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Long COVID Mild → no benefitIll for 3 years

Long COVID brain fog and vertigo for three years, only a little better after HBOT and LDN

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill for
3 years
Last post
Jun 2026
In their words
  • Condition: Long COVIDI’ve been battling LC since Feb 2023. In context ↗
  • At worst: MildI now eat a Mediterranean diet and it has helped a little bit, but I’m still operating at like 50% of my former self. In context ↗
  • Now: No benefitit’s been 3 years, still struggling In context ↗
  • Began after: COVIDabout 2 months after my second infection, so late Jan 2023, I had the worst migraine of my life
Read from 20 of their posts and comments; links to the 13 this page draws on

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Summary

Man in his late 30s developed long COVID after his second infection in late 2022; in February 2023 vertigo began, followed by constant brain fog, dizziness and lightheadedness. A 25-day Paxlovid trial brought a week or two of clarity before he returned to baseline, and a third infection in November 2023 set him back further. HBOT, diet change, LDN, methylene blue and clomiphene left him only a little better after three years, with bilateral vestibular hypofunction diagnosed.

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What they tried

Their words about each treatment
  • vitamin d · No changemy dr who prescribed vitamin b12 and vitamin d In context ↗
  • Magnesium · No changeI saw a neurologist who prescribed magnesium In context ↗
  • cutting out caffeine and alcohol · Not saidI cut out caffeine and alcohol entirely In context ↗
  • cpap · Helpedthey found I have sleep apnea, so I have a cpap now ... it has helped with quality of sleep
  • physical therapist specializing in long Covid · Not saidI see a physical therapist now, specializing in long Covid In context ↗
  • Paxlovid (nirmatrelvir/ritonavir) trial · HelpedFor a week or two I felt about 75% better ... I returned back to the baseline that’s been the last 1+ year In context ↗
  • Loratadine · No changeI’ve tried loratadine and famodotine (H1 & H2 antihistamines, but didn’t see any improvement) In context ↗
  • NAC · No changealong with taking NAC and a few other vitamins & supplements ... but nothing has really moved the needle In context ↗
  • Glutathione · No changeRight now I’m taking B12, D3, NAC, magnesium, fish oil, Glutathione, Loratadine ... but nothing has really moved the needle
  • Zinc · Not saidZinc (50mg, but this may not be good (?) to take as it could deplete copper, so I stopped taking it? In context ↗
  • l-tyrosine · No changel-tyrosine, Ubiquinol, omega 3, magnesium ... but nothing has really moved the needle In context ↗
  • Mediterranean diet · HelpedI now eat a Mediterranean diet and it has helped a little bit In context ↗
  • intermittent fasting (16:8) · No changeI’ve been on an anti inflammatory diet and I’ve been intermittent fasting ... but nothing has really moved the needle In context ↗
  • baby aspirin · HelpedLast week I started taking baby aspirin every day, and I’m not sure if it’s a coincidence or not, but my brain fog has slightly improved. In context ↗
  • nystatin · Not saidI also had candida overgrowth (dysbiosis /leaky gut) and took nystatin for a few weeks. In context ↗
  • HBOT · HelpedI’ve done 10 sessions of HBOT (hyperbaric oxygen therapy) so far, and it does help, but it also slowly dissipates over time In context ↗
  • prebiotic supplements · Not saidNow I’m taking some prebiotic supplements to start repopulating my gut with healthy bacteria. In context ↗
  • LDN (low-dose naltrexone) · HelpedOn LDN and methylene blue. I’m only a little better. In context ↗
  • DHEA · Not saidI was on DHEA prior In context ↗
  • clomiphene · HelpedClomiphene (after discovering low testosterone levels ~360; I was on DHEA prior) ... clomiphene helped bring it up to about 500
  • vestibular physical therapy · HelpedI did it for a few months, and it helped a little, but hasn’t moved the needle a ton. In context ↗
  • antibiotics · No changeI was put on antibiotics, but it didn’t clear anything up. In context ↗
  • Botox in cheeks · HelpedI had TMJ and got Botox in my cheeks to help with it. And it has helped In context ↗
  • vitamin C · Not saidVitamins B, C, D, and magnesium In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
Feb 2023woke with vertigo, then constant brain fog and lightheadednessIn February 2023, I woke up from sleep with a vertigo episode—and I haven't felt the same since. In context ↗Mild
Feb-May 2023living in a haze, felt like a zombieFrom Feb 2023 to May 2023 I felt like a zombie. In context ↗Mild
May-June 2023good days mixed in with the badI wasn’t exactly recovering, but I had good days now, mixed in with the bad. In context ↗Mild
July 2023daughter born; sleep deprivation and stress worsened symptomsMy daughter was born in early July (our first), and sleep deprivation and stress compounded on my symptoms In context ↗Mild
Nov 2023third COVID infection, then a 5k and yard work led to a crashI felt like I hit a wall. My body shut down and I slept for the rest of the day. In context ↗Mild
March 2024a week or two of clarity after the Paxlovid trialFor a week or two I felt about 75% better. In context ↗MildPaxlovid / nirmatrelvir
April 2024trial benefit faded, back to his usual baselineI returned back to the baseline that’s been the last 1+ year. In context ↗Mild
May 2024Mediterranean diet; walking 7,000 steps a dayI now eat a Mediterranean diet and it has helped a little bit, but I’m still operating at like 50% of my former self. In context ↗Mild
July 2024brain fog slightly improved after starting baby aspirinLast week I started taking baby aspirin every day, and I’m not sure if it’s a coincidence or not, but my brain fog has slightly improved. In context ↗Mild
Sept 202410 HBOT sessions helped a little, effect faded over timeI’ve done 10 sessions of HBOT (hyperbaric oxygen therapy) so far, and it does help, but it also slowly dissipates over time (for me anyway). In context ↗MildHyperbaric oxygen (HBOT)
July 2025on LDN and methylene blue, only a little betterI’m only a little better. Every day is still a struggle. In context ↗MildLow-dose naltrexone
June 2026chronic sinusitis found; antibiotics did not help; sinus surgery plannedI was put on antibiotics, but it didn’t clear anything up. I’m finally resorting to surgery (in 2 weeks). In context ↗Mild

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Brain fogmy #1 symptom by far is brain fog In context ↗
  • POTS & dysautonomiaI feel lightheaded and dizzy In context ↗
  • Headaches & migraineI had the worst migraine of my life In context ↗
  • Post-exertional malaiseI have had bad cases of PEM, but thankfully the worst (I hope) is behind me. In context ↗
  • Muscle weaknessThe following weeks I was weak & fatigued. In context ↗
  • Neuropathy & tinglingI lose feeling very quickly in my arms and legs, specifically my fingers In context ↗
  • Vision problemseye tracking issues (trouble focusing my eyes) In context ↗
  • Anxiety & low moodI’m sure I’ve developed anxiety along the way as well. In context ↗
  • Gut problemsI’ve always had a verrrry slow metabolism (sometimes only one bowel movement every few days) In context ↗
  • Sleep problemsI have a cpap now, and it has helped with quality of sleep In context ↗

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