Long COVID fatigue and brain fog, wiped out by chores, somewhat better on IVIG
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 3.5 years
- Last post
- Jul 2024
In their words
- Condition: Long COVID
I've been LH since 2020
In context ↗ - At worst: Moderate
I struggle with doing house chores and helping with the kids. Going to the grocery store completely wipes me out for the rest of the day
In context ↗ - Now: Somewhat better
I'm currently on ivig which has helped some what.
In context ↗ - Began after: COVID
In November 2020 I caught the original strand of covid and it felt like i was hit by a truck
In context ↗
Read from 7 of their posts and comments; links to the 5 this page draws on
Summary
A 29-year-old man fell ill with COVID in November 2020 and never recovered, with fatigue, muscle weakness and numbness, and later brain fog and light sensitivity; chores and shopping left him wiped out. A Pfizer dose in July 2021 and COVID reinfections in spring 2022 and on New Year's Eve 2022 each added symptoms. Six months of IVIG did not improve his symptoms despite better immunoglobulin numbers, and by July 2024 he was still unwell on IVIG, which helped somewhat.
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What they tried
What they credit
Also tried
Their words about each treatment
- ivig therapy · Helped
I did treatment for about 6 months and there's been zero improvements with how I feel but my numbers have gotten better.
In context ↗ - reccomended vitamins · Helped
I started taking plenty of reccomended vitamins that I've came across on the sub and I started to feel like I was turning the corner & getting better
In context ↗ - paxlovid · Helped
It's amazing how fast that works, helped my symptoms dramatically but as of the last three days I've had some of the worst brain fog imaginable
In context ↗ - meditating · Helped
I've recently started meditating to see if it would help with my outlook on life and I've seen some positivity with that.
In context ↗ - two statins · No change
none of the medication has been able to control it
In context ↗ - lower carb and sugar intake · Not said
i try to have a lower carb and sugar intake and i stay away from fast foods
In context ↗ - COVID vaccination as treatment · Worse
A few days later my body felt like it was under attack. I had a awful sore throat, my joints felt like they were set on fire
In context ↗
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| November 2020 | COVID-19, original strainIn November 2020 I caught the original strand of covid and it felt like i was hit by a truckIn context ↗ |
| about a month and a half after covid | long covid began: shock-like head pain, extreme fatigue and muscle weaknessI felt extreme fatigue and muscle weakness where I barely could find the energy to walkIn context ↗ |
| July 2021 | first Pfizer dose, symptoms every day sinceonce I got the first dose I've had symptoms every day sinceIn context ↗ |
| April 2022 | started recommended vitamins and felt he was turning a cornerI started to feel like I was turning the corner & getting betterIn context ↗ |
| May 2022 | second covid infection; symptoms returned after PaxlovidAfter 10 days all my symptoms have came back with a vengeanceIn context ↗ |
| December 2022 | a solid good month of improvementAbout a month ago I felt like my life was finally turning the page and I was improving finallyIn context ↗ |
| New Year's Eve 2022 | third covid infection; worst brain fogI just caught covid for a 3rd time on New Years EveIn context ↗ |
| July 2024 | still unwell, on IVIG which helped somewhatI'm currently on ivig which has helped some whatIn context ↗ |
Adverse events
- COVID vaccination as treatment“A few days later my body felt like it was under attack. I had a awful sore throat, my joints felt like they were set on fire” In context ↗ Made symptoms worse
- COVID vaccination as treatment“once I got the first dose I've had symptoms every day since” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
The more activities I do the worse my symptoms get.
In context ↗ - Brain fog
some of the worst brain fog imaginable
In context ↗ - Light & noise sensitivity
brain fog and light sensitivity
In context ↗ - Muscle weakness
extreme fatigue and muscle weakness where I barely could find the energy to walk
In context ↗ - Neuropathy & tingling
my arms and legs go numb from time to time
In context ↗ - Sleep problems
no matter how much I sleep I wake up feeling like I was just in a damn marathon race
In context ↗ - Temperature regulation
my feet get iced cold
In context ↗ - Pain & fibromyalgia
my joints felt like they were set on fire
In context ↗ - Flu-like symptoms
I had a sore throat, face was dry and peeling & I had a high fever for about 25 days straight
In context ↗ - Anxiety & low mood
I just am losing out hope and don't know how much more I can deal with this suffering
In context ↗
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