Mild ME/CFS, unable to study for years, now somewhat better with shorter PEM
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- Not stated
- Last post
- Nov 2023
In their words
- Now: Somewhat better
my memory has seriously improved in ways I didn't anticipate
In context ↗
Read from 12 of their posts and comments; links to the 6 this page draws on
Summary
Wave 52299 was 29 with mild CFS and had been unable to study for several years. In summer 2022 she took three months off, rested, meditated daily, used a Mendi neurofeedback device for 3 minutes a day, stopped sugar, and used the Curable app; her memory improved and PEM became shorter. She called the Gupta program bad and not worth the money; Curable cost 60 dollars a year. She remained mildly ill and easily got PEM.
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What they tried
What they credit
Also tried
Their words about each treatment
- acupressure mat · Helped
I use my every evening for like 20 minutes before bed. I feel relaxed
In context ↗ - eating meat again (salmon, chicken, lamb) · Helped
I started eating meat again after being a vegetarian for 14 years earlier in the spring ... my body felt so at ease afterwards
In context ↗ - TCM acupuncture · Worse
I went to TCM acupuncture last week, felt good afterwards but later i become Very tried.
In context ↗ - antihistamine · Helped
I have also noticed that taking an antihistamin if I feel close PEM makes it easier
In context ↗ - resting · Not said
First month I just rested.
In context ↗ - Gupta program · No change
First, I bought GUPTA (sorry everyone who told me not to, I totally did it anyways and it sucks)
In context ↗ - meditation · Helped
I have found that meditating 1 hour a day have helped my memory in an incredible way
In context ↗ - Mendi (neurofeedback machine) · Helped
in combination with my Mendi (neurofeedback machine, Swedish) 3 minutes a day my memory has seriously improved
In context ↗ - stopping sugar and junk food · Helped
I have stoped eating sugar at all, and no junk food or something like that
In context ↗ - CURABLE app · Helped
It has a "panic button" which I think has really helped when I felt PEM begin to come, so that I could calm down and make the pem very much shorter
In context ↗ - loving kindness meditation · Helped
I recently began to do "loving kindness meditation" (There is loads in YouTube), and it really makes me just happier during my days
In context ↗
Approaches: Brain retraining · Diet · Mind-body practices
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | Mild CFS; unable to study for several yearsI’m 29 (f) with mild cfs. I have just finished my first semester of studies after not being able to Do so for several years.In context ↗ | Mild | |
| 2022-06-14 | Became very tired after TCM acupunctureI went to TCM acupuncture last week, felt good afterwards but later i become Very tried.In context ↗ | Mild | |
| 2022-08-17 | Three months off; meditation and Mendi; memory improved and PEM shorterI have done so for 8 weeks now, and that in combination with my Mendi (neurofeedback machine, Swedish) 3 minutes a day my memory has seriously improvedIn context ↗ | Mild | Meditation, yoga, breathwork |
Adverse events
- Chinese herbal medicine (TCM formulas), Acupuncture“I went to TCM acupuncture last week, felt good afterwards but later i become Very tried.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I can't excessive and I easily get pem
In context ↗ - Brain fog
my memory has seriously improved
In context ↗ - Anxiety & low mood
I feel Very overwhelmed and cry easily
In context ↗ - Pain & fibromyalgia
Otherwise my back hurts and I can't concentrate.
In context ↗
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