Three months in bed with long COVID, now recovered after phased return and AIP-like diet
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 2 years
- Last post
- Oct 2022
In their words
- Condition: Long COVID
Got covid in jan 2021. It didnt go weel and i had hard time recovering.
In context ↗ - At worst: Severe
3 months on i was bedbound.
In context ↗ - Now: Recovered
Took 2 yrs to get over it completely.
In context ↗ - Began after: COVID
Covid in jan just came bk to ft work.
Read from 27 of their posts and comments; links to the 16 this page draws on
Summary
After COVID in January 2021 they spent three months in bed with breathlessness, chest pain, dizziness, brain fog, poor sleep and tinnitus. A nurse-supervised phased return and slow step increases got them back to full-time work by August 2021; a supervised AIP-like elimination diet after 14 months, opened by a five-day fast-mimicking diet, cleared about 95% of symptoms. They said they were over it completely after two years, though tinnitus remained.
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What they tried
What they credit
Also tried
Their words about each treatment
- pacing · Helped a lot
I cannot state enough how much pacing my activities has helped
In context ↗ - step counter · Helped
I use step counter on my phone. This allowed me to establish baseline of x number of steps before I tanked.
In context ↗ - covid vaccines · No change
Didn't help for long covid but didn't make it any worse either.
In context ↗ - zopiclone · Helped
got zopiclone as an intervention med to force my body to sleep
In context ↗ - meditation using headspace app · Helped
meditation using headspace app daily
In context ↗ - fermented foods · Helped
I feel much better when I eat fresh veg with large variety and fermented foods
In context ↗ - loratidine · Helped
Allergy meds I took them for actual allergy but it pushed some of long covid down esp heart issues
In context ↗ - fast mimicking diet · Helped a lot
First thing I did was akin to fast mimicking diet. 5 days of it.
In context ↗ - diet similar to aip · Helped a lot
The diet they put me on obliterated long covid by 95%.
In context ↗ - antivirals · Helped a lot
I just went through covid again got antivirals and between them and vaccination outcome is hugely different for me.
In context ↗
Approaches: Diet · Mind-body practices · Pacing · Physiotherapy and rehab · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 3 months after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| January 2021 | COVID-19Got covid in jan 2021. It didnt go weel and i had hard time recovering.In context ↗ | Not stated | |
| April 2021 | bedbound for three monthsI got it in Jan spent 3 months in bed.In context ↗ | Severe | |
| 2021 | relapses after doing too much too soonI ended up relapsing few times cos I tried too much too soon.In context ↗ | Not stated | |
| August 2021 | phased return completed, back to full-time workBy Aug got bk into ft work.In context ↗ | Mild | Pacing and the energy envelope |
| December 2021 | walking the dog once or twice a day and working 7-hour daysTook me 11 months to go from covid bed bound to walking dog once or twice a day.In context ↗ | Mild | Pacing and the energy envelope |
| March 2022 | dietitian-supervised elimination diet after a five-day fast-mimicking diet cleared most long COVID symptomsIt took me 14 months to be able to walk 5k steps ar 30 mins a day.In context ↗ | Near normal | Elimination diets (other) |
| April 2022 | occasional relapses, also from underlying chronic illnessSome days I relapse but its also to do with a chronic ilness of mine tooIn context ↗ | Mild | |
| October 2022 | over long COVID, later reinfection lasted only two weeksTook 2 yrs to get over it completely.In context ↗ | Recovered |
Adverse events
- COVID vaccination as treatment“1st I slept all day like covid again with lethargy fatigue tired rest of the wk.” In context ↗ Side effects
- Graded rehab and self-made programmes“I ve had no 8dea how slow my nurse meant until I got severe ill from what I thought was gradual and slow uptick of activities.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I end up having to go to bed and not move at all for hours or days to recover.
In context ↗ - Brain fog
I had steep cognitive decline.
In context ↗ - POTS & dysautonomia
Recurrence of breathless, hallucinations, dizziness the full monty.
In context ↗ - Mast cell (MCAS) & allergies
I ve developed an allergy I winter
In context ↗ - Sleep problems
Still initially I slept 18 to 20 hrs so there's that...
In context ↗ - Breathlessness
It's pretty much gone apart from getting breathless if I walk too fast too much.
In context ↗ - Heart symptoms & palpitations
My heartbeat would go through the roof, my body full of adrenaline.
In context ↗ - Anxiety & low mood
My covid depression is gone
In context ↗ - Tinnitus
Tinnitus never stopped
In context ↗ - Vision problems
my eyes wouldn't even focus on letters
In context ↗
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