ME/CFS
Outcome unclearNeeds ongoing treatment
Cognitive problems and fatigue with ME/CFS, NADH a big difference but too expensive
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Apr 2020
In their words
- Condition: ME/CFS
now i'm in a crash/relapse
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A Reddit user in r/cfs described cognitive problems and fatigue as their most consistent symptoms, with pain kept down by pacing. They took D-ribose, L-carnitine, CoQ10 and quercetin, and said NADH made a big difference but was too expensive to keep buying. Missing D-ribose for a few days after a routine change coincided with a crash, as had happened before when they ran out.
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What they tried
Also tried
Their words about each treatment
- pacing · Helped
pain but that seems to be kept down when I manage pacing
In context ↗ - D-ribose · Helped
Change in routine due to current world events has made me slack on remembering to have the D-ribose for a few days, and now i'm in a crash/relapse
In context ↗ - L-carnitine · Not said
I take D-ribose, L-carnitine, Q10 and quercitin.
In context ↗ - NADH · Helped a lot
Have tried NADH and that made a big difference but I can't afford to keep buying it
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| — | ME/CFS with cognitive symptoms, fatigue and painCognitive and fatigue have been the most consistent, and pain but that seems to be kept down when I manage pacingIn context ↗ |
| 2020-04-11 | in a crash/relapse after missing D-ribose for a few daysnow i'm in a crash/relapse, that has happened before when i've run out of itIn context ↗ |
Symptoms mentioned
Their words about their symptoms
- Brain fog
Cognitive and fatigue have been the most consistent
In context ↗ - Pain & fibromyalgia
pain but that seems to be kept down when I manage pacing
In context ↗