Long COVID with migraines, numbness and breathlessness, now somewhat better
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 2 years
- Last post
- Apr 2023
In their words
- Condition: Long COVID
It's been 7 months posy covid.
In context ↗ - At worst: Mild
I do make it to the gym and that is probably one of the best mood boosts I get.
In context ↗ - Now: Somewhat better
Most symptoms have gone away besides fatigue.
In context ↗ - Began after: COVID
It's been 7 months posy covid.
In context ↗
Read from 13 of their posts and comments; links to the 11 this page draws on
Summary
A 27-year-old who caught COVID in late 2020 developed long COVID with migraines, numbness, breathlessness, poor sleep and post-exertional fatigue. Walks, gym sessions, gentle yoga and inhalers gave limited help, and a CPAP machine seemed to make sleep worse. By early 2023 most symptoms had gone but fatigue and unrefreshing sleep remained; a March 2023 reinfection was easier to get over with Paxlovid.
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What they tried
What they credit
Also tried
Their words about each treatment
- little walks and going to the gym · Helped
little walks and going to the gym have been the best mood boosts for me
In context ↗ - vitas and meds · Not said
I have tried so many different vitas and meds too
In context ↗ - PT · Helped
Did some PT stuff that helps a bit though
In context ↗ - abuterol and another inhaler · Helped
My doc put me on abuterol and another inhaler for asthma that seems to help a bit.
In context ↗ - yoga routine on YouTube · Helped
Sometimes ill just watch a yoga routine on YouTube and that helps for the gentle exercise
In context ↗ - cpap machine · Worse
Got a cpap machine in May since I have mild apnea. Think it has made my sleep worse using it.
In context ↗ - Yoga Nidra and guided meditations · Helped a lot
Yoga Nidra and guided meditations help me immensely
In context ↗ - Paxlovid · Helped
I took it when I had covid again last month and it helped me recover better compared to when I had it years ago
In context ↗ - Fluticasone / salmeterol (Advair, Wixela) · Not said
Was advair the other inhaler? Because that makes me feel pretty weird when I use it. Like a rush of anxiety like I'm going to faint sometimes
In context ↗
Approaches: Antivirals · Mind-body practices
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| October 2020 | caught COVID, long COVID followedIt's been 7 months posy covid.In context ↗ | Mild | |
| winter 2020-21 | worst point; cognition test scored below averageI had a cognition test when things were really bad in winter. Scored below averageIn context ↗ | Mild | |
| 2023-01-09 | most symptoms gone, fatigue and unrefreshing sleep remainMost symptoms have gone away besides fatigue.In context ↗ | Mild | |
| 2023-04-08 | COVID reinfection in March, recovered better with PaxlovidI took it when I had covid again last month and it helped me recover better compared to when I had it years ago.In context ↗ | Mild | Paxlovid / nirmatrelvir |
Adverse events
- Fluticasone / salmeterol (Advair, Wixela)“Was advair the other inhaler? Because that makes me feel pretty weird when I use it. Like a rush of anxiety like I'm going to faint sometimes” In context ↗ Side effects
- CPAP and sleep apnoea treatment“Got a cpap machine in May since I have mild apnea. Think it has made my sleep worse using it.” In context ↗ Insomnia from treatment
- Paxlovid / nirmatrelvir“The worst side effect was the metallic taste after a dose.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Headaches & migraine
I had the headaches and migraines for months.
In context ↗ - Sleep problems
I couldn't tell you the last time I've felt fully rested from a night's sleep.
In context ↗ - Post-exertional malaise
on my good days I go all out and pay the price in fatigue the next few days
In context ↗ - Brain fog
Scored below average and recently took another one at the nuero and came back average.
In context ↗ - Neuropathy & tingling
Similar stuff with the numbness, muscle issues, migraines, fatigue, etc it goes on.
In context ↗ - Breathlessness
Some days my goal is just to be able to take a full deep breath through my lungs
In context ↗ - Anxiety & low mood
I'm 27 and have a lot of mental health issues going on pre covid
In context ↗
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