Bedtime probiotic and herbal combo; histamine and cytokine symptoms stoppedI feel the virus is gone, I feel the histamine and cytokines are gone, that fastIn context ↗ | Probiotics and fermented foods |
| month 5 of long covid (January 2024) | Felt goodI felt good at month 5.In context ↗ | |
| 2024-07-15 | Autoimmune attacks in their hands stopped in one dayI took 20,000 IU Vitamin D3 and a methylated vitamin and the long covid autoimmune attacks stopped in one day.In context ↗ | Vitamin D and sun exposure |
| 2024-10-08 | Crashed after RSV; muscle weakness, severe inflammation and cytokine pain flaresI felt good at month 5. Then I got RSV. Now I'm at 14 months of Long Covid.In context ↗ | |
| 2025-06-24 | Can function while consistently taking antivirals and supplementsas long as I consistently take zinc, lysine, holy basil, lactoferrin, 5000-10,000 IU vit D, and magnesium citrate, I can functionIn context ↗ | |
| 2025-09-19 | Major improvements from flushing niacin, iron and higher-dose vitamin DThe things that made major improvements for me are flushing niacin, iron, and higher dose vitamin D.In context ↗ | |
| 2026-02-03 | Weekly 38-hour fast stopped the hypervigilant immune flares; two years post covidI did 1 38 hour fast 1 x a week. Well it worked.In context ↗ |
Adverse events
- Probiotics and fermented foods“I so far have a immune reaction to bacillus subtlis - i get tired so it must be important” In context ↗ Side effects
- Caprylic acid“I got very tired from it, was killing so much mold/fungal i could not detox it.” In context ↗ Herx / die-off reaction
- Low-dose naltrexone“I tried LDN but it made me black out.” In context ↗ Low blood pressure or fainting
- Glutathione“I also am working on glutathione, which gave me a slight fever for 3 days” In context ↗ Side effects
Symptoms mentioned
Gut problemsHeadaches & migraineLoss of smell or tasteMast cell (MCAS) & allergiesMuscle weaknessPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseSleep problemsTemperature regulation
Their words about their symptoms
- Post-exertional malaise
I also failed to grasp that stress and exertion brings on a regression.
In context ↗ - POTS & dysautonomia
I have been unwell for over 30 years with CFS and autonomic dysfunction
In context ↗ - Mast cell (MCAS) & allergies
I developed hives, high histamine, high inflammation, that persisted.
In context ↗ - Sleep problems
I did have insomnia, but I used progesterone, L-theanine, magnesium, vitamin D to bypass it.
In context ↗ - Pain & fibromyalgia
severe inflammation flares and cytokine pain in any area of the body subject to exercise or stress
In context ↗ - Headaches & migraine
severe inflammation and pain, severe pain in head
In context ↗ - Gut problems
I have not solved the underlying issue in the gut yet
In context ↗ - Muscle weakness
My symptoms are muscle weakness and severe inflammation flares
In context ↗ - Temperature regulation
I developed cold chills for an hour and then hot sweats
In context ↗ - Loss of smell or taste
I did lose taste and smell for about 3-4 weeks.
In context ↗
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