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Long COVID Moderate → much betterIll 9 months before improving or writing

Floored for two months with long COVID, much better with electrolytes and mirtazapine

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
9 months
Last post
Jul 2024
In their words
  • Condition: Long COVIDEven when I have had COVID and long COVID I slept. In context ↗
  • At worst: ModerateI got the vaccine booster in December and I was floored for a couple months. In context ↗
  • Now: Much betterFor the most part I feel better. I'm still having recurring styes but I don't feel like my brain is wet crackers anymore. In context ↗
  • Began after: COVIDI also have a neuroinflammatory autoimmune disease but was in remission till my most recent COVID infection
Read from 12 of their posts and comments; links to the 10 this page draws on

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Summary

A woman in Hawaii who had COVID in August 2023 and again in October 2023, and was floored for about two months after a vaccine booster that December. She had brain fog, blood pressure up to 187, a chronic pain flare, lost her sense of smell, and had taste changes. By March 2024 she felt better for the most part; salting food and electrolytes settled her blood pressure, and mirtazapine later eased her anxiety and sleep.

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Asking aboutWave 88233’s story

What they tried

Their words about each treatment
  • sitting in my car with the doors closed · HelpedI'll sit in my car with the doors closed during my therapy sessions and for whatever reason every time I have done that I feel like my brain works again. In context ↗
  • electrolyte mixes and salting food · Helpedmaking sure I was salting my food enough seemed to make a difference within a week In context ↗
  • ADHD medication · HelpedBut medicating my ADHD was essential. Now I can be like "moving on" and I don't get stuck in the loop. In context ↗
  • mirtazapine · Helped a lotAll I know is that since starting mirtazapine I'm. Super. Fucking. Stable. In context ↗
  • COVID vaccination as treatment · WorseI got the vaccine booster in December and I was floored for a couple months. In context ↗

Approaches: Alternative therapies · Other antidepressants

Their path

Very severeSevereModerateMildNear normalRecoveredonset3 mo6 mo9 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
October 2023COVID infection; easily winded afterwardsI had COVID in October of 2023 and it sucked but after a week or so I felt better. Easily winded but that was about it. In context ↗Mild
December 2023floored for a couple months after a COVID vaccine boosterI got the vaccine booster in December and I was floored for a couple months. In context ↗Moderate
March 2024felt better for the most part; brain fog mostly gone, still recurring styesFor the most part I feel better. I'm still having recurring styes but I don't feel like my brain is wet crackers anymore. In context ↗Mild
April 2024high blood pressure settledmaking sure I was salting my food enough seemed to make a difference within a week. In context ↗MildSalt, electrolytes and fluids
July 2024anxiety gone and sleeping well on mirtazapineI'm on mirtazapine and it killed my anxiety. And I sleep awesome In context ↗Mild

Adverse events

  • “They took me off off an essential medication for my mental health abruptly ... I'm still recovering from. It was traumatic to be honest.” In context ↗ Withdrawal problems
  • COVID vaccination as treatment“I got the vaccine booster in December and I was floored for a couple months.” In context ↗ Made symptoms worse

Symptoms mentioned

Their words about their symptoms
  • Loss of smell or tastecouldn't smell anything but no other symptoms. Except EVERYTHING tasted salty In context ↗
  • Gut problemshad diarrhea for a day In context ↗
  • Brain fogI don't feel like my brain is wet crackers anymore In context ↗
  • Anxiety & low moodI also have anxiety so I thought my blood pressure issues were due to my anxiety In context ↗
  • Heart symptoms & palpitationsI was having a super high rate In context ↗
  • BreathlessnessEasily winded but that was about it In context ↗
  • Pain & fibromyalgiaI was also experiencing a chronic pain flare up In context ↗

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