Long COVID
Moderate → much betterIll 6 years before improving or writing
Long COVID, unable to work three years, now much better with time
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 6 years
- Last post
- Feb 2026
In their words
- Condition: Long COVID
I've had Long Covid now for three years
In context ↗ - At worst: Moderate
still can't work. Any kind of psychical exertion seems to trigger my symptoms again. ... Now there are certain days I can't even get out of bed.
In context ↗ - Now: Much better
I am now able to exercise and not feel sick a day or two afterwards. ... I still have days when I feel the symptoms creep back up but there nothing like what I used to go through.
In context ↗ - Began after: COVID
I'm an old long hauler from march 2020
In context ↗
Read from 27 of their posts and comments; links to the 23 this page draws on
Summary
He fell ill with long COVID in March 2020, aged 39, and was still unable to work three years later, with some days too ill to leave bed. An omicron reinfection in December 2022 set him back to square one. Supplements such as nattokinase and NAC helped briefly but flared his lifelong interstitial cystitis, as did months of Truvada. He credits time: by 2026 he could exercise without crashing, though symptom days and shoulder pain remained.
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What they tried
What they credit
Also tried
Nattokinase· HelpedFluvoxamine· HelpedLymphatic massage· HelpedIvermectin· Helped · wore offHydroxychlor· Helped · wore offMaraviroc· Helped · wore offPaleo diet· Helpedskipping breakfast· HelpedQuantum NAC· Helpedantibiotics· HelpedRefresh Tears· No changeTruvada· WorseForeign Protein Cleanse· Worseexercise (weightlifting, kettle bells)· WorseCOVID vaccination as treatment· Not said
Their words about each treatment
- Nattokinase · Helped
I took Nattokinase for two weeks and noticed an improvement in my symptoms ... I unfortunately had to stop taking it as I have IC interstitial cystitis
In context ↗ - Fluvoxamine · Helped
Fluvoxamine helps me with the cognitive issues associated with Long covid (brain fog, memory loss ect.)
In context ↗ - Lymphatic massage · Helped
you could try Lymphatic massage for the head. This also helped me.
In context ↗ - Ivermectin · Helped
I've also tried different drugs such as Ivermectin Hydroxychlor even Maraviroc but they all just acted as band aids and the symptoms would just come back again.
In context ↗ - Hydroxychlor · Helped
the only thing that seems to help me is Hydroxychlor
In context ↗ - Paleo diet · Helped
I did notice some benefit from diet but there was always a limit to how much it helped me. I tried to not eat processed food and stick more to a Paleo diet meat veggies fruits, etc.
In context ↗ - skipping breakfast · Helped
I noticed too the less I ate the less inflammation I got. I would skip breakfast all together and just eat lunch and dinner.
In context ↗ - Quantum NAC · Helped
Took Quantum NAC and it also helped me I found that I was even able to exercise again.
In context ↗ - Truvada · Worse
I was on Truvada for the LC for months and I'm no longer having a lot of the LC symptoms now but it really inflamed my IC.
In context ↗ - antibiotics · Helped
They did find bacteria in my bladder and put me on antibiotics which seems to help me.
In context ↗ - Refresh Tears · No change
I have the regular Refresh Tears and they don't work for me.
In context ↗ - Foreign Protein Cleanse · Worse
I blame the flare up and UTI like infection on a long Covid supplement called Foreign Protein Cleanse like quantum NAC
In context ↗ - exercise (weightlifting, kettle bells) · Worse
Four years and I still can't work out, it always increases my long covid symptoms.
In context ↗ - time · Helped
I really contribute this to time and nothing else
In context ↗ - COVID vaccination as treatment · Not said
This feeling was at its most intense after I was vaccinated in April of 2021. The Vax is now known to really mess up gut bacteria. I had this symptom for months afterwards.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 6 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| March 2020 | COVID-19 infection; long COVID beginsI'm an old long hauler from march 2020In context ↗ | Not stated | |
| 2020 | first year, at his sickestthat first year for me was the absolute worstIn context ↗ | Moderate | |
| 2022 | tachycardia stopped by the second yearBy the second year I was no longer experiencing this symptom.In context ↗ | Moderate | Time and spontaneous remission |
| December 2022 | omicron reinfection, back to square onein December of 2022 I got omicron and it kicked up my symptoms again and in many ways I was back at square one againIn context ↗ | Moderate | |
| June 2023 | less sick than 2020 but still symptomatic and not workingalthough I'm not as sick as I was back in 2020 I still exhibit on and off symptomsIn context ↗ | Moderate | Time and spontaneous remission |
| January 2025 | less often sick after exerciseHowever now there's more like a 75% chance I won't get sick after exercise and I really contribute this to time and nothing else.In context ↗ | Mild | Time and spontaneous remission |
| July 2025 | most long COVID symptoms gone, able to exerciseI'm no longer having a lot of the LC symptoms now but it really inflamed my IC.In context ↗ | Mild | Time and spontaneous remission |
| February 2026 | can exercise without crashing; some symptom days remainI am now able to exercise and not feel sick a day or two afterwards.In context ↗ | Mild | Time and spontaneous remission |
Adverse events
- Nattokinase“Same thing happened to me, on the 4th day had extreme fatigue so I stopped taking it.” In context ↗ Made symptoms worse
- Nattokinase“I felt more energy on it but by the 3rd week I started to get terrible brain fog I even started to feel confused.” In context ↗ Made symptoms worse
- Nattokinase“And the soy really irritated my bladder. I basically felt like I had a 24/7 UTI.” In context ↗ Autoimmune or inflammatory flare
- NAC (N-acetylcysteine)“Unfortunately I also have IC Interstitial Cystitis and it seemed to flare up my symptoms so I had to stop taking it.” In context ↗ Autoimmune or inflammatory flare
- Foreign Protein Cleanse, NAC (N-acetylcysteine), Nattokinase“I blame the flare up and UTI like infection on a long Covid supplement called Foreign Protein Cleanse like quantum NAC” In context ↗ Autoimmune or inflammatory flare
- Emtricitabine-tenofovir (Truvada, Descovy)“The drug really made my IC worse and I've been suffering because of it. It basically gave me what they call Covid bladder.” In context ↗ Autoimmune or inflammatory flare
- COVID vaccination as treatment“This feeling was at its most intense after I was vaccinated in April of 2021. The Vax is now known to really mess up gut bacteria. I had this symptom for months afterwards.” In context ↗ Side effects
Symptoms mentioned
Brain fogBreathlessnessFlu-like symptomsHeadaches & migraineLoss of smell or tasteMuscle weaknessPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseVision problems
Their words about their symptoms
- Post-exertional malaise
I used to get sick and a return of my LC symptoms a day or two after physical exertion.
In context ↗ - Brain fog
Fluvoxamine helps me with the cognitive issues associated with Long covid (brain fog, memory loss ect.)
In context ↗ - POTS & dysautonomia
I had tachycardia symptoms the first year but it eventually did go away.
In context ↗ - Headaches & migraine
I would often get headaches brain fog and loss of taste and smell.
In context ↗ - Loss of smell or taste
headaches brain fog and loss of taste and smell
In context ↗ - Vision problems
I couldn't even read it was like I needed glasses.
In context ↗ - Flu-like symptoms
I feel like my body's burning up with no fever. And this also comes with Covid flu like symptoms.
In context ↗ - Breathlessness
Yes of course. I would also get tachycardia at the same time.
In context ↗ - Pain & fibromyalgia
I now feel pain that shoots through my right arm if I try to lift heavy and also pain in my left shoulder.
In context ↗ - Muscle weakness
it feels like my muscles are not what they used to be
In context ↗
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