Long COVID with severe fatigue, somewhat better; credits vitamins and benfotiamine
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 5 years
- Last post
- Aug 2026
In their words
- At worst: Mild
I honestly didn’t know how I was going to be able to continue working.
In context ↗ - Now: Somewhat better
So far I’ve noticed my vision and dizziness has improved. ... Now my dysautonomia is so bad I have to prioritize protein.
Read from 35 of their posts and comments; links to the 21 this page draws on
Summary
Tide 41166, a Florida teacher, had long COVID symptoms by 2020 and delta in August 2021, followed by a school year of catching every bug and severe fatigue. They credit a strict vitamin regime over summer 2022; later benfotiamine eased dizziness and vision, keto/carnivore helped brain fog, and TUDCA helped gut pain. A 2024 reinfection improved sleep and energy, while they say an earlier reinfection's brief improvement levelled off. They still manage dysautonomia and gut symptoms.
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What they tried
Also tried
Their words about each treatment
- Hoka recovery flip flops · Helped
I bought Hoka brand “repair” flip flops and that has helped A Ton!
In context ↗ - ivermectin · Not said
I took ivm back in August when I had delta and I’m still here to tell the tale!!
In context ↗ - PepZin Gi (zinc carnosine) · Helped
PepZin Gi helped me tremendously.
In context ↗ - augmentin · Helped
800mg augmentin cleared it up.
In context ↗ - turpentine protocol · Not said
I’ve done the turpentine protocol.
In context ↗ - stretches and icing · Helped
I also learned some stretches and icing techniques.
In context ↗ - mucinex · Worse
I can barely take things like mucinex because it hurts my stomach so badly.
In context ↗ - mastic gum · Helped
Mastic gum and zinc carnosine keeps me from having awful gastritis.
In context ↗ - strict vitamin regime · Helped
Finally over summer break I was able to follow a strict vitamin regime and improve.
In context ↗ - probiotics · Not said
I take probiotics if I need them, but I still can’t take them on a daily basis.
In context ↗ - mucuna purines · No change
I tried it and couldn’t tell it did a damn thing.
In context ↗ - Calm (ashgawanda, magnesium, and gaba) gummies · Helped
The best thing I’ve tried lately are the Calm (ashgawanda, magnesium, and gaba) gummies from Walgreens
In context ↗ - Tudca · Helped
I haven’t had pain from Tudca, only relief from bile congestion.
In context ↗ - keto / carnivore · Helped
Seconding carnivore. It’s helped my brain fog tremendously.
In context ↗ - Bentofiamine · Helped
So I’ve started supplementing with Bentofiamine. So far I’ve noticed my vision and dizziness has improved.
In context ↗ - intermittent fasting · Worse
I tried IF for a while but it made my brain fog worse.
In context ↗ - sour candies, heat, massage and water · Helped
Dr Google recommended sour candies, heat, massage, and lots of water. It’s cleared up quite a bit.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| August 2021 | delta COVID with pneumonia, then a school year catching every bugI had delta last year in august. Was soooo sick, pneumonia and all.In context ↗ | Mild | |
| Spring 2022 | sick off and on all spring, severely fatigued, doubted they could keep teachingI honestly didn’t know how I was going to be able to continue working.In context ↗ | Mild | |
| Summer 2022 | strict vitamin regime over summer break, felt goodFinally over summer break I was able to follow a strict vitamin regime and improve.In context ↗ | Mild | |
| March 2024 | reinfection brought deep sleep and a little more daytime energyI have a little more energy during the day!In context ↗ | Mild | |
| September 2024 | gain after reinfection levelled offIt’s leveled off since then for sure tho.In context ↗ | Mild | |
| November 2024 | benfotiamine, keto and carnivore diet eased dizziness, vision and brain fogSo far I’ve noticed my vision and dizziness has improved.In context ↗ | Mild | Thiamine / benfotiamine |
| June 2026 | still managing gut and dysautonomia symptoms with diet and supplementsTudca keeps me pain free and I still have my gallbladder!!!In context ↗ | Mild |
Adverse events
- Guaifenesin (Mucinex)“I can barely take things like mucinex because it hurts my stomach so badly” In context ↗ Gut side effects
- Probiotics and fermented foods“I take probiotics if I need them, but I still can’t take them on a daily basis. I think it feeds the h pylori honestly.” In context ↗ Gut side effects
- Intermittent fasting“I tried intermittent fasting and that made me waaay worse w brain fog.” In context ↗ Made symptoms worse
- TUDCA“I tried it ONE time at night and it hurt only that once.” In context ↗ Other
Symptoms mentioned
Their words about their symptoms
- Brain fog
It *has* gotten better but I still notice it sometimes.
In context ↗ - Neuropathy & tingling
In addition to the random tingling hands and feet
In context ↗ - Pain & fibromyalgia
this past week I've developed heel pain
In context ↗ - Gut problems
Mastic gum and zinc carnosine keeps me from having awful gastritis.
In context ↗ - POTS & dysautonomia
Now my dysautonomia is so bad I have to prioritize protein.
In context ↗ - Sleep problems
Previously I would wake up at 3 or 4 and just lay there
In context ↗ - Vision problems
So far I’ve noticed my vision and dizziness has improved.
In context ↗